FORUMS

Connect with people who understand what you are going through, seek advice and surround yourself with support. We're free, anonymous, and professionally moderated 24/7.

  • 47,612Members
  • 1,358,869Posts
  • 1,400,000Visitors
Welcome and getting started

A question for carers.

A question for carers.

Hi everyone,

I know I should probably be posting with other sufferers of CPTSD/depression/anxiety/panic disorders, but I would like some honest answers from those of you who have to endure people like me.

A new initiative on this site refers to our loved ones being better of WITH us, but is that true?

Those of us, who live with suicidal ideation on an almost daily pervasion of our thoughts, are told by all and sundry that everyone else's life is better with us in it, but is that really true or is it a case of "The Emperor's New Clothes"?

Do medical practitioners and loved-ones, alike, keep telling those of us who would like to die - but do not have the courage to take our own lives, or stay living in excruciating world of pain for the sake of those we love - for our sake or for theirs? Does it assuage consciences in the (possibly) misguided belief that they are "saving a life", or make our doctors/carers feel better about fighting a losing battle?

In all reality, Major Depressive Disorder IS infectious; look at the long-suffering family and friends of we sufferers. They are forced to walk on eggshells all the time. They live in fear of what every moment of every day may bring, when mood-swings overtake a sufferer's rational mind... shifting from the deepest of depression to the most volatile (even if not physically harmful) explosions of anger (and that anger need not be directed at a physician or support person... it's just letting off steam) in the blink of an eye.

Dr. Phil often asks people, "How much fun are you to live with?" I am honest about my answer. I'm not fun, at all, and I suck all the fun and life out of everyone around me, without meaning to.

Those practitioners and carers who are indeed kind and patient will deny that we sufferers are a burden, and (in personal relationships) declare their undying love for us, and that they need us in their lives. But is that for our benefit, really?

I don't need anyone to verbalise when they are fed up with my ridiculous, irrational utterings and behaviours; I can see how much I hurt those beautiful people, and I can see in their eyes that they want me back as the person I once was. But that person has been killed off, and what is left - before them - is what it is, and nothing can change that.

If I was allowed to be voluntarily euthanised, yes, it would cause loss and grief to those few people who have not turned their backs on me. And, of course, there's the plethora of paperwork to be completed (death is only easy for the one who has died), and the reorganisation of everything that the sufferer may have been responsible for that someone will have to learn to take over, in order to keep the wheels turning.

But wouldn't it be easier, in the long run, to put the sufferer out of everyone's misery? For the one who dies, their suffering is finally over. For those left behind, they are left to grieve the loss of something that was lost long before and is now nothing more than a beautiful memory.

To put it in a more clinical fashion, if a person were to develop gangrene in one of their pinkie-toes, would it be smarter to have the dying toe amputated to save the rest of the person, or let it be treated as best as possible, with the outcome being that the person will soon develop septicaemia and die?

I know that not all sufferers are doomed to remain in their own internal hell for ever, but I am one of those pesky people who seem to be treatment resistant, and some people in my support people decided to dump me in the "too hard basket", and deserted me. I even had one telephone operator at Lifeline tell me that if I wanted to (a phrase that is disallowed in this forum), it was totally up to me.

So, am I playing the part of the little boy in "The Emperor's New Clothes" or being Devil's Advocate in the question I pose to you lovely folk?

I do not mean to stir up a hornet's nest, but I would like to understand... and I'd love to hear the unvarnished truth, rather than hearing what people think I want to hear or what they think they should say.

Sending love and light to you all ❤️

24 replies

11 - 20 of 24

In response to: A question for carers.

Re: A question for carers.

@Former-Member

LE = lived experience

In response to: A question for carers.

Re: A question for carers.

Hello @Former-Member i think we all need to put 2020 behind us, it has caused so much pain for a lot of people in all different ways. I know I will be glad to see the back of it.

BUT, I do think it is now YOUR time. What ever it takes for you to find happiness away from family.

Do you have hobbies, play sport, go to the gym or play bridge or enjoy singing in a choir, etc?

Also volunteering is a great way to not only give back to your community but for it to give you a community and a purpose to get up each day. I truly hope you can stay and be strong as you do matter. Take care ❤️❤️

In response to: Re: A question for carers.

Re: A question for carers.

@Former-Member , thanks for explaining the shorthand (I automatically went to medical abbreviations, which should have been SLE, really).

I would like to offer my sincerest and most heartfelt thanks to you, @Former-Member , @WinterSun and @Former-Member (the latter I sent a heart emoji to via the email notification of their comment (before I realised that it was a no-reply email address) for your unconditional love and support but I feel like I've stepped into a place where people are faced with real problems... not petty issues or imaginary woes like mine.

As such, I'm going to slink back under the rock from whence I crawled and continue hoping that the world forgets that I exist. I think it's best that way.

I will assure you that I will come to no harm through my own doing; I've caused the couple of people who still love me enough grief already and have no wish to willingly add to it.

Again, I thank you for being such kind and loving people. I wish I could have given you back at least a little of what you freely gave to me, but I don't seem to have anything of worth to offer anyone, any more.

To you all, I am sending the purest love and as much healing energy as I can recruit from the great unknown. May all your suffering be transmuted to peace and happiness ❤️❤️❤️ xxxoooxxx ❤️❤️❤️

In response to: Re: A question for carers.

Re: A question for carers.

