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Accepting care/ support role is unsustainable đŸ„ș

Accepting care/ support role is unsustainable đŸ„ș

Not sure where this fits but kind of a looking after myself process so đŸ€·â€

Have been for the last couple of years, together with my darling, supporting my father in law to live at home. After having a heart procedure a over 12 weeks ago (that was supposed to be an over night stay) he has been in hospital with complications both related and unrelated. But the goal was for him to be back at home with us. Up until 2 weeks ago we were planning a family road trip for dad to visit family.

Well today at a family meeting that hope was extinguished. The plan now is for a transition to full time care. While not unexpected I am finding it hard to accept that I / we don't have the capacity to support dad any longer.... kind of feel I have failed, if I had done this or that, if I wasn't working I could have done this or that...

And feeling bad for it but resenting somewhat that the though of having dad home with us has darling in the edge of another breakdown. (Not her fault at all).

And to be fair if we tried and failed I too am at risk of burnout relapse.

Anyway not wanting to whinge just putting some thoughts down as part of letting go.

I guess I am juat a fixer by nature and when I can't be the one to hold things together then I feel I have failed, even if it is things well out of my control.

Juat a little overwhelming atm.

Thanks for 'listening' to my ramble.

43 replies

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In response to: Accepting care/ support role is unsustainable đŸ„ș

Re: Accepting care/ support role is unsustainable đŸ„ș

Yes mum is happy to see me but puts the guilt trip on me @Determined

Walking with you my friend

@Smc

In response to: Re: Accepting care/ support role is unsustainable đŸ„ș

Re: Accepting care/ support role is unsustainable đŸ„ș

Hearing you @Determined - it's so true what you said about balancing compassion and at the same time not allowing abuse to destroy a relationships.

You are truly an inspiration to me.

Please take care of yourself. I trust your judgement in all this.

tyme

In response to: Accepting care/ support role is unsustainable đŸ„ș

Re: Accepting care/ support role is unsustainable đŸ„ș

totally understand your feelings @Shaz51

we used to visit MIL once a week or fortnightly and it was hard. We would feel guilty for not going more often but she didn't know who we were and after 1/2 hour we would go because there was nothing we could do.

But i do empathise with you; it's hard when you have your own health to worry about and your hubby as well. And work too.

Just go when you can, don't try to be too hard on yourself. Because you know deep down that you are doing the best you can.

Big hugs lovely xxxxooo

In response to: Accepting care/ support role is unsustainable đŸ„ș

Re: Accepting care/ support role is unsustainable đŸ„ș

Hi @Shaz51,

I feel for you and I understand because I used to feel the same way when I would visit my dad. I would also go twice a week and felt guilty because I didn't go more often but as you said it really can be emotionally exhaustive. I think at the end of the day it's important about getting the balance right - as much as it's important to support your loved one it's also important to take care of yourself and the other people in your family that also need you.

I feel like guilt feelings and being a carer often go hand in hand for a lot of people.

Hugs,

FloatingFeather

In response to: Accepting care/ support role is unsustainable đŸ„ș

Re: Accepting care/ support role is unsustainable đŸ„ș

Hi @Determined,

I'm glad to read you have found your dad a place - it's a shame it's quiet a distance away from you but from my experience the fact that your dad is accepting to the move is half of it. I was lucky that my dad was also okay with the move but I did see quite a few people over the time (when I was visiting my dad) whose loved ones struggled with being in a facility.

As much as my dad moving into a facility was a big change for the family upon reflection I did find some positive growth from the experience (which may sound a bit odd). I learnt better to prioritise people in my life (who needed me more and who could wait), put boundaries in place to better protect myself, learn that I didn't always need to be in control and allow other people to help, that life is ever evolving and nothing ever stays the same and that is normal and okay (even if it is hard).

When my dad first moved I was visiting him four times a week - after a couple of months I realised that wasn't sustainable and I was becoming very worn out. My children and my husband were coping the brunt of my exhaustion and I wasn't taking care of myself. I learned to trust the people who were taking care of my dad. I even went to the facility on random times and days to check that he was always being consistently taken care off (and he always was).

It takes time and is a big adjustment period for all those involved. My advice is to go easy on yourself, know that some people will step up and some people won't cope so well (that was my experience anyway). Just remember to take care and prioritise yourself in all of this too.

Warm wishes,

FloatingFeather

In response to: Re: Accepting care/ support role is unsustainable đŸ„ș

Re: Accepting care/ support role is unsustainable đŸ„ș

Thanks @FloatingFeather

It helps hearing stories like yours and @Shaz51 & @BlueBay et.al

Have not found a place for Dad yet. He is still in hospital while we try and find a respite space.

I know I need to step back but struggling with that notion

I know I can't keep up the daily visits, financially, emotionally or physically. (Edited CANT )

Relationship with darling probably won't survive either if I fall apart and have another burnout.

In response to: Re: Accepting care/ support role is unsustainable đŸ„ș

Re: Accepting care/ support role is unsustainable đŸ„ș

Thank you for your story @FloatingFeather

I know we are not alone in this but sometimes it feels like we are doing it alone xxx

Mum has been in the aged care now for 8 weeks, my aunty says that she has. Accepted that she is staying in hospital and that she is good

But I think she plays it for me đŸ˜„

@Determined , how is your darling coping with all this daily xxx

I know my husband is getting tired of it with his MIL

In response to: Re: Accepting care/ support role is unsustainable đŸ„ș

Re: Accepting care/ support role is unsustainable đŸ„ș

Sorry @Determined I must of misread that you had found a place for your dad. I wish you well with finding a place that works the best for everyone. How is your dad's health currently? I hope he is doing okay.

I totally understand and respect what you say around struggling with stepping back. I had a few people at the time (when I was going through this with my dad) saying the same type of thing to me around stepping back. As much as I appreciated everyone's concern and advice I had to do it at my own pace and time - I struggled with it too.

If you have any questions, concerns etc please feel free to ask. Hopefully amongst the community we can help you

In response to: Re: Accepting care/ support role is unsustainable đŸ„ș

Re: Accepting care/ support role is unsustainable đŸ„ș

I totally understand what you mean @Shaz51 about feeling alone even though we have great support on the forums xxx

I think I felt the most alone when I went to visit my dad by myself. Even though I know I had lovely people around me that supported me I physically spent a lot of time visiting my dad alone which had its good days and bad days.

I hope you mum has settled in - what you say around your mum seeming to be okay with your aunty but may play it a bit for you reminds me of what happened to my best friend. When her mum was in care and other people visited her they would all tell my best friend how well she was doing but when my best friend went to visit her she acted more upset. I'm not sure if it was because she felt she could speak more honestly with my best friend or not but I know this upset my best friend sometimes.

I am grateful that we can share our experiences and relate to each other around this. It's a tough and confusing thing to go through but at least to have others to share with helps make it a little easier I think 🙂

In response to: Re: Accepting care/ support role is unsustainable đŸ„ș

Re: Accepting care/ support role is unsustainable đŸ„ș

That is sooo very true my @FloatingFeather xx

And also I know my mum sooo well that I know what she is going to say today when I visit and she will prolong the visit

So I really enjoy when 2 or 4 nurses interact with me while I am there , ( maybe they know ) xxx

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