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Ups and Downs of Husband`s Mental Illness

Ups and Downs of Husband`s Mental Illness

Hello @PeppiPatty, over here my special friend xx

Hello Everyone

Love to hear from others on the forum if you experience this

My hubby has been diagnosed with lots of things and has had MI all his life

do you find things goes ok and i start to feel confident and wanting to go forward and then everytime something always happens to upset it -- sometimes I think is it a controlling thing ?? that he wants to be in control ??

Don`t know if I am making this up , but i have that feeling ,

8295 replies

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In response to: Ups and Downs of Husband`s Mental Illness

Re: Ups and Downs of Husband`s Mental Illness

This is probably not what you want to hear but after decades of caring first for my sister and nephew in the 1970s and 1980s (both of whom lived with schizophrenia), then my son with bi-polar disorder from the late 1980s to the present time, when fear and anxiety take over I tell myself, ' This WILL happen again. Don't FEAR it will happen because you know it WILL happen. History has proved this. So until there is a cure for mental illness it WILL happen again'. Then I diligently work on preparing for it to happen again. And I now constantly train myself to 'be in the moment'. 'Take one day at a time'. I try to stay in the moment and try to be grateful when going through a good period. I still relapse and tear my hair out but am definitely not as bad as I used to be when Fear completely controlled every waking hour. I know it's all easier said than done but keep on trying. And keep on sharing your thoughts with the rest of us here, knowing that we all understand, we're all in the same boat and you are not alone. XX

In response to: Ups and Downs of Husband`s Mental Illness

Re: Ups and Downs of Husband`s Mental Illness

@Shaz51
Fear was a big one for me when Mr Darcy was suicidal and in hindsight psychotic.

I can tell you what changed things for me.

1. Understanding mental illness and being able to give the docs pertinent information that brought about a diagnosis that I felt confident in and accept.

2. Understanding and coming to terms with the fact that Mr Darcy's diagnosis is s serious mental illness that can be terminal by way of self harm if not adequately treated (and in some cases even if adequately treated)

3. Trusting that the meds would help in
a. relieving suicide and ideation (and there is very strong evidence for the mood stabiliser he is on) and
b. preventing relapse (the drug combination he is on had the strongest evidence for this).

4. Being involved in and understanding the relapse prevention plan (finding a good balance for us with patient autonomy and appropriate carer support), I based my values around this on other medical illnesses such as cancer and diabetes. To me this is an important component to a relationship and I am grateful Mr Darcy has the same values and he knows I have he wellbeing at heart).

5. Understanding there will be ups and downs and that if relapse prevention plan is followed, meds can be adjusted and relapse prevented.

6. Understanding we can live well in spite of a mental illness, finding the fresh hope website and finding their tenets extremely helpful. Still hold on to hope (defiantly) that Mr Darcy will come to believe this. http://freshhope.us/about-fresh-hope/

This does not mean at times I am not afraid but have learned when fear is legitimate - that is a realistic threatening situation where action is required.

Mr Darcy's recent issue is one of these times. He appears to be deteriorating BUT he has increasing pain. This pain is at a site he injured in an attempt. After looking things up I realise that I do not need to be afraid if we get things looked at (which we are doing); hopefully things can be sorted - which may be challenging given his BPii diagnosis and potential drug interactions. I understand that there may need to be input from his pdoc given there might be a psychosomatic component. I am hopeful that with encouragement and reassurances that Mr Darcy will engage with treatment and he will get sustained relief. There is a chance he may not; it is not inevitable and I will deal with that if it happens, in the mean time I cannot let that thought dominate my thoughts or stop me from encouraging Mr Darcy to get the help he needs which likely help.

Hope this helps.
Darcy

In response to: Re: Ups and Downs of Husband`s Mental Illness

Re: Ups and Downs of Husband`s Mental Illness

thank you @Jo, @Former-Member

I will read your messages again , thank you xx

Yes @Mazarita, @Former-Member I had a very nice night last night but it felt strange , that is why I wrote the message today as I feel I have forgooten me !! and for mum to bring up a few things has got me thinking -- hope you know what I mean -- have to get ME back again

and like @Appleblossom and @NikNik telling me ,

In response to: Ups and Downs of Husband`s Mental Illness

Re: Ups and Downs of Husband`s Mental Illness

@Cath22
How are you going ?

In response to: Re: Ups and Downs of Husband`s Mental Illness

Re: Ups and Downs of Husband`s Mental Illness

Hi @Shaz51, I'm on increasingly busy bar duty for Kurra's birthday just now. I will read your posts and those of others too and get back to you on this. Sending love.

In response to: Ups and Downs of Husband`s Mental Illness

Re: Ups and Downs of Husband`s Mental Illness

Hi @Shaz51, sorry you've felt you've lost yourself, forgotten you. Thats a hard empty place. But youre there, just lost touch. Nature and Body Scan mindfulness help me get in touch. And journalling & praying. You be your own best friend Shaz. Do something you love and take it into your soul. Deep breaths & gratitude. . . Its hard when we're always caring for others.
Tell me, how did your 'nice night' make you feel strange?

In response to: Re: Ups and Downs of Husband`s Mental Illness

Re: Ups and Downs of Husband`s Mental Illness

Hi @Shaz51 - thinking of you and wishing that you get some of yourself back again. More self care, less guilt. More peace of mind, less worry. That is my hope for you.

In response to: Re: Ups and Downs of Husband`s Mental Illness

Re: Ups and Downs of Husband`s Mental Illness

Hi @Shaz51, I think I can guess what it is you might be afraid of. I am so sorry you go through this. I know the experience to some extent, from both sides of the coin.

As @Former-Member has said, Mr Shaz might not realise how worried you are, as he is battling his own thoughts and emotions and may be lost in his own inner world with it all. I wonder if you have been able to communicate to him how difficult it is for you living with this fear. When I have been in a similar place to Mr Shaz, I think it helped when my partner communicated how hard it was for him too. It was a bit of a wake up call for me. It made me stop and think more about him, possibly even helped my recovery to realise that, even in difficulties, I needed to find some space in myself to emotionally care for him too as much as I could. I didn't always succeed with this due to being overwhelmed by my own desperations, but I did make more effort to be kind.

As to refinding 'you', I say go for it sister! I believe some independence of spirit is healthy in a relationship. C and I have been living together for 14 years now and regularly see people alone. We also go away for up to a month each year without each other, usually visiting our family in separate places. C is an unofficial, part-time carer for me, so when he goes away, it is a challenging time. But I always feel stronger for having to somehow get through as an independent person while he is away. And the reunions are very sweet.

It might help for you to privately make a list of things that could be about 'refinding Shaz'. This might start with your night out alone a couple of nights ago. Is it something that could be repeated? Then add other things that seem possible as you think of them. Do you like going for walks alone? Both of us in this household do that too. I'm casting around for ideas here a little and not sure what might help you in this way. But happy to talk more about it as you wish.

Sending hugs to you, Scottish sister.

In response to: Ups and Downs of Husband`s Mental Illness

Re: Ups and Downs of Husband`s Mental Illness

@Shaz51...

In response to: Re: Ups and Downs of Husband`s Mental Illness

Re: Ups and Downs of Husband`s Mental Illness

Good morning @Determined, @Mazarita, @soul, @Former-Member, @Former-Member, @Jo, @Faith-and-Hope, @Owlunar

thank you for all your wonderful comments , I am feeling soo energized this morning , hope it keeps going , off to work now , hope everyone has a good day , sending you alll hugs

@Former-Member, to me feeling strange , I need to do more and not feel guilt xx

right on my scottish sister @Mazarita

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