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A question for carers.

A question for carers.

Hi everyone,

I know I should probably be posting with other sufferers of CPTSD/depression/anxiety/panic disorders, but I would like some honest answers from those of you who have to endure people like me.

A new initiative on this site refers to our loved ones being better of WITH us, but is that true?

Those of us, who live with suicidal ideation on an almost daily pervasion of our thoughts, are told by all and sundry that everyone else's life is better with us in it, but is that really true or is it a case of "The Emperor's New Clothes"?

Do medical practitioners and loved-ones, alike, keep telling those of us who would like to die - but do not have the courage to take our own lives, or stay living in excruciating world of pain for the sake of those we love - for our sake or for theirs? Does it assuage consciences in the (possibly) misguided belief that they are "saving a life", or make our doctors/carers feel better about fighting a losing battle?

In all reality, Major Depressive Disorder IS infectious; look at the long-suffering family and friends of we sufferers. They are forced to walk on eggshells all the time. They live in fear of what every moment of every day may bring, when mood-swings overtake a sufferer's rational mind... shifting from the deepest of depression to the most volatile (even if not physically harmful) explosions of anger (and that anger need not be directed at a physician or support person... it's just letting off steam) in the blink of an eye.

Dr. Phil often asks people, "How much fun are you to live with?" I am honest about my answer. I'm not fun, at all, and I suck all the fun and life out of everyone around me, without meaning to.

Those practitioners and carers who are indeed kind and patient will deny that we sufferers are a burden, and (in personal relationships) declare their undying love for us, and that they need us in their lives. But is that for our benefit, really?

I don't need anyone to verbalise when they are fed up with my ridiculous, irrational utterings and behaviours; I can see how much I hurt those beautiful people, and I can see in their eyes that they want me back as the person I once was. But that person has been killed off, and what is left - before them - is what it is, and nothing can change that.

If I was allowed to be voluntarily euthanised, yes, it would cause loss and grief to those few people who have not turned their backs on me. And, of course, there's the plethora of paperwork to be completed (death is only easy for the one who has died), and the reorganisation of everything that the sufferer may have been responsible for that someone will have to learn to take over, in order to keep the wheels turning.

But wouldn't it be easier, in the long run, to put the sufferer out of everyone's misery? For the one who dies, their suffering is finally over. For those left behind, they are left to grieve the loss of something that was lost long before and is now nothing more than a beautiful memory.

To put it in a more clinical fashion, if a person were to develop gangrene in one of their pinkie-toes, would it be smarter to have the dying toe amputated to save the rest of the person, or let it be treated as best as possible, with the outcome being that the person will soon develop septicaemia and die?

I know that not all sufferers are doomed to remain in their own internal hell for ever, but I am one of those pesky people who seem to be treatment resistant, and some people in my support people decided to dump me in the "too hard basket", and deserted me. I even had one telephone operator at Lifeline tell me that if I wanted to (a phrase that is disallowed in this forum), it was totally up to me.

So, am I playing the part of the little boy in "The Emperor's New Clothes" or being Devil's Advocate in the question I pose to you lovely folk?

I do not mean to stir up a hornet's nest, but I would like to understand... and I'd love to hear the unvarnished truth, rather than hearing what people think I want to hear or what they think they should say.

Sending love and light to you all ❤️

24 replies

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In response to: A question for carers.

Re: A question for carers.

@Former-Member

What a gorgeous dog !

They are undeniably the best companions we have. Non judging, faithful and always ready to listen. No talking back.

Contentment is a good thing. Even if small it can grow. Happiness is a fleeting concept sold to us by advertising and social media.

You have overcome so much and have a rich tapestry life story.

Love, peace and continued hope to you.

WinterSun

In response to: Re: A question for carers.

Re: A question for carers.

@Former-Member

I have been mulling over your original post for days... asking for honest answers.

Absolutely, unequivally caring for someone with a mental illness is a burden... SOMETIMES.

About 18 months ago (a year into my relationship with a bloke with bipolar, ptsd and on the autism spectrum) I thought "wow this is shite, he is horrible most of the time" so I started keeping a spreadsheet of his moods (3 entries per day) and transfered the data to graph form so I could see at a glance what percentage of my life was being made hell by this man.

At his very worst (this year has been pretty bad) he was still ok 20% of the time, averaging 50 to 60% at the moment, now that new meds and new therapist are kicking in. Most of last year he was what I call "himself" 75% of the time. It's just that the other 25% is a pain in the bottom.

Is it worth it? Yes. Sometimes I feel completely defeated by him and what he puts me through but mostly I feel adored. I hate it when things are in full flight when I get too tired and my own head goes sideways from the tension or sleep deprivation... but at the very least 60% of our time together is absolute bliss.

He hates Mr Hyde as much as I do and thankfully when things are really really bad he doesn't remember much afterwards. If he knew half of what he said and did he'd plummet so far down that self harm would be on the agenda. It had been before I met him.

The sorts of people who choose to be with, or stay in a relationship with someone with severe mental illness are special people. There are many of those special people on this forum (myself included) and they give support to each other daily. We can discuss our partners' and their whims and foibles without fear of judgement. When I need a hug they are virtually here for me. This forum has saved me this year.

We are constantly reassuring ourselves that we make a difference, constantly reminding ourselves that the illness is responsible for the bad things, not our loved one, and that we are unable to make it better. For me, accepting that I couldn't fix it was the watershed moment when I adjusted my expectations and plans for the future.

Of course I would prefer he was well. Of course I would rather not have to deal with the illness when it flares up, but the atypical neurons he was born with, and the way life events have triggered several illnesses (physical and mental) are also what has turned him into the guy I fell in love with. Who would have thought, as a widow of nearly 60, my life would once again be filled with passion?

Please hold on Mrcrazylady.

In response to: Re: A question for carers.

Re: A question for carers.

Dearest @SJT63 ,

You are indeed an earth-bound angel ❤️

In response to: Re: A question for carers.

Re: A question for carers.

I wish
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