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living with DID/ Dissociative Identity Disorder

living with DID/ Dissociative Identity Disorder

hi @Former-Member, @CheerBear, @Spookytookims, @Former-Member and everyone else

I've had a few ask about what its like living with DID. So I decided to do a new thread. First off for those who dont know there are varying degrees of DID, from just feeling far away or distanced to having distinct alternate personalities or identies. In my case I have distinct alters to the point they have names and one has even been diagnosed with autisim which is rare.

So to make it so people can get a better idea I'm Aj the owner of the body. Then there is Kelly she is around the age of 4. Kelly actually started off as my imaginary friend when i was little then I went through a period of wanting to be the imaginary one due to abuse from someone i trusted. so Kelly is also the Autistic one, she will scream when touched and doesnt talk often sits and watches the clouds. the longest she has been out is 2 weeks. I am not co-consious with any of my alters when they are out i lose time. Kelly will come out usually if i feel scared or insecure and can be hard on my partner when our son wants mummy.

Next is sarah she is around 6 and is the easiest to handle often my partner cant tell she is out til she starts humming somesort of tune (we havent worked out what it is) she is a typical 6 yr old and the best part is my little boy isnt afected by her when shes out he just thinks mummy has taken time to play with him.

Then there is Casey while she comes out very little she needs constant monitoring as she self-harms but she doesnt usually come out unless get real down. thankfully my son has never had to encounter her.

i also have another alter but she is not as distinct as the others.

yes most of my alters a littles or children, i have been told this is because of my age when my childhood abuse started and when significant truma was present.

i was three when my abuse started. i was 22 when i finally cut the cord of emotional abuse my mother used on me. if anyone has questions i am happy to answer them

168 replies

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In response to: living with DID/ Dissociative Identity Disorder

Re: living with DID/ Dissociative Identity Disorder

@mudsum They are even normal from what we have come through.....whatever normal is....

In response to: Re: living with DID/ Dissociative Identity Disorder

Re: living with DID/ Dissociative Identity Disorder

oh I so know this! How are you? Well, do you have an hour and a half?! It's like asking how Telstra is, except companies are at least theoretically united towards a common goal of shareholder profits... we're not united towards anything. hmm maybe more like how is Melbourne? The only answer is f- knows.

In response to: Re: living with DID/ Dissociative Identity Disorder

Re: living with DID/ Dissociative Identity Disorder

are you united on icecream.
hahhaha

almost all of my parts are united on loving food. but that in itself causing me grief. eh
i say this as i eat my bowl of icecream, though that is my reward for today for stickign to the plan of what to eat (mostly) a

In response to: Re: living with DID/ Dissociative Identity Disorder

Re: living with DID/ Dissociative Identity Disorder

not even ice cream

In response to: Re: living with DID/ Dissociative Identity Disorder

Re: living with DID/ Dissociative Identity Disorder

We were given a picture frame a few weeks ago, one with places for lots of photos. Chaos was what happened. One wanted her pressed flower cards, others birthday cards, the lads wanted their motor bikes, the red bus, the...the...this went on for at least a week. It's up, crooked, they are always crooked. Nothing is simple, and everyone has an opinion, even the smallest in the group. Never boring that's for sure. I feel like ice cream now..

In response to: Re: living with DID/ Dissociative Identity Disorder

Re: living with DID/ Dissociative Identity Disorder

@Maggie yep, you made me laugh.

I've been thinking that this is a lot like politics. I don't know if anyone else is interested in politics. Given the current (ie last decade at least) of politics in this country I expect it's healthier not to be, but anyway I am. And one of the things I see is that when particular politicians have a thing they want to get done they can't just go and do it on their own, they need to have the support of their own party and often selected people from other parties in order to make it happen. So they go through a range of complex machinations - sometimes even agreeing to something that they don't believe is good in the short term, in order to get what they think is a longer term gain.

That's like us, right? Except we don't have to just do it over monumentious social or economic changes, we have to do it about getting out of bed in the morning, and having a shower and deciding what clothes to ear and etc.... and then simultaneously more serious things like, 'will we continue existing tomorrow?'

So as f-d up as our politics is, it's shown me that i/we aren't an alien - lol - we're just a microcosm. I also have a tendency to overthink 😉

In response to: Re: living with DID/ Dissociative Identity Disorder

Re: living with DID/ Dissociative Identity Disorder

@-Rayne- Now you made me laugh. This is so true, the politics comparison.I wonder if the overthinking is also part of it, so many different opinions, who will win this one, then on and on we go. Thanks for replying. Have a good day, all of YOU.

In response to: Re: living with DID/ Dissociative Identity Disorder

Re: living with DID/ Dissociative Identity Disorder

Hi @Maggie @mudsum @Former-Member @sketa and anyone else,

I have a question for you. Our new therapist thinks we're losing more time than we realise and wants us to try and document it. Has anyone done this? He suggested a notebook but we couldn't see how that would really work so today we got a phone app that makes a sound every hour, so we can just note that its x:o'clock and we're here, plus whatever things we remember doing in the previous hour. The only problem was that when we were walking around or whatever - not sitting at our desk - we didn't hear the sound. So the gaps we have might just be because of that. Anyway, yes, wondered if anyone else has done this and has a better method?

Plus, how are y'all? It's quiet in this thread...

In response to: Re: living with DID/ Dissociative Identity Disorder

Re: living with DID/ Dissociative Identity Disorder

Hi briar,

I tried to notebook everthing i did for a month to see where i was loosing time bit instead of using a diary or journal i found a journaling app. It was encrypted as that was a concern for me and at the end of each day it would back up to drop box and a copy to my therapist. Its still hard to do and i still had plenty of blanks. It was easier when i asked friends to email me with their encounters with me including dates and time. Just dont be hard on yourself when you realise you have missed a week or two when you thought you had been doing it.

In response to: Re: living with DID/ Dissociative Identity Disorder

Re: living with DID/ Dissociative Identity Disorder

When i get told in crazy my new on is to respond wth, "How do you know that im the crazy one i mught be the normal one. Have you every thought of that." So now i realise some people get offended with this
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