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AuDHD Life: Anyone else?

AuDHD Life: Anyone else?

Hi Forumites!

Today is World AuDHD Day!

Wait, what is AuDHD? Have you just spelt ADHD wrong? Actually, no.

AuDHD isn’t currently a formal diagnosis. It's a term that is starting to be used to describe the “neurotype” of people with both Autism AND ADHD. I’ve seen a bunch of people on the Forums who have both, just like myself!

Autism and ADHD have their own challenges, but the combination can be super difficult too. Some of the traits of Autism and ADHD can overlap. A LOT of the time they clash or oppose each other. I know this has really confused me and sent me spiraling a bit. Like, what do you mean I want predictability and sameness, and ALSO novelty and spontaneity?!

Check out the AuDHD Day website if you’re interested.

I’d love to use this thread as a way to share resources and memes, to connect and to share our experiences as AuDHDer’s!

Do you have Autism and ADHD? Do you identify with AuDHD? What have been some of your experiences?

Please tag anyone who you think might relate to this!

@Jynx @AuntGlow @tyme @rav3n @Ru-bee @Captain24 @Aegis

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In response to: AuDHD Life: Anyone else?

Re: AuDHD Life: Anyone else?

@Captain24 that's so normal you know. I had several years where I was coming to terms with the idea that I'll never have a partner - buuuut love still found me anyway! Never say never... but it's okay to say 'not right now'.

Yeah it's not uncommon - but it can get out of hand! Just like pimple popping... 😅

I've found one moisturiser I don't mind on my face... but of course, it's a ridiculously expensive Korean skincare brand 😑 I just get the QV stuff cos it's safe for eczema.

Yeah that is so legit! You could potentially let one of the nurses know you're feeling a little sensitive about it all...hopefully they can help reassure you! And also you probably won't see most of them ever again... may not make the feeling go away entirely but could help reassure yourself along the way 💜

In response to: AuDHD Life: Anyone else?

Re: AuDHD Life: Anyone else?

With Pix, can they insert a tube/stent or something to keep her trachea open @Captain24 ?

In response to: Re: AuDHD Life: Anyone else?

Re: AuDHD Life: Anyone else?

At this stage that’s not what is needed. @tyme. It’s like when you have a tickle in your throat that won’t go away. However with the dogs that affects their breathing and closes it down. I just need to get rid of the irritation, if the antihistamines don’t work then I’ll go back to the vet.

In response to: Re: AuDHD Life: Anyone else?

Re: AuDHD Life: Anyone else?

Fair enough @Captain24 . It just seems like it happens so often. Oh, I'm not medically trained at all, but that's what my brain was thinking!

In response to: Re: AuDHD Life: Anyone else?

Re: AuDHD Life: Anyone else?

I’m just at my wits end with them! @tyme. 2 years ago today was Pix’s cruciate surgery!

In response to: Re: AuDHD Life: Anyone else?

Re: AuDHD Life: Anyone else?

 

 

In response to: Re: AuDHD Life: Anyone else?

Re: AuDHD Life: Anyone else?

This reminds me of a conversation we had. Totally Pix

@0ddsidian @tyme @Jynx

 

 

In response to: Re: AuDHD Life: Anyone else?

Re: AuDHD Life: Anyone else?

Heya @Captain24! Heard your surgery happened. I hope everything went well! I've been a busy bee 🐝 You did nothing to make me take a step back by the way. Just wanted to make sure I responded when I had the time to do so. 😊

I really like how you framed "there needs to be changes as everything needs to move forward". Like, change can be so anxiety-provoking, but if change doesn't happen then we can't grow or more forward.

I actually totally get what you mean about how not keeping yourself busy can mean that you ruminate and your mind gets spin-ey. I think it’s great that you know that about yourself, so you can potentially put strategies in place to keep your mind occupied. It’s a balance of giving your body space to heal while also doing what’s right for your brain.

Does your dietician know that you’re Autistic? It’s so fair to tell her that little white lie that you’ll try something but won’t.

You do seem a bit dove like haha It was a lovely experience. I was such a mix of them all, but I’m predominantly an owl. 🦉

TW: Body image / Eating Disorder

Content/trigger warning
I know Jynx covered the body stuff really well, but just wanted to add that I’m also a big person who is considered to be “obese”. It’s so hard and my self image is definitely something that impacts me more than I probably share. I also have an ED, btw. I have a bit more facial / body hair than most cisgendered women too. Some men would be jealous of how great my moustache can get. Personally, I’ve found the queer community to be incredibly accepting of different bodies and appearances. The neurodivergent community too actually.

