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living with DID/ Dissociative Identity Disorder

living with DID/ Dissociative Identity Disorder

hi @Former-Member, @CheerBear, @Spookytookims, @Former-Member and everyone else

I've had a few ask about what its like living with DID. So I decided to do a new thread. First off for those who dont know there are varying degrees of DID, from just feeling far away or distanced to having distinct alternate personalities or identies. In my case I have distinct alters to the point they have names and one has even been diagnosed with autisim which is rare.

So to make it so people can get a better idea I'm Aj the owner of the body. Then there is Kelly she is around the age of 4. Kelly actually started off as my imaginary friend when i was little then I went through a period of wanting to be the imaginary one due to abuse from someone i trusted. so Kelly is also the Autistic one, she will scream when touched and doesnt talk often sits and watches the clouds. the longest she has been out is 2 weeks. I am not co-consious with any of my alters when they are out i lose time. Kelly will come out usually if i feel scared or insecure and can be hard on my partner when our son wants mummy.

Next is sarah she is around 6 and is the easiest to handle often my partner cant tell she is out til she starts humming somesort of tune (we havent worked out what it is) she is a typical 6 yr old and the best part is my little boy isnt afected by her when shes out he just thinks mummy has taken time to play with him.

Then there is Casey while she comes out very little she needs constant monitoring as she self-harms but she doesnt usually come out unless get real down. thankfully my son has never had to encounter her.

i also have another alter but she is not as distinct as the others.

yes most of my alters a littles or children, i have been told this is because of my age when my childhood abuse started and when significant truma was present.

i was three when my abuse started. i was 22 when i finally cut the cord of emotional abuse my mother used on me. if anyone has questions i am happy to answer them

168 replies

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In response to: living with DID/ Dissociative Identity Disorder

Re: living with DID/ Dissociative Identity Disorder

@mudsum I have a social worker. The MH team here gave up. I've done a lot of research but it's trial and error. The biggest things I found helpful was to stop fighting and work together. Most of mine, I stopped counting at 60, are kids, the most recent is proving a handful, but we are slowly getting there. They have each come with a piece of my life and shared, some are out daily, others come and go.

How are you doing???

In response to: living with DID/ Dissociative Identity Disorder

Re: living with DID/ Dissociative Identity Disorder

Yea I get that. It gets really daunting when I start to count.
I have a really good therapist I am so grateful as I know finding one that's decint is sooo hard.

Curious how some of them like to stay around some only just come once in a while. Same for me.
I've had a shocker week. Found a too close for my liking connection with one of my past abusers

In response to: Re: living with DID/ Dissociative Identity Disorder

Re: living with DID/ Dissociative Identity Disorder

@mudsum Sorry about your shocker week, I'm struggling big time too, not for the same reason as you.The close connection with a past abuser is a tough one, I have cut ties, it means I'm on my own, but sometimes that's the only choice left. I've gone from one abusive relationship to another, slow learner I guess, lol.

In response to: living with DID/ Dissociative Identity Disorder

Re: living with DID/ Dissociative Identity Disorder

totally understand the abusive relationship thing. but I have to say I learnt after 10 years and with some good friends how to get out. I'm happy to report that I've started to take anti- depressants and my mood in generally much better. I have been told not to expect it to last for ever but....

In response to: Re: living with DID/ Dissociative Identity Disorder

Re: living with DID/ Dissociative Identity Disorder

Hi everyone, just checking in to say I've had an interesting week. Went to see my boyfriend last friday to findout that a good friend was right, the boyfriend can somehow trigger switches. Im not sure why he does it or how and ive asked him to stop but im unsure how im going to know if he does or not? Has anyone else had a similar problem? If so did you overcome it?

In response to: living with DID/ Dissociative Identity Disorder

Re: living with DID/ Dissociative Identity Disorder

Hi @skita, men trigger me too. Know that its not them but within you. Self awareness can lesson switches I find, and keeping anxiety down. Mindfulness Meditations are the only thing that help me with this, though ever so slightly. This is very hard if men were the aggressor in past trauma. PTSD etc I think. You need psychologist support to work through this. Hope this helos. Take care ❤❤❤
Lapses🌷🌿

In response to: Re: living with DID/ Dissociative Identity Disorder

Re: living with DID/ Dissociative Identity Disorder

Hi all @Former-Member @sketa @Maggie and anyone I missed.

Time is such a strange thing, right? It feels like forever since I last visited here but then I try to remember what I did in the meantime and it's almost blank I did go overseas. That much I know. I was having extreme anxiety prior, and got new meds as a result. Then being there was very weird. Do you ever feel like you've been somewhere but you have no memory of it so how can you feel like you've been there? It was like that. Twice I found myself talking a language I couldn't understand but the person I was speaking to seemed to think I was a local?! Blech, yeah so very glad that's over and done with. Hoping beyond hope to be able to stay home and have some semblence of routine for the foreseeable future.

i have a meds question too. we're not allowed to say brands/drugs here but does anyone find that when they have a whatever med different people/alters are affected by them differently? so if there's like some kind of internal shift then it throws things out? ta

In response to: living with DID/ Dissociative Identity Disorder

Re: living with DID/ Dissociative Identity Disorder

Makes sense to me @-Rayne-, re medication - different alters, different personality, moods, reactions...

Time is relative (lol, to this one or that o w), don't know how were suppose to put all the pieces together. Impossible.

I hate that I have to watch a DVD over and over, sometimes x6, before all of me gets the little important details. When the kids lived here they filled in the gaps for me when I asked, sometimes laughed at me, other times got annoyed. Guess it could just be concentration but sometimes I know what's coming when I haven't seen it before, or have I?

Really feel crazy trying to identify splits, so just safer not to - hoping it will sort itself out.

You doing OK Briar?



In response to: Re: living with DID/ Dissociative Identity Disorder

Re: living with DID/ Dissociative Identity Disorder

@-Rayne- The meds thing you talk about makes a lot of sense. I can't find one that works and I've tried heaps. I have to read and re read before anything sticks. I'm glad you are home and with familiar things people and places. @Former-Member so good to communicate with others who understand. I don't have anyone in the real world with DID, I don't think it's something we shout from the mountain tops. Happy puzzle day.

In response to: Re: living with DID/ Dissociative Identity Disorder

Re: living with DID/ Dissociative Identity Disorder

@Former-Member a little better today. thanks for asking.

What you said about your kids made me smile. Mine knew about the DID long before I did - not that that's what it was called but that we were different. They actually still know all of us better than any of our therapists have. It's never really been a big issue for them. I guess it seems normal when you grow up with something.

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