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Son (22) with schizophrenia

Son (22) with schizophrenia

Living with someone who suffers from schizophrenia is very difficult. Even medicated it seems he lives in a different world and stares a lot whilst smoking cigarettes like a steam train.
Sleeps during the day, spooks around at night.
Any advice about healthy diet, less coffee and smokes, is ignored.
He will never live a productive life.
We've lost family members close to us on the way because of his behaviour and them not understanding mental illness.
Ofcourse I worry about our future.
I need to be single as no other man can live with us.
I need to work full time to provide a roof over our heads and pay the bills. Without me, he'll be homeless, jobless and suicidal as his paranoia would kick in, specially when he thinks the meds are only given to him as he is a guinea pig and 'they' are trying to change his DNA...
I've always wanted children but no one never told me how tough it would be if a mental illness strikes the 'Brady bunch' family image with a thunderbolt.
A medal to anyone who cares for someone suffering mental illness.
They need all the help and support they can get. They deserve better too. Mental illness you don't see from the outside, my son looks like a healthy good looking young man but has no future. Maybe with support and someone pushing him out of his shell but some have tried and given up.
I have given up a marriage and another 7 years old relationship and noe bought a small unit to care for my son, indefinite. We have no other family here as Migrated here in 1987.

My love for my son is very deep and I am so proud of him he went to hospital last year and still takes his depot shot every month. However, I feel anxious and worry all the time. He has applied for DSP (disability pension) but he tells me if he gets rejected, and 'they' want him to work, he will stop the depot needle. It takes his motivation and energy away, He knows he can't work 8-5pm, neither with or without meds.
My good sense of humour is slowly fading but where there's life, there's hope, right?
Thanks for reading my story.

470 replies

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In response to: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

@Sunshine888555 the main contributors to this thread are:
@Grasshopper3 cares for her son on her own, she started this thread is away on holiday overseas with her son and we are all waiting with bated breath to see how they got on.
@Former-Member is also away overseas, her son went interstate, has restarted contact but is quite unwell
@patientpatient also looks after his son on his own (I think the only dude) his son is relatively stable at present
@Former-Member has a brother who lives a distance away that she supports through phone contact.
I joined in for a while as my husband had psychosis but BPii is his likely Dx but I do like to see how the "Colgate men" are going - the code name we have for Sz.

In response to: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

Hi @Sunshine888555, welcome to the forums, I have a brother with Complex Illness - Paranoid Schizophrenica diagnos d and his last 10-12yrs needing CTO for monthly antipsychotic injections. He went off his med for a year there but readmitted to hospital last Nov and stabilised back into meds. They help his emotional state a bit - but the delusions are still strong after all this thine. Maybe he has a resistant psychosis because most people I meet are who suffer this benefit a lot from treatment, have occasional relapses with stress (so keeping stress down is important) but staying positive, calm and supportive will help a lot.

I really admire you for stepping up to help your son, even living with him. I son live with my brother, couldn't because he does drugs and gets aggressive, so I take my hat off to you. A couple others here on this discussion thread have adult children with Sx at home. Oh, if youre reading the threaf, sometimes we use the word 'Colgate' instead of Sx, someone else can explain why.

I myself have c-ptsd (anxiety/depression) and usually float around on the other side (Lived Experiences).

Give yourself time to get use to the forums, practice makes perfect.

Take care 🌷🌿💜

In response to: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

Thanks heaps. Yeah it's a little confusing trying to work out the threads ect. Anyway thanks for your friendship. Best wishes to you.

In response to: Re: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

@Sunshine888555 .... good morning ... 🌷

You will notice people using the @ symbol ahead of someone's user name. That is what creates the email notification that connects you to the post they "tagged" you into. Just an FYI and part of learning to navigate .... this is the only forum I have ever been on, and others showed me the ropes as I went along.

If you scroll to the top of the page you will see a discussion topic - in this case it's "our stories", followed by the thread title for the thread we are on, "Re: Son 22 with schizophrenia".

Depending on which device you are using there will also be "Home" there somewhere .... or "Carers Forum", and if you click on that it should give you the Home page.

On that home page you will find "Our stories" listed along with other discussion topics. "Threads" are the collection of a set of posts under a sub-category where forum users choose their own title (such as Re: Son 22 with schizophrenia).

The Search bar, which is either at the top or the bottom of the page according to which device you have, will give you a list of threads that contain whatever word or phrase you type in, across all the discussion topics .... but the discussion topic is still listed as the first part of the title if you click on any of those threads. It's an organisational guideline to help you know where you are.

eg.

Looking after ourselves > Re: Hot Chocolate Anyone ?

Looking after ourselves > Something worth a smile ....

Our stories > Feeling alone

Something's not right > Eating Disorder - Need a shoulder ....

I hope this helps.

In response to: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

Thanks for the heads up. I will hopefully have more time to send on the site once thing settle down. At the moment I am in the process of selling our family home after 26 years and I am trying to figure out the next step. I need to try and find a place for my son and I to live as he is currently practically homeless but camping out in my place I just sold. He has a little doggy and I am in a tiny bed sit that doesn't allow pets. So it's all very uncertain and I'm just trying to stay positive and take thing one day at a time otherwise it's too overwhelming. I know it will all work out. Just need to continue to move forward with dignity and grace and reassure my son that it will all be ok. I know it will. 🌈💗🙏🦋
I'm grateful I can share here. Even if I'm just bumbling alone with the posts for now. Love and best wishes to all. I want to get insight and understanding and it will come in time. First things first at the mo!!

In response to: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

All the best with those nuts and bolts @Sunshine888555 ...... yes, insight will come to you, and we are here when you need us .....

Take care ....... 💜🌷

In response to: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

@Grasshopper3 @Gemima @patientpatient @Former-Member @Former-Member @soul @Shaz51 @Marit @Sunshine888555

Doing a quick check in to see how you and your Colgate men are getting along.

Hope you are all managing to get some self care in.

Sunshine - Grasshopper will probably be able to help you when she gets back from leave as she did a similar thing - found a place for her and her son.

Here are a couple of links that might help:

60 tips for helping people who have schizophrenia from schizophrenia.com

http://www.schizophrenia.com/family/60tip.html

I was really helped by this one that patientpatient recommended
when MI enters family.

https://youtu.be/NRO0-JXuFMY

This article on grief and loss for carers might also help you

https://www.google.com.au/url?sa=t&source=web&rct=j&url=http://www.carersvictoria.org.au/Assets/Files/an%2520unrecognised%2520grief-web.pdf&ved=0ahUKEwiF_v_rk7rTAhWOQpQKHTLrCDYQFgg7MAg&usg=AFQjCNExa6-f1Pct_HqzbFgmgUTX7aFLIw&sig2=j-fPVwCwS2K6LLWJlaQ2qQ

In response to: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

Thanks so much. Hopefully I will get to all that information sooner or later. I'm very Grateful. Cheers

In response to: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

@Grasshopper3 @Gemima @patientpatient @Former-Member @Former-Member @Marit @Sunshine888555

Checking in to see how you wonderful carers are going.

In response to: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

Happy Father's day @patientpatient
Thinking especially of you today Bro
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