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Son (22) with schizophrenia

Son (22) with schizophrenia

Living with someone who suffers from schizophrenia is very difficult. Even medicated it seems he lives in a different world and stares a lot whilst smoking cigarettes like a steam train.
Sleeps during the day, spooks around at night.
Any advice about healthy diet, less coffee and smokes, is ignored.
He will never live a productive life.
We've lost family members close to us on the way because of his behaviour and them not understanding mental illness.
Ofcourse I worry about our future.
I need to be single as no other man can live with us.
I need to work full time to provide a roof over our heads and pay the bills. Without me, he'll be homeless, jobless and suicidal as his paranoia would kick in, specially when he thinks the meds are only given to him as he is a guinea pig and 'they' are trying to change his DNA...
I've always wanted children but no one never told me how tough it would be if a mental illness strikes the 'Brady bunch' family image with a thunderbolt.
A medal to anyone who cares for someone suffering mental illness.
They need all the help and support they can get. They deserve better too. Mental illness you don't see from the outside, my son looks like a healthy good looking young man but has no future. Maybe with support and someone pushing him out of his shell but some have tried and given up.
I have given up a marriage and another 7 years old relationship and noe bought a small unit to care for my son, indefinite. We have no other family here as Migrated here in 1987.

My love for my son is very deep and I am so proud of him he went to hospital last year and still takes his depot shot every month. However, I feel anxious and worry all the time. He has applied for DSP (disability pension) but he tells me if he gets rejected, and 'they' want him to work, he will stop the depot needle. It takes his motivation and energy away, He knows he can't work 8-5pm, neither with or without meds.
My good sense of humour is slowly fading but where there's life, there's hope, right?
Thanks for reading my story.

470 replies

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In response to: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

@Grasshopper3
It is common courtesy to call if you cannot attend an appointment. I have asked for a different case worker for Mr Darcy, the final straw was this one did not follow up on blood test results despite a reminder, he will not contact Mr D despite repeated requests, even an occasional text makes a heap of difference as the patient feels supported and as a result are more likely to do something if they go down hill. At the last appt the pdoc was not keen to tweak meds as he was not suicidal but going by past history I could see psychotic depression and another attempt happening if early intervention was not activated. I am not waiting for another crisis to happen, that is for sure. Don't be afraid to be assertive, but kind. Even if the case worker has 30 patients, it doesn't take long to send a quick text.
Darcy

In response to: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

That's aweful @Grasshopper3, that they cancel when your son is so unwell. I'd rake him up the hospital Monday for urgent review re cancellations, they have a duty of care to see him there. Sometimes phone conversations are not enough. Unless the cat team can do a home visit. They visit my bro at home once a month, he has a case manager andvon CTO antipsychotic injections. Its all very sad 😞 Hang in there, have lots of breaks (self care), me time 🌸🌿

In response to: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

Hi @Former-Member, & Shaz, sorry I haven't been popping bin on this thread lately, sometimes its just all so depressing, I can't face it sorry. Feel for you guys doing it 24/7, I'd worry myself sick. How do you do it?/I need another cuppa, anyone else want one ♨♨♨♨♨♨♨💕

In response to: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

hello @Grasshopper3

I saw you on here earlier and went to reply but system crashed. I rebooted and am back.

I also have gone back to page 1 of this thread and read yours and your beautiful son's story.

I personally would go down the path of speaking to someone higher up, advising them of the situation. Whilst it is not the fault of the staff that is no justification for patients receiving zero care and staff not turning up for appointments. If a patient under a CTO misses two appointments, the police turn up with said mental health team (who knows if they would in this situation) and the patient is then again detained under involuntary ITO in public hospital psychiatric ward. No option of being given time to explain why.

Rules are in place to protect both sides of the fence.

Below is an option for advising the top of the system that the system is not working.

Ring the Office of the Chief Psychiatrist:

The Chief Psychiatrist is an independent statutory officer who holds powers and duties as prescribed by the Mental Health Act 2014. The powers invested in the Chief Psychiatrist impose a governance responsibility over any Mental Health Service and other specified agencies that seek to influence the delivery of mental health treatment and care to the Western Australian Community.

