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When the outside doesn’t match the inside

When the outside doesn’t match the inside

Not sure if many others can relate, but I nearly always ‘present’ rather ok. Like I look ok. I dress ok. My hair is brushed. And apart from when I am beyond the point of crisis and often already in hospital or done something, I physically look ok. But this unfortunately means that I’m dismissed a lot. I struggle with words at the best of time, even when I can verbally say that I am not ok, I’m still dismissed. There have been many a time where I have attempted to communicate that I’m not ok, that I need support but ignored only to end up in crisis and in hospital and then I get asked why didn’t I say something.
I do not at all mean any disrespect but I sit in the wait room at community mental health and see patients one after another come through the door and I look nothing like them.

but how do I manage this? I am so very often left feeling so frustrated cause the inside mess and torture that I am currently trying to deal with just doesn’t match the outside of me.

39 replies

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In response to: When the outside doesn’t match the inside

Re: When the outside doesn’t match the inside

Hello sweet @Bow ❤️.

Sorry to hear you are feeling tired and sore today. It can really make it hard to face the day. Hoping it's an easy day for you sweet.

The system is definitely broken, so many people slip through the cracks. They are always encouraging people to reach out if they are struggling but when you do there's no help available or trying to find the right help is almost impossible. Yeah unfortunately complaining doesn't seem to change anything.

I made the phone call in the morning and she rang me at 4pm but no they can't help me so that's another service that's not an option for me. I'm so exhausted from trying to get help, I know i need it and I want it but how am I supposed to get it when every service won't help for one reason or another.

In response to: When the outside doesn’t match the inside

Re: When the outside doesn’t match the inside

@Bow @MissGremlin hope your day improves.

Condolences on your niece... very sad.

Reaching out for help is hard, it can very hard even knowing where or how to ask. I'm shocked they'd want you to withdraw your referral @MissGremlin . Hope it's a hurdle not a sign of a barrier.

It's definitely hard sometimes taking each day at a time.

In response to: Re: When the outside doesn’t match the inside

Re: When the outside doesn’t match the inside

Hello @Dimity, thankyou ❤️.

Unfortunately it was a barrier, the service won't help me and has closed off on my referral now.

That's exactly all we can do, take things day by day, hour by hour, minute by minute and sometimes even second by second.

In response to: Re: When the outside doesn’t match the inside

Re: When the outside doesn’t match the inside

They probably didn't even suggest an alternative @MissGremlin? sorry to be pessimistic. Keep trying... hopefully you'll break through.

Today I've not got started yet.. just had coffee and a banana and will try to face the day. I can hear lorikeets and magpies outside, infrequent but welcome visitors.

In response to: Re: When the outside doesn’t match the inside

Re: When the outside doesn’t match the inside

Thanks @MissGremlin

im really sorry that that is the outcome you have received, that’s not good. May I ask what kinda if services you are trying to find? Totally ok if you don’t want to share.

I’ve actually found that all mh service providers are not good at receiving and responding to complaints and feedback. All I’ve ever got is a ‘sorry you feel that way’, but no one is ever really willing to accept accountability or fault. Just swept under the rug. So now it’s like why bother?

I really need eating disorder support. But there just isn’t any. At least none available to me. If I was extremely thin and seeking help I’m sure there would be something though.
when my psychologist went on maternity leave last year they didn’t even bother giving me a new psych. Didn’t put me on the wait list for one. It wasn’t until I got pretty angry with them all and asks questions that they finally agreed to put me on the wait list. They had decided that my eating disorder was too much of a… don’t know the word, priority? And cause they couldn’t provide that kind of support they couldn’t give me a psychologist. It wasn’t until I said…. What about all my trauma???? The years and years of abuse and stuff that I have been through, all the root causes of why I have an eating disorder??? If I could do some proper trauma work then maybe we can start seeing an improvement with my ED? I haven’t had an ED since my teens… was something I developed 5?yrs ago. See this is what happens when decisions are made about you without you. (A favourite of my @Jynx quotes. There was zero consultation made with me, just judgements made by my psychologist who I never really liked and never gelled with. So I never felt comfortable with, never fully opened up with so more than likely came across as not being ready for therapy.

sorry this has turned out really long and just rambles. I shall sign off now

In response to: When the outside doesn’t match the inside

Re: When the outside doesn’t match the inside

@Bow are you sure you didn't just pluck those thoughts about being told how "well" you are doing from my mind? 🤣 You hit the nail perfectly! Without wanting to say anything traumatic/triggering for people, lately when people say to me how I'm "doing well" to "function" (outwardly) and that I should keep doing what I am doing, I just outright inform/remind them that I am not prepared to keep going how things are. Regardless if they see me as "well enough" outwardly - doing what I have been doing is not an option for me any more. It's not sustainable. It's actually not healthy; it's the equivalent of masking life.

