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living with DID/ Dissociative Identity Disorder

living with DID/ Dissociative Identity Disorder

hi @Former-Member, @CheerBear, @Spookytookims, @Former-Member and everyone else

I've had a few ask about what its like living with DID. So I decided to do a new thread. First off for those who dont know there are varying degrees of DID, from just feeling far away or distanced to having distinct alternate personalities or identies. In my case I have distinct alters to the point they have names and one has even been diagnosed with autisim which is rare.

So to make it so people can get a better idea I'm Aj the owner of the body. Then there is Kelly she is around the age of 4. Kelly actually started off as my imaginary friend when i was little then I went through a period of wanting to be the imaginary one due to abuse from someone i trusted. so Kelly is also the Autistic one, she will scream when touched and doesnt talk often sits and watches the clouds. the longest she has been out is 2 weeks. I am not co-consious with any of my alters when they are out i lose time. Kelly will come out usually if i feel scared or insecure and can be hard on my partner when our son wants mummy.

Next is sarah she is around 6 and is the easiest to handle often my partner cant tell she is out til she starts humming somesort of tune (we havent worked out what it is) she is a typical 6 yr old and the best part is my little boy isnt afected by her when shes out he just thinks mummy has taken time to play with him.

Then there is Casey while she comes out very little she needs constant monitoring as she self-harms but she doesnt usually come out unless get real down. thankfully my son has never had to encounter her.

i also have another alter but she is not as distinct as the others.

yes most of my alters a littles or children, i have been told this is because of my age when my childhood abuse started and when significant truma was present.

i was three when my abuse started. i was 22 when i finally cut the cord of emotional abuse my mother used on me. if anyone has questions i am happy to answer them

168 replies

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In response to: living with DID/ Dissociative Identity Disorder

Re: living with DID/ Dissociative Identity Disorder

@mudsum

the only good thing ive found and thats being here on the forums and yes ive got a lot of crap to deal with esp being a younger age- it really is hard and apparently no one else can see that

In response to: Re: living with DID/ Dissociative Identity Disorder

Re: living with DID/ Dissociative Identity Disorder

It is soo hard!!!! so extremly hard. And so exhausting, days that feel like youve got nothing left to give. but sounds as though your doing it. Good on you!!!

do you have parts? DID?

In response to: Re: living with DID/ Dissociative Identity Disorder

Re: living with DID/ Dissociative Identity Disorder

@outlander ohh sorry maybe thats what MI means? does that mean you have 5 parts?

In response to: living with DID/ Dissociative Identity Disorder

Re: living with DID/ Dissociative Identity Disorder

I dont want to do it anymore @mudsum

I dont have did but i was supporting aj1

I have severe ptsd severe gad severe depression health anxiety and social phobia

In response to: Re: living with DID/ Dissociative Identity Disorder

Re: living with DID/ Dissociative Identity Disorder

Glad you're doing better @mudsum. I had more than a year of good times and then have just recently plunged again. I guess that's the way it goes. So many people = so many things that can go wrong. But we go on, right? That's the one thing we're all good at 🙂

In response to: Re: living with DID/ Dissociative Identity Disorder

Re: living with DID/ Dissociative Identity Disorder

Hi I am new to the forum. I also have DID. I was diagnosed around two years ago but had suspected it for many years. I have some child parts that are very prominant but also alot of adult parts as I sufferered horrific ongoing trauma as an adult too. I find that I am co-conscious with many of my parts but there are many I do not know. I have a long way to go in 'discovering' what actually happened to me, for now its trying to be patient and meeting my parts, learning thier roles, needs; setting boundaries and a lot of compromise.

In response to: Re: living with DID/ Dissociative Identity Disorder

Re: living with DID/ Dissociative Identity Disorder

hi @ludo,

welcome to the forums.

i only have child parts and im not co-conscious with any of them i know there are at least three but possibly more while i have trouble learning specifics about my alters apart from others telling me what i do and how they act. while i am almost completly aware of the trama i went through there is still some stuf that is vague. as for their roles well if i get stressed, overly upset, scared or emotionally overwhelmed they take over as my only experience with dealing with strong emotion is in a childlike state and i have never allowed myself the opportunity to deal with thing from an adult mind frame and that is what my psychologist is trying to help me correct in the hopes that i can control myself from switching.

In response to: Re: living with DID/ Dissociative Identity Disorder

Re: living with DID/ Dissociative Identity Disorder

Trying to have a friendship... sounds so easy but when there is parts that don't trust my friend and other that want to be besties just makes for complicated life in my head.
@-Rayne- doesn't sound much fun for you at the moment. i feel the pain but wats happening for you?

@ludo glad you joined us. as i read your post i am crying. you have descirbed it perfectly .
feel known here.



other people judging me becuase they think i'm not safe to be around. little do they realise most survivors of DID never hurt outwards only inwards?
Anyone else heard that one?

In response to: Re: living with DID/ Dissociative Identity Disorder

Re: living with DID/ Dissociative Identity Disorder

Hi @Former-Member and @mudsum

Thanks for your kind welcome,

I guess I am pretty much co conscious most of the time now.

In my head, I will be either alone or other times parts will be with me and they will talk to me or influence my behaviour. I hear them talking to one another as well. Other times a part will take over by body and mind but I can still listen and watch or at least be aware. I can communicate with them whilst they are out. Other times I am really foggy and am a bit unsure of what is going on, but I don't fully disappear, i don't think - well, that's still questionable.

Its taken a long time to get to this point and a lot of writing in my journal, talking with counsellors, psychiatrists (good and bad) and inviting parts to come meet with me or write in the journal. Our biggest problem is the memories and whether to believe them or not. We have a lot of conflict over wanting to know the truth and staying in denial. Even when memories surface we don't believe them anyway. We just think we made it up and feel bad that we would make up such horrible stories.

@Former-Member Regarding controlling switching. I am guessing your parts will need to know that you can handle stressful situations before they will allow you to stay in those situations. With your psychologist you perhaps may need to role play what to do and say in particular situations and let them (your parts) watch you practice. Perhaps write to them and let them know what you are trying to do so they hold back and give you a chance to be assertive/calm/ground yourself etc. With me it was all about my parts trusting me that I could do it and me trusting myself. I know that if I get overwhelmed they will come out anyway or I will ask them for help.

Anyway thanks for having me on the forum

In response to: living with DID/ Dissociative Identity Disorder

Re: living with DID/ Dissociative Identity Disorder

Thanks for sharing your experience Ludo

I can really relate to what you say about getting your parts to trust you, to trust you can take care of them (us, me?) so they don't have to take over the driver's seat.

I was wondering, do you have any parts that take over for long periods of time, giving you dissociative fugues for hours or days at a time? I was struggling with that when I was last at university two years ago (it's a really triggering place I guess). I would get young parts taking over who were pretty reckless and sometimes did dangerous things. Do you ever get a part that takes over entirely, and you don't remember what happened afterwards?
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