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Self-Care with major Physical illnesses

Self-Care with major Physical illnesses

Hi @Former-Member This is an old post - it explains how medical neglect by Drs (doing no scans or tests) ended with me in hospital - the direct cause of my 1st emergency bowel surgery.

I have no current GP, since mine left (months ago) - will need to find one.

I have lived for several decades with serious physical illnesses (or conditions) -

Scoliosis, causing severe back pain

Sleep Apnea (diagnosed 11 years ago), causing debilitating daily fatigue - treatment & stimulant medication has moderately improved my functioning. Not to anywhere near a "normal" level, for someone without a Sleep Disorder (or a fatigue condition).

A bowel obstruction (tumor), with 3 major bowel surgeries (2 emergencies) - from which my body has never fully recovered.

My digestive system (which was disconnected for 6 months), has not worked effectively for the past 3 years - since my bowels were re-connected (stoma reversal surgery).

I also have Complex PTSD, from more than 2 decades of trauma.

Because PTSD is supposedly an "anxiety disorder" (so-called) - medical professionals have on several occasions attempted to "explain away" my physical symptoms as being "just anxiety".

This has stopped me from accessing adequate medical care, on several occasions.

The "just anxiety" was later found to be a life-threatening bowel obstruction (tumor) - which required immediate surgery. Then a 2nd emergency surgery, 3 days later (when the 1st went disastrously wrong). Then a 3rd bowel surgery, 6 months later to reverse the damage (& clean up the mess).

I now have 2 serious hernias, as a result of the bowel surgeries - wound split, extensive wide scarring, & hernias in the middle.

Have others experienced their physical illnesses (or medical emergencies) not being taken seriously - because of having a mental illness diagnosis?

How did you overcome these obstacles to receiving medical care (if you could)?

Self-care is difficult, when my food does not digest adequately - despite Probiotics & Gastrostop (when necessary).

I must run to the toilet with great urgency (Irritable Bowel Syndrome) - which is a cause of stress in itself, & makes working difficult.

Adge

405 replies

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In response to: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

@Adge Hey Adge, date sounds exciting. Hope it works out well. Good luck.

In response to: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

@Adge Hey Adge Oh I am so glad that you had a positive date experience. A good sense of humour is the number one box for the pea. It goes above looks, money ..... etc. Someone that can make you laugh is wonderful. :).

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Thanks @Meowmy & @Bunniekins

Well we made each other laugh.

She was naughty with a few "politically incorrect" words - being the same age, I understood well.

When I grew up, those words were in common use (had a different meaning) - they were not "politically incorrect" back then.

Adge

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

@Adge it was a simpler time back then wasn't it. I am really happy that it went well for you 🙂

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

@Adge it's wonderful.to see you meet new people and enjoy time together. That's special. Take care

In response to: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

@Adge
Hope you make a 2nd date, sounds like a good one. You know you can get cuppacino, with the froggy stuff in top, at the supermarket in little sachets now 😁

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

@Adge Hey Adge, how are you going? Hope you had an okay day and feeling okay. I just woke up from a nap . My day was okay. Have a good evening.

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Hi @Meowmy I'm just about to lie down for a nap (or breathing meditation) myself.

It's already 4.00pm - Wow, where did the day go?

I've been in & out of the city, & have done lots of driving today (not work, appointments).

Have a good evening too.

Adge

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Did you have something tasty for Dinner @Meowmy ?

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

@Adge I ate stir fry chicken with rice. Not bad. Hope you feel okay today.

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