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Son (22) with schizophrenia

Son (22) with schizophrenia

Living with someone who suffers from schizophrenia is very difficult. Even medicated it seems he lives in a different world and stares a lot whilst smoking cigarettes like a steam train.
Sleeps during the day, spooks around at night.
Any advice about healthy diet, less coffee and smokes, is ignored.
He will never live a productive life.
We've lost family members close to us on the way because of his behaviour and them not understanding mental illness.
Ofcourse I worry about our future.
I need to be single as no other man can live with us.
I need to work full time to provide a roof over our heads and pay the bills. Without me, he'll be homeless, jobless and suicidal as his paranoia would kick in, specially when he thinks the meds are only given to him as he is a guinea pig and 'they' are trying to change his DNA...
I've always wanted children but no one never told me how tough it would be if a mental illness strikes the 'Brady bunch' family image with a thunderbolt.
A medal to anyone who cares for someone suffering mental illness.
They need all the help and support they can get. They deserve better too. Mental illness you don't see from the outside, my son looks like a healthy good looking young man but has no future. Maybe with support and someone pushing him out of his shell but some have tried and given up.
I have given up a marriage and another 7 years old relationship and noe bought a small unit to care for my son, indefinite. We have no other family here as Migrated here in 1987.

My love for my son is very deep and I am so proud of him he went to hospital last year and still takes his depot shot every month. However, I feel anxious and worry all the time. He has applied for DSP (disability pension) but he tells me if he gets rejected, and 'they' want him to work, he will stop the depot needle. It takes his motivation and energy away, He knows he can't work 8-5pm, neither with or without meds.
My good sense of humour is slowly fading but where there's life, there's hope, right?
Thanks for reading my story.

470 replies

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In response to: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

Hello @Grasshopper3 @Former-Member @Shaz51

How are things in your worlds?

How are Mrs Grasshopper and Mr Colgate....I hope that things are smoothing out a little more for you both....

When son's world becomes more bearable...your world will ease with it as you know grasshopper...

thinking of you

take care

In response to: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

Hello lovely forum people @Former-Member@Sophia1@Shaz51@Faith-and-Hope@Appleblossom

All's well, we're rolling along. It's funny how nature takes control sometimes.

I have been taken quite a bit of carers leave, an hour here and there to take my son to his appointments. My work is very demanding and we are forever understaffed. I have asked for a regular day off so I dont have to run around as much and use this day for all appointments and tests. This was refused for obvious reasons.

Then I did my back in, it just happend.... It was lucky we only had one appointment to go to that week, I was in agony driving him there, couldnt even put my socks on!

I'm getting much better now and eventhough I was in pain, it was lovely staying home with my son...

He made me cups of tea and even cooked a meal.

He was complaining about a sore neck for ages, and I thought I get him an appoinment with a chiropractor. I showed him how to get there (he can walk it 20 mins from home)

and he has been going there twice a week and he says it's money well spend!

I have been trying to get in contact with the NDIS local coordinator to see if this can be put in his plan as he can now freely move his neck and he feels so much better.

I have left several messages with NDIS but nothing heard back yet.

Anyone have any experiences with making a chiropractor part of their NDIS plan?

Cheers,

Grasshopper3

In response to: Re: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

@Grasshopper3

pleased to hear that life has taken another turn....

you are receiving some overdue rest...even though as a result of injured back...funny how we do not heed our own words and injury or illness eventually forces us into ....rest ...that elusive word...

there is a ndis thread on the lived experience forum...one of the members has written an ongoing report on her trials and tribulations in gaining approval....you will find some extremely helpful information there...

You have great insight into how you liaise with your son....you still see your real son....

keep in touch when you can

In response to: Re: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

Hope things going ok in your worlds @Grasshopper3 @patientpatient

In response to: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

@Grasshopper3

Hoping all ok with you.

In response to: Re: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

hi @Former-Member

I'm sorry to say I'm feeling very low and tired but I keep going as I don't have a choice.

My son's still smoking and drinking coffees, but has started a vegie/herb garden again, which is great to see. I'll keep supporting him all I can....

He loves the soil on his dad's block of land so we've been driving up and back to collect some for his garden. He's still not driving by himself, it's a 4 hours round trip.

He's knows he's required to find work now. He is going thru a disability job search provider, but it's not as easy as it sounds.

I have a few days off work, so I see if I feel better after. If not I'll get some councelling done.

Sorry I'm not on here all that much, thank you for checking in...I hope you're ok

Grasshopper3

In response to: Re: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

Hi @Grasshopper3 i hope all is well with you and son re recovery and life in General.

In response to: Re: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

@Grasshopper3 @patientpatient

Quick check in to see how you are both going.

In response to: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

  • Your story is like reading my own my daughter is 35 + I struggle to see a future for her She has no friends there's only me im exhausted all the time. She isolates wont help herself I have to do everything my relationship is on the rocks her father + brothers don't speak to her Im frightened to walk away in case she suicidesIts a nightmare sorry very tired tonight just had her fir 5 days from hospital will b back couple of days tc

In response to: Re: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

Hi @Former-Member i like hearing from people who have loved ones with mi Because i myself have mi and i see myself in some aspects of what people say about their family member/partner/ friend who has the diagnosis. And it kind of takes the attention off of my own symptoms, helps me feel less isolated (in the sense of not being the only one) and it helps me normalize my experiences of mental illness + i have a family also.../friends.../ loved ones... and yea i really don't know what they've been thinking all along...

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