The ended up calling the service yesterday to ask more info about the residential option they suggested, but when talking to the person about how structured and the aims of the program we agreed it is not at all what I need - quite the opposite. I need burnout-friendly low-structure social support to get me through the next 2-3 months. She suggested that a private inpatient situation would be a better option if I wanted away-from-home support (i.e. not dependant/impacting upon my mother whom I live with). I did today though get the call from the suggested home-based peer support service they referred me to, and will have an intake assessment with them on Monday. They sound quite flexible. It is still only a short-term support, but if it can help me get through the next 2-3 months (especially the next 6-8 weeks) then I will welcome any face-to-face social support during that time.

I have found my region's (NGO) drop-in SI-prevention centre a good support the past 6 months, having been a few times. Only once did it find it not helpful - but the person was still well-meaning, just didn't really understand my situation/experience I think. The other 2 peer workers there I have spoken to have been really good. I went there yesterday because I was having strong persistant thoughts and I decided I didn't want to have to sit alone at home with that - it would be better to sit somewhere with other people around, even if they were busy with other people. I am grateful they would allow this; although they also were not too busy which meant someone was available to chat with me for a few hours. 😊 And my thoughts were able to be put out of my mind during/after that time. It felt nice to hear that sometimes they have people who need to come by every day during a difficult period, and that if I needed to that would also be OK. For logistical reasons that is a bit hard for me (its abit of a drive), but it is good to know that it is OK if I do need to come as often as I need, and that it's OK to come even though I know talking can't "fix" anything for me - it's just some respite or the ability to not sit physically alone in my thoughts.

I am so sorry that the psych did not set up another psych to transition you over to whilst they are on leave, and did not even discuss this with you. That is horrifying! I cannot imagine any excuse for that - having experience as both a patient but also having worked reception/secretary for psychology & psychiatry. Are they now putting you in with one of their other psychologists? or can your GP call around to find someone who can take you urgently?

A rotating pdoc would frustrate me too - having to explain the medication history etc each time, unless they actually read a note summary before the session (am I hoping for too much there??). I wonder if they are graduate-rotation placements and that may be why they change so often?? I'm not sure what is normal in medication-only pdoc, as I have only seen pdoc for longterm psychotherapy plus medication situations.

I am so glad you have a good GP. That is so important. 😊. No wonder she is so busy though 😅 the great ones often are because they are so important to chronic healthcare. Hmm can we please clone your GP?? 😋

Is there a way I can help support you also as a friend online during the upcoming months?

Noting it will also be a tough time for me with my medication withdraw, but I'd like to help where I have capacity - I just want to make sure I help in a way that helps you. 😊. I don't have a history of ED myself, although I did have very absent eating one year due to severe depression - but it was never diagnosed as an ED (either I never told my doctor, or perhaps because my thoughts regarding food was not affected, only my behaviours). But one of my best friends had an ED whilst we were in high school, so I guess I have very limited personal exposure to it. But lots of care and compassion to make up for that lack of personal lived experience in it. *big safe hug*

In response to: Re: When the outside doesn’t match the inside

Re: When the outside doesn’t match the inside

The sudden realisation my entire life has just been me continually masking performatively non-stop in one way or another since I was old enough to comprehend....

In response to: Re: When the outside doesn’t match the inside

Re: When the outside doesn’t match the inside

@Dimity they suggested 3 places all of which I've tried unfortunately.

Hope you've managed to get your day started and that it's going well. I had to head to the shops just before, it's 40⁰ here today and I have no aircon in my car so it was not a pleasant trip, on the plus side the shops were quiet though. I love hearing the birds in the morning, I get magpies and kookaburras ☺️

In response to: Re: When the outside doesn’t match the inside

Re: When the outside doesn’t match the inside

@Bow @MissGremlin @AlwaysMyself there seems a common theme of needing to be assertive about your support and therapy needs. I admire your speaking up for yourselves - hopefully it will pay off.

I drifted for a long time. I don't think I consciously masked (not like you @Meredyth49 ) but I wasn't in touch with anyone who noticed or cared.

Hope tomorrow's heat isn't even worse for you @MissGremlin . I'd better shop today.

In response to: Re: When the outside doesn’t match the inside

Re: When the outside doesn’t match the inside

@Dimity tomorrow was only meant to be 29⁰ but now they are saying 35⁰. I want winter back 😂

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