FORUMS

Connect with people who understand what you are going through, seek advice and surround yourself with support. We're free, anonymous, and professionally moderated 24/7.

  • 47,612Members
  • 1,358,869Posts
  • 1,400,000Visitors
Something’s not right

Self-Care with major Physical illnesses

Self-Care with major Physical illnesses

Hi @Former-Member This is an old post - it explains how medical neglect by Drs (doing no scans or tests) ended with me in hospital - the direct cause of my 1st emergency bowel surgery.

I have no current GP, since mine left (months ago) - will need to find one.

I have lived for several decades with serious physical illnesses (or conditions) -

Scoliosis, causing severe back pain

Sleep Apnea (diagnosed 11 years ago), causing debilitating daily fatigue - treatment & stimulant medication has moderately improved my functioning. Not to anywhere near a "normal" level, for someone without a Sleep Disorder (or a fatigue condition).

A bowel obstruction (tumor), with 3 major bowel surgeries (2 emergencies) - from which my body has never fully recovered.

My digestive system (which was disconnected for 6 months), has not worked effectively for the past 3 years - since my bowels were re-connected (stoma reversal surgery).

I also have Complex PTSD, from more than 2 decades of trauma.

Because PTSD is supposedly an "anxiety disorder" (so-called) - medical professionals have on several occasions attempted to "explain away" my physical symptoms as being "just anxiety".

This has stopped me from accessing adequate medical care, on several occasions.

The "just anxiety" was later found to be a life-threatening bowel obstruction (tumor) - which required immediate surgery. Then a 2nd emergency surgery, 3 days later (when the 1st went disastrously wrong). Then a 3rd bowel surgery, 6 months later to reverse the damage (& clean up the mess).

I now have 2 serious hernias, as a result of the bowel surgeries - wound split, extensive wide scarring, & hernias in the middle.

Have others experienced their physical illnesses (or medical emergencies) not being taken seriously - because of having a mental illness diagnosis?

How did you overcome these obstacles to receiving medical care (if you could)?

Self-care is difficult, when my food does not digest adequately - despite Probiotics & Gastrostop (when necessary).

I must run to the toilet with great urgency (Irritable Bowel Syndrome) - which is a cause of stress in itself, & makes working difficult.

Adge

405 replies

151 - 160 of 405
1...151617...41

In response to: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Stir-fry sounds nice @Meowmy I like stir-fri vegies.

Well, the lady I met on Sunday re-contacted me first (today), which has never happened before.

So that was a nice surprise.

Adge

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

@Adge that's really good. Looks a nice start. Hope your weekends would be great from now.

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Yes hopeful & positive @Meowmy

No further catchup yet - we had a few text message exchanges.

The first message seemed to be to see if I was still interested (although she didn't ask that directly).

Adge

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

@Adge good morning, hope you have a nice day. Hope lady friend will soon have a catch up.

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Thanks @Meowmy

Good morning & a good day to you too.

Adge

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

@Adge hey, hope this weekend is going okay. It’s very nice here. I had a long walk. Just had lunch and hope to do lots of washing today. Take care.

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Hi @Meowmy Thanks for saying hello.

Yes nice day for a walk.

I'm having a lot of Irritable Bowel Syndrome problems today (pain) - hopefully will improve soon.

I just received tough news, so am in shock.

My brother (who is blind) caught himself on fire, whilst cooking.

He is in the intensive care unit of the burns unit, at a major NSW hospital.

He is sedated & unconscious (apparently).

He has already had a skin graft operation on his neck, & will have several more.

I think it happened in the early hours of this morning.

If you believe in prayer, please pray for him. Otherwise, kind thoughts would be lovely.

Adge

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

@Adge Hey really sorry to hear about your brother. What is his initial? I will put him on prayer list. Hope your IBS settles down.May be try acupressure. It helped me. Can look up online re IBS acupressure. Take care.

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Thanks @Meowmy His initial is C.

You take care too.

Have a good afternoon.

Adge

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

@Adge @TAB I will go on prayer list now.

151 - 160 of 405
1...151617...41