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Self-Care with major Physical illnesses

Self-Care with major Physical illnesses

Hi @Former-Member This is an old post - it explains how medical neglect by Drs (doing no scans or tests) ended with me in hospital - the direct cause of my 1st emergency bowel surgery.

I have no current GP, since mine left (months ago) - will need to find one.

I have lived for several decades with serious physical illnesses (or conditions) -

Scoliosis, causing severe back pain

Sleep Apnea (diagnosed 11 years ago), causing debilitating daily fatigue - treatment & stimulant medication has moderately improved my functioning. Not to anywhere near a "normal" level, for someone without a Sleep Disorder (or a fatigue condition).

A bowel obstruction (tumor), with 3 major bowel surgeries (2 emergencies) - from which my body has never fully recovered.

My digestive system (which was disconnected for 6 months), has not worked effectively for the past 3 years - since my bowels were re-connected (stoma reversal surgery).

I also have Complex PTSD, from more than 2 decades of trauma.

Because PTSD is supposedly an "anxiety disorder" (so-called) - medical professionals have on several occasions attempted to "explain away" my physical symptoms as being "just anxiety".

This has stopped me from accessing adequate medical care, on several occasions.

The "just anxiety" was later found to be a life-threatening bowel obstruction (tumor) - which required immediate surgery. Then a 2nd emergency surgery, 3 days later (when the 1st went disastrously wrong). Then a 3rd bowel surgery, 6 months later to reverse the damage (& clean up the mess).

I now have 2 serious hernias, as a result of the bowel surgeries - wound split, extensive wide scarring, & hernias in the middle.

Have others experienced their physical illnesses (or medical emergencies) not being taken seriously - because of having a mental illness diagnosis?

How did you overcome these obstacles to receiving medical care (if you could)?

Self-care is difficult, when my food does not digest adequately - despite Probiotics & Gastrostop (when necessary).

I must run to the toilet with great urgency (Irritable Bowel Syndrome) - which is a cause of stress in itself, & makes working difficult.

Adge

405 replies

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In response to: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Thanks @Shaz51, means a lot. How about that though... no kidney ,😲 I remember the first time they couldn't find my ovaries 😏 ... all shriveled up there lol

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Hi @Former-Member @Shaz51 Yes I can relate to that (Re: Scans).

About 20 years ago, I was having a Bone Scan - had to drink weird stuff, that made my bones glow (for the Scan).

The technician could not find my spine.

Because of the Scoliosis it's so bent, that it would not fit into the frame of the scan (picture).

Does that mean I'm without a Backbone (spineless).....?

Adge

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Bahaha @Adge, that's pretty funny, how these tests are so useless they can't even pick up scoliosis. It would have to be a pretty bad scoliosis to go off the chart that much. Definitely a fault, or a budget scanner, I know, a paediatric scanner lol 🤣

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Yep, must have been a paediatric scanner @Former-Member

I always think it's funny that they got me to drink stuff that made my bones glow (for the scan).

That's what they said it did.

Glow in the dark.....?

Adge

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Yeah, Radium will do that @Adge, clever stuff

In response to: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

@Former-MemberHey EOR health has been okay I hope lol ..... just over weight but has been pouring with rain here last few days so no walking.

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

@Adge @Former-Member @Shaz51 son1 who I barely ever talk about because he is doing pretty well considering has scoliosis and metal rods in back also has crohns disease and depression.

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Oh no @Bunniekins ... your S1 has it bad poor dear. How does he function with all that? Was his childhood difficult? How are you? Are you studying?

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Hey @Adge @Shaz51 @Bunniekins @outlander @Appleblossom @TAB @Owlunar and anyone else with physical illness every day, on top of MH 💕🙏

Be well ,💌

In response to: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Hi @Shaz51

I had something similar when the technician couldn't find my left ovary - tee hee

Dec

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