What stage of “Autism realisation” do you think you’re at right now? 😂

Pix looks like she’s taking whatever you’re telling her very seriously 🤔

In response to: Re: AuDHD Life: Anyone else?

Re: AuDHD Life: Anyone else?

Hey @0ddsidian.

Im glad I didn’t say anything wrong when commenting on your hours. I have lost people over that in the past and thought I may have offended you. I don’t expect responses all the time. I know you are busy and don’t want to take up to much of your time.

The surgery went well they found more than they thought so I guess it was a good thing that I agreed to it. I’m just suffering a lot now and not being able to keep myself busy is causing some distress. I haven’t done a lot today as I’m in too much pain and that’s not helping. I’m hoping I’ll have less pain tomorrow to then keep myself busy mind more occupied than just sitting and thinking. I haven’t done almost done a Lego kit but it’s been tough sitting like that. I also had a nap as I’m still feeling the effects of the anaesthetic.

The reason why I push myself so hard is to forget and I know that is what I need to do. It’s just hard when I get to the burnout stage!

I did tell her and she gets that I have issues with the smell and textures of some foods. I can’t eat yogurt as I can’t stand the smell!

My go to term is ‘I’ll try’ but then I feel guilty for not doing what is asked of me. That’s the people pleaser!! I am attempting to work in that part of me too. Especially as I’m learning how much it affects my life.

Thanks for sharing. I feel like you understand and @Jynx was really helpful. It is a tough one that I’m really struggling with, I guess that was obvious! I don’t really have any communities here. It’s too small of a place. There is no queer community it just blends in with the rest of the community which I think is a really good accepting thing.

I would say ‘just trying to convince myself it’s autism’ and I don’t want to take up space not meant for me.

She is such a special little girl. She listens to whatever I say and just looks at me like that when I’m talking to her.

In response to: Re: AuDHD Life: Anyone else?

Re: AuDHD Life: Anyone else?

I'm not easily offended @Captain24. Also, nothing you said was offensive. You were just being sweet and silly with the "You’re out and about early today!" comment (at least that's how I interpreted it).

My experience with surgery has been mixed. Sometimes immediately afterwards I wasn't in much pain, but then the next couple of days the pain increased. But for me the pain usually subsides within a few days. Do you have any tasks / activities that you can do while sitting on the couch? Something that involves even small movements with your hands can even be helpful. I'm really glad you've had some naps.

Can you vaguely explain why you need to "forget"? Sometimes I want to forget things and then do stuff to avoid the thought / thing, but it doesn't end up helping me. It's a balance though. Distraction can be necessary sometimes, but like you said, it can lead to burnout if we push too hard.

I have a thing about yoghurt too! It's not the smell for me. It's the texture. I will eat it sometimes because the texture can really upset me if I'm already not in a best headspace.

The people pleaser stuff is so real. You've got to put yourself first though. Firstly, I actually don't think your dietician will be too hung up if you don't try what she suggests. You could try saying something like "I really appreciate your suggestion and I understand that you're encouraging me to try this thing. However because I am Autistic and struggle with [insert thing here] that suggestion is very overwhelming for me. Could we try something else or even breakdown what you suggested into tiny chunks? I can only cope with really small steps / changes right now". That way you're expressing your need and giving a reason, but you're also remaining open to other suggestions or changes.

When I say "communities" Cap I don't generally mean just in-person communities. I use that term really loosely. I have mates who are also queer and / or neurodivergent. We don't go to events or groups or stuff together really. We just all identify with a particular label. Basically I just mean connecting with other people who share that part of my identity, in whatever way that happens. We do have a "Rainbow Connections" group as part of the RecoveryClub program though, and that can be really nice. It's generally a pretty chill group (and generally not super heavy, if that makes sense). I really like that you feel like your community is just pretty accepting 🌈

Most days I think I'm also at the "I don’t want to take up space not meant for me" stage. That is until I explain in excruciating detail to my partner how I need my Christmas tree decorated; the balance of the colours and types of ornaments, what order they need to be put on and the "pattern" of the twinkly lights. I struggled with the scratchy texture of the fake Christmas tree and then I got super overwhelmed because I couldn't get the lights to be on the right pattern 😅

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