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Self-Care with major Physical illnesses

Self-Care with major Physical illnesses

Hi @Former-Member This is an old post - it explains how medical neglect by Drs (doing no scans or tests) ended with me in hospital - the direct cause of my 1st emergency bowel surgery.

I have no current GP, since mine left (months ago) - will need to find one.

I have lived for several decades with serious physical illnesses (or conditions) -

Scoliosis, causing severe back pain

Sleep Apnea (diagnosed 11 years ago), causing debilitating daily fatigue - treatment & stimulant medication has moderately improved my functioning. Not to anywhere near a "normal" level, for someone without a Sleep Disorder (or a fatigue condition).

A bowel obstruction (tumor), with 3 major bowel surgeries (2 emergencies) - from which my body has never fully recovered.

My digestive system (which was disconnected for 6 months), has not worked effectively for the past 3 years - since my bowels were re-connected (stoma reversal surgery).

I also have Complex PTSD, from more than 2 decades of trauma.

Because PTSD is supposedly an "anxiety disorder" (so-called) - medical professionals have on several occasions attempted to "explain away" my physical symptoms as being "just anxiety".

This has stopped me from accessing adequate medical care, on several occasions.

The "just anxiety" was later found to be a life-threatening bowel obstruction (tumor) - which required immediate surgery. Then a 2nd emergency surgery, 3 days later (when the 1st went disastrously wrong). Then a 3rd bowel surgery, 6 months later to reverse the damage (& clean up the mess).

I now have 2 serious hernias, as a result of the bowel surgeries - wound split, extensive wide scarring, & hernias in the middle.

Have others experienced their physical illnesses (or medical emergencies) not being taken seriously - because of having a mental illness diagnosis?

How did you overcome these obstacles to receiving medical care (if you could)?

Self-care is difficult, when my food does not digest adequately - despite Probiotics & Gastrostop (when necessary).

I must run to the toilet with great urgency (Irritable Bowel Syndrome) - which is a cause of stress in itself, & makes working difficult.

Adge

405 replies

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In response to: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

dont know if I rate that @Former-Member unless hypochondria is on list lost, they claim heart okay and back pain all in my head lol, just liver playing up now lol

In response to: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

@Former-Member luckily s1 has a good sense of humour and can joke about it all 🙂 but yes his back even with the metal rods still give him trouble. His bowels are under control mostly with medications and he has to watch what he eats but he is doing okay . A little over a week and I start officially :). Have been doing some reading and quizes.

How are you going EOR? Are you okish?

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

ohhh my sister @Bunniekins

about S1 hope he is ok too xx

Hello @Adge , @TAB , @Owlunar , @Former-Member

looks like i have arthritis which is causing the aches and pains in my lag and lower back

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Yeah Ive got arthritis in feet back etc @Shaz51 its a lot better when don't drink coke tho lol

In response to: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

@Former-Member

In response to: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses


@Bunniekins thanks 🌷
@TAB, coke is bad for arthritis, and all carbonated drinks, and any acidy food like sugar. The herb Tumeric is helpful for me. And not overdoing it. I'm really pleased to hear your heart has the all clear. And don't worry about their ignorance re back pain... medical profession is still hopeless with vertabra or back ssues, esp lower back. What's wrong with liver?
Thanks for the heart @outlander, are you ok? You're studying too aren't you?
I get my test result tomorrow, bit worried 🤪

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Some reading too high w liver @Former-Member was same 3yrs ago but better in between
Anyway am okay . I think. Lol

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

I dropped out of my studies 😞 @Former-Member to much extra stress atm plus im not well and still trying to find out whats causing it. Need to find out why i cant eat much without awful stomach pains and a pancreatic mass. Waiting on tumour marking blood tests, doppler tests, ultrasounds amd mri scans to come back to start with. Gastroscopy is coming up in next few weeks.

I hope your test result comes back good or at least treatable. Was this foe your stomach pains you had before?

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

That's good @TAB - just go easy on alcohol and chemical stuff 🌻
@Adge, how you feeling tonight? stress levels coming down? How's birdies?

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Yeah no intentional chemicals here @Former-Member
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