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Self-Care with major Physical illnesses

Self-Care with major Physical illnesses

Hi @Former-Member This is an old post - it explains how medical neglect by Drs (doing no scans or tests) ended with me in hospital - the direct cause of my 1st emergency bowel surgery.

I have no current GP, since mine left (months ago) - will need to find one.

I have lived for several decades with serious physical illnesses (or conditions) -

Scoliosis, causing severe back pain

Sleep Apnea (diagnosed 11 years ago), causing debilitating daily fatigue - treatment & stimulant medication has moderately improved my functioning. Not to anywhere near a "normal" level, for someone without a Sleep Disorder (or a fatigue condition).

A bowel obstruction (tumor), with 3 major bowel surgeries (2 emergencies) - from which my body has never fully recovered.

My digestive system (which was disconnected for 6 months), has not worked effectively for the past 3 years - since my bowels were re-connected (stoma reversal surgery).

I also have Complex PTSD, from more than 2 decades of trauma.

Because PTSD is supposedly an "anxiety disorder" (so-called) - medical professionals have on several occasions attempted to "explain away" my physical symptoms as being "just anxiety".

This has stopped me from accessing adequate medical care, on several occasions.

The "just anxiety" was later found to be a life-threatening bowel obstruction (tumor) - which required immediate surgery. Then a 2nd emergency surgery, 3 days later (when the 1st went disastrously wrong). Then a 3rd bowel surgery, 6 months later to reverse the damage (& clean up the mess).

I now have 2 serious hernias, as a result of the bowel surgeries - wound split, extensive wide scarring, & hernias in the middle.

Have others experienced their physical illnesses (or medical emergencies) not being taken seriously - because of having a mental illness diagnosis?

How did you overcome these obstacles to receiving medical care (if you could)?

Self-care is difficult, when my food does not digest adequately - despite Probiotics & Gastrostop (when necessary).

I must run to the toilet with great urgency (Irritable Bowel Syndrome) - which is a cause of stress in itself, & makes working difficult.

Adge

405 replies

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In response to: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

You too @Meowmy

Have you ever heard the saying: "Goodnight, sleep tight, & don't let the Bed Bugs Bite"?

"Or if they do bite, then bite them back"....

Adge

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

@Adge Good morning, Adge, hope you have a better weekend than previous ones. Hope you find some good in the day. I am going for a walk. Have some grocery shopping to do over the weekend. Mood is not too bad this morning. Take care.

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Hi @Meowmy Good morning.

A walk sounds a good idea.

I did a big grocery shop yesterday afternoon, then I will have more to get today or tomorrow.

I put lots more funny quotes on the funny quotes thread.

Adge

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

@Adge hey, Adge, I am just chipping away at my day. Did a short walk. Just having my first coffee. Hope you find breaks of small nice things today.Take care.

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

@Adge Good afternoon, Adge, hope your weekend is okay. I went for a short walk and grocery shopping. Now home resting and having second coffee. Seems an uneventful weekend here. Take care.

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

sounds soo nice @Meowmy

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Hi @Meowmy

Hi @Shaz51

Hi@Bunniekins

Hi @Former-Member

Sounds good.

I have more grocery shopping to do, haven't done it yet.

I only just got home from a Date. Several hours round trip, as it was an unknown place (a bit hard to find).

We spent about an hour in a cafe.

She seems nice, & has a whacky sense of humour (just like me).

The frothy stuff with choc sprinkles on top, is the only reason why I had a Capuccino.

Adge

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

2nd date coming up @Adge

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Quite possibly @Shaz51 Thanks.

She even suggested catching up for another coffee, which is unusual.

Most people say "See you later", & that's it - they don't want to meet again.

Adge

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

ohhh that sounds nice @Adge fingers crossed xx

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