FORUMS

Connect with people who understand what you are going through, seek advice and surround yourself with support. We're free, anonymous, and professionally moderated 24/7.

  • 47,612Members
  • 1,358,869Posts
  • 1,400,000Visitors
Something’s not right

Self-Care with major Physical illnesses

Self-Care with major Physical illnesses

Hi @Former-Member This is an old post - it explains how medical neglect by Drs (doing no scans or tests) ended with me in hospital - the direct cause of my 1st emergency bowel surgery.

I have no current GP, since mine left (months ago) - will need to find one.

I have lived for several decades with serious physical illnesses (or conditions) -

Scoliosis, causing severe back pain

Sleep Apnea (diagnosed 11 years ago), causing debilitating daily fatigue - treatment & stimulant medication has moderately improved my functioning. Not to anywhere near a "normal" level, for someone without a Sleep Disorder (or a fatigue condition).

A bowel obstruction (tumor), with 3 major bowel surgeries (2 emergencies) - from which my body has never fully recovered.

My digestive system (which was disconnected for 6 months), has not worked effectively for the past 3 years - since my bowels were re-connected (stoma reversal surgery).

I also have Complex PTSD, from more than 2 decades of trauma.

Because PTSD is supposedly an "anxiety disorder" (so-called) - medical professionals have on several occasions attempted to "explain away" my physical symptoms as being "just anxiety".

This has stopped me from accessing adequate medical care, on several occasions.

The "just anxiety" was later found to be a life-threatening bowel obstruction (tumor) - which required immediate surgery. Then a 2nd emergency surgery, 3 days later (when the 1st went disastrously wrong). Then a 3rd bowel surgery, 6 months later to reverse the damage (& clean up the mess).

I now have 2 serious hernias, as a result of the bowel surgeries - wound split, extensive wide scarring, & hernias in the middle.

Have others experienced their physical illnesses (or medical emergencies) not being taken seriously - because of having a mental illness diagnosis?

How did you overcome these obstacles to receiving medical care (if you could)?

Self-care is difficult, when my food does not digest adequately - despite Probiotics & Gastrostop (when necessary).

I must run to the toilet with great urgency (Irritable Bowel Syndrome) - which is a cause of stress in itself, & makes working difficult.

Adge

405 replies

161 - 170 of 405
1...161718...41

In response to: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Hi @Adge how is your brother going? I popped over here to find tips on how to push on, get out of bed, off the couch, live again... Reading your first posts reminds me how tough you've had it... How do YOU keep going? I'm finding the emptiness of it all so crushing atm. But you inspire me. 💜 @Meowmy I'm really touched and encouraged by your prayer diligence... thank you 🙏

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

@Former-Member take care,darling.

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Meowmy 🙁

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Hi @Former-Member Glad to hear from you.

Hi @Meowmy Glad to see you.

My brother came out of hospital (from Burns Unit) last week.

He was not provided with any extra support (at home), so is struggling.

He has extensive scarring (from the burns) - which as I feared, is limiting his movement & flexibility.

He needs to do frequent specific physical exercises, to loosen his scar tissue (& free up his movement).

Yet, due to his disabilities (being blind & intellectually impaired), he is not doing them.

Adge

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

@Adge hey Adge, glad your brother is out of hospital. It sounds hard re his situation. Don't know if there is anything can be of help. Will keep him in prayers.

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Thank you for your kind thoughts @Meowmy

Your prayers & well-wishes are helpful, I'm sure.

Adge

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

@Former-Member Hey I try to pray most days. It seems to help after a while.

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

ohhh my friends , praying or you all right now @Meowmy , @Adge , @Former-Member , @Bunniekins

and praying for you too @Former-Member xxx

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Thank you @Shaz51 Your prayers & kind thoughts are much appreciated.

Adge

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Hi @Bunniekins How is my favourite Pea going (without the Wasabi)?

Adge

161 - 170 of 405
1...161718...41