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grappling with grief, hopelessness etc. while caring for an ill family member

grappling with grief, hopelessness etc. while caring for an ill family member

This is probably just a rant more than anything, but I feel the need to get it all out.

My brother recently stopped his antipsychotic meds despite being on a cto, and has just been through a pretty bad withdrawal/manic episode and is now in hospital. I know I can’t name meds here but it’s one that requires mandatory blood tests/ECGs frequently and is going to require a really slow titration back to his dose, so looking like a 3 weeks or more hospital stay in a public hospital that doesn’t have the best reputation for mental health care, probably what feels like an indefinite extension of his cto, and the loss of his job. He showed up to his workplace in a manic state which makes me worried that he’s probably going to lose his job, and unemployment was a trigger for his first psychotic episode so this really isn’t ideal.

He’s been diagnosed with schizophrenia for 3 years and I think it’s all just hitting me that this is just going to be our life now. Not only have we all been going through the grief of what feels like losing a part of him and a life that could’ve been, but it has just had a cascading effect on the whole family, with my parents relationship severely strained due to different ways of coping with the situation, and my dad becoming a functioning alcoholic. And I know there’s no use worrying too much about the future, but I’m starting to gear myself up for the fact that I will probably be his main carer when our parents eventually pass away.

While I do have supportive friends who are vaguely aware of the situation, it’s hard reaching out for help because I feel like they probably wouldn’t understand the complexity of it all if they haven’t been through it. Being told that “hopefully he’ll get better soon” and “at least he is getting help in the hospital” while well meaning, sort of just reinforces that they don’t quite understand the situation and how grim it feels. It just saddens me that he may never again experience things that truly make life worth living, like forming meaningful relationships or engaging in interesting hobbies, making and achieving goals or feeling joy.

maybe I’m catastrophising a little but on the other hand I feel like that’s just the reality of the situation? I know people tell me to seek out support for myself but I don’t really feel like spending $200 to see a psychologist for them to give me some grounding exercises, coping strategies and explain CBT to me for the 100th time. (Sorry I’m a bit cynical right now, I just feel frustrated)

if anyone has any recommended philosophical approaches to take in what feels like a hopeless situation, I’m open to them.

53 replies

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In response to: grappling with grief, hopelessness etc. while caring for an ill family member

Re: grappling with grief, hopelessness etc. while caring for an ill family member

@zebra1 true.

In response to: Re: grappling with grief, hopelessness etc. while caring for an ill family member

Re: grappling with grief, hopelessness etc. while caring for an ill family member

Everyone finds the side effects difficult, and the best balance of trade offs is unique to each person.

@zebra1 The psychiatrists need to be honest enough to know also that and find a way to address those issues with him. imo the medical model is limited. There needs to be therapeutic input, not just meds .

You are a caring sister, and being a little informed, visit a bit, and being sympathetic is probably all you should do. Its great he has done some study and some work. All grist for the mill of life.

In response to: Re: grappling with grief, hopelessness etc. while caring for an ill family member

Re: grappling with grief, hopelessness etc. while caring for an ill family member

Thank you @Appleblossom, I’m resigning myself to the fact that that’s all I can probably help with. I agree with the fact that there needs to be therapeutic input, I just find it interesting that the psychiatrists/ my brother seem to be unwilling to explore that avenue. It’s also interesting that given I have grown up with him for 20 years and he seems to have opened up to me more than he has with the psychs about how he feels, they haven’t been interested in tapping into that knowledge. I guess I just need to watch it all play out while living my own life and not getting too involved

In response to: Re: grappling with grief, hopelessness etc. while caring for an ill family member

Re: grappling with grief, hopelessness etc. while caring for an ill family member

gently bently with it all @zebra1 it is good your brother has opened up to you.

you sound as if you understand the situation fairly well. Listen to your intuition. I hope a few decent MH workers pass through your brothers life.

I actually had a beautiful conversation on the phone with my brother's son today. Sadly it was in the psych ward while I was visiting my son. Mental health issues in families can get quite complicated.

take care

apple

In response to: Re: grappling with grief, hopelessness etc. while caring for an ill family member

Re: grappling with grief, hopelessness etc. while caring for an ill family member

Best wishes to both of you @zebra1 @Appleblossom

In response to: Re: grappling with grief, hopelessness etc. while caring for an ill family member

Re: grappling with grief, hopelessness etc. while caring for an ill family member

I’m glad to hear you had a good conversation with your nephew, and I hope your son is doing okay @Appleblossom. I admire how you are willing to help others even when you have a lot on your plate yourself

take care 🙂

In response to: Re: grappling with grief, hopelessness etc. while caring for an ill family member

Re: grappling with grief, hopelessness etc. while caring for an ill family member

@Dimity
Best wishes to you too, I hope you’re doing well

In response to: Re: grappling with grief, hopelessness etc. while caring for an ill family member

Re: grappling with grief, hopelessness etc. while caring for an ill family member

Hello @zebra1 thanks for sharing. I live with a partner who in similar situation and I'm somewhat helpless on how to handle her right now 😞 I wish you all the best and hope things get better for you.

In response to: Re: grappling with grief, hopelessness etc. while caring for an ill family member

Re: grappling with grief, hopelessness etc. while caring for an ill family member

@jedi12 thank you for your reply. The hopelessness/helplessness is hard, isn’t it?
I wish you all the best too, and I hope you can go easy on yourself in a challenging time ❤️

In response to: Re: grappling with grief, hopelessness etc. while caring for an ill family member

Re: grappling with grief, hopelessness etc. while caring for an ill family member

yes it is and in my case there is guilt on top because I didnt know how to care for someone going through this illness. In a recent incident, I blurted out something one should never tell someone going through this which is calling them crazy. Without going into too much detail, I had an angry outburst when I asked for help with fixing a door and she refused to help after saying Im busy because she was angry from an earlier argument. The door fell on my feet and out of rage and anger i told her 'better take your pills before you go crazy' - this one line has created a storm within in and has now taken her back more than 7 yrs ago when she was diagnosed as schizo affective disorder. Anyhow, it was absolutely stupid of me to say such a thing and dealing with that now to a point where she strongly feels she has been misdiagnosed. anyhow, I could write so much here but I dont have the energy right now 😞

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