The Chief Psychiatrist is supported by a Deputy Chief Psychiatrist and a team of staff who assist in the discharge of his statutory responsibilities whilst ensuring the rights of people with lived experience of mental illness are upheld. Central to these duties is the responsibility for the treatment and care of patients of Mental Health Services, and the monitoring of standards of care delivered throughout the State.

The Chief Psychiatrist reports to the Minister for Mental Health and provides advice to the Minister for Mental Health about the provision of mental health services for the State.

The current Chief Psychiatrist of Western Australia is Dr Nathan Gibson, who has served in the role since January 2013.

Role of the Chief Psychiatrist

Under the Mental Health Act 2014 (the Act) the Chief Psychiatrist is responsible for the treatment and care of all Involuntary patients, Mentally Impaired Accused (MIA) persons detained in an authorised hospital, persons referred under section 26(2) or (3)(a) or 36(2) and those under an order made under section 55(1)(c) or 61(1)(c), as well as all patients of the Mental Health Act 2014 designated mental health services. This responsibility must be discharged by publishing standards for treatment and care to be provided by mental health services and overseeing compliance with those standards.

The Chief Psychiatrist also has the following statutory responsibilities:

  • Requests for reports
  • Review of treatment
  • Power of inspection
  • Power of Disclosure
  • Monitoring of notifiable incidents
  • Preparation of an annual report

The Chief Psychiatrist is supported by a Deputy Chief Psychiatrist and a team of staff who assist in the discharge of his statutory responsibilities whilst ensuring the rights of people with lived experience of mental illness are upheld.

Contact Us

Dr Nathan Gibson
Chief Psychiatrist

Office of the Chief Psychiatrist Business Hours: 08.30am – 04.30pm Monday to Friday

Phone: (08) 6553 0000
Fax: (08) 6553 0099
Mail: GPO Box A5 Perth Business Hub WA 6849

Email contact:

In response to: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

Wow @Former-Member, where did all that come from? Youre a wealth of information, thank you 🙂

In response to: Re: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

hello @Former-Member

I know that it is a lot to read but I thought it was relevant to emphasise that it is not about complaining.

It is about letting the top know that the bottom isnt working.

If we dont speak up or ask questions, we dont get change.

In response to: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

@Former-Member
As a carer it is very important to understand your state mental health act. Not sure what state your brother is in but there are rules in place that are there to also protect the patient.

Caring 24/7 is possible when you understand the disorder, its treatments, lack of insight, the importance of keeping your loved one in treatment, understanding ones role and looking after oneself. We are not doctors or therapists but we need to know enough to advocate, to know enough so we know when back up is required or prn meds are to be taken or early intervention to prevent relapse should be considered. Most importantly we provide a loving environment which provides an atmosphere where a patient can live ad well as possible in spite of their illness. It is important to get these things right as a negative environment does not help, psycho education can help with this and reduce "expressed emotion" which leads to poorer outcomes for the patient.

This in no way means that we agree with their delusions, which can be hurtful, we learn how to handle them.

If you have any specific questions I would be happy to answer them if I can.

Darcy

In response to: Re: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

Thank you dear @Former-Member, I take note of this, as very very useful.
xx

In response to: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

@Former-Member
Don't beat yourself up about what you said or what we would have said, its done , and you said what you had to say.
It's just so darn hard to bite you tongue in order to keep 'the peace'.
Hang up the phone, take a deep breath, it is what it is. Then do something nice for yourself. I just had an icecream lol I loved it. not the best choice but hey...
Ring a friend to get it out of your head if you need to.
If you need to tell us more, please do so. I am very interested in your story.
Take your time. Do little bit at the time. It is a great reference for yourself, to read back at a later stage.
I really hope your brother will get some real professional help soon, he must live a nightmare. Could well be he doesn't see it that way, it's all everyone else's fault, normally.
his meds need urgently sorting out, if he is on any at all.
Hang in there girlfriend, and keep breathing when he rings, just listen and remember, it's his mental illness talking, your brother is in there, somewhere.
I wonder what he was like growing up?
Cheers,
xx

In response to: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

Thanks Grasshopper3, I've only touched the surface. I listen, take things to heart but its hard to sift through the quagmire to find the soul in there speaking. I just don't know..Thanks for your interest. Hope you are holding up there with your own. Stay strong. 🍁🌿

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