Hi @Former-Member

Everybody everywhere have problems.

Your posts attest to yours which are real and show great resilience in facing.

You are valuable and your insights relevant no need to go slinking anywhere.

There is no problem with your posts and the questions you posed.

I’m sorry you suffer in your relationship with your son and his choice not to interact with you. Should he ever become a parent he will get huge insight into child/parent relationships that he currently doesn’t have.

As parents nothing is guaranteed and as you stated, all the care, love and support in the world is no guarantee we will receive it back. There are also many children who staunchly stand by their parents who were essentially unparented. They are fortunate to have that.

I spent the day catching up with an older friend who said her son has told her he is going to end his life. He won’t say when or how just that he’s had enough of his life. There was nothing we could really say to help. I feel so badly for her that she now lives on tenderhooks waiting for news of the done deed. A terrible way to treat supportive parents especially as he is so intelligent and seems level headed in his choice for himself.

WinterSun

In response to: Re: A question for carers.

Re: A question for carers.

@WinterSun , I heard from my estranged child today, via email. They have taken three weeks to process our last contact and they were not sure how to "reach out" to me (and I've gotten to hate that term because of them and their condescending use of it in my vain attempts to actually connect with them).

They have given me an interpretation of what they think I meant/said... all of which was wrong. It seems that they feel the compulsion to read things into what I say and do that are not there.

They also set down their boundaries, yet again... in a (so-called) kind and caring manner. So I set my boundaries again, too, and pointed out to them that I have always had boundaries but they have chosen not to respect mine, but insist that theirs are adhered to, to the letter.

Although I remained civil, I spoke my truth and reminded them that their respect for our boundaries have - until now - been non-existent. I also expressed my wish to communicate with their actual self, rather than feeling like I am talking to their spouse, who despises me (despite having had less than a working week's contact with her in nine years... because she never wanted to have anything to do with our family, other than to have us all in one room and gaslight us all, simultaneously... just to see how far she could control us... and she has had us all under her pale, pudgy thumb. Hey, it got her Australian citizenship, in due course (she's now the citizen of three countries... and I can't help wonder why she has left those other two countries... maybe she has burned too many bridges there?).

But enough of my blathering. As for your friend being on tenterhooks, waiting for that devastating knock on the door, I am in the same situation really. Although my child does not appear to be suicidal, they are depressed and suffering from other signs of narcissistic abuse. My fear is that he will either harm himself, commit suicide, or drop dead through exhaustion and having lost the will to fight for "she who must be obeyed" to treat them with the respect they deserve (I truly hate addressing my child as a collective, but I still respect their wishes as much as is practicable).

But I may not get the knock on the door. For, should something happen to him (even just hospitalisation) I doubt that "she who must be obeyed" would even let us know. My child could be dead for years and I may be none the wiser... especially since communication with him is extremely limited and even my texts requesting a verbal audience with them may not be answered for a few weeks and seems to be becoming even less frequent.

I feel for all those in this wretched kind of situation. One of the big problems is that people do not seem to be afforded the luxury of expressing their own sorrows... this includes my younger son. I asked him, after responding to the estranged child, about his own suicide attempt, some 10 years or so ago. He still says he cannot explain why he did what he did. I don't believe him, because we all know why we do things, regardless of the foolishness behind it... and no-one likes admitting to being foolish, either.

Maybe I'm getting payback for being a less-than-perfect child, myself? But I at least spent many hours over the course of many years apologising for my youthful stupidity, and at least tried to make amends with my parents while I still could. And I was there to carry out the last possible kindness one human being can do for another... I helped to fill in their graves.

Until such time as my errant child makes a concerted effort to show that they "get it", they are not welcome at my burial. As I put it to them, "You have shown that you have not respected me while I'm alive so please do not attend my burial, pretending to pay respect to me after I'm dead."

I am at a loss to offer any kind of comfort, and am awaiting my account to be deleted. Again, I am taking more than I can give in return and ask your forgiveness for my shortcomings ❤️❤️❤️

In response to: Re: A question for carers.

Re: A question for carers.

@Former-Member

While there’s life there’s always ...

hope

for better

forgiveness and love

for those who matter including ourselves

In response to: Re: A question for carers.

Re: A question for carers.

Aww @Former-Member there is no need to delete your account and you certainly haven't

said or done anything wrong. I would also recommend you try the lived forum, there are so many threads for you to join in and meet everyone. It is such a welcoming place as is cares.

Always-hope ❤️🌺🌹

In response to: Re: A question for carers.

Re: A question for carers.

Darling @Former-Member ,

I'm attaching a couple of images from a book by Victorian psychologist, Evelyn Field, "Bully Blocking at Work" (sorry, I'm too lazy to give you a proper reference). I'm only doing so because I sought out her expertise at the time when I first crumbled, due to untenable workplace issues that had already done unspeakable psychological damage to me. There's the blurb I wrote, which was featured on the back, and the full, in-text quote. To be fair, I only managed to read the first chapter but got the general idea for the purposes of promotion. The rest of the comment was exactly how I felt back then, and how I still feel.

Like it says, bits of me are missing and I cannot seem to heal, let alone consider becoming "whole" again. I find that the more hope I try to give myself, the harder I get hit when that hope turns to dust.

I can't keep setting myself up for the fall - which is invariably coming, no matter what measures I take to change my behaviours and attitude. I had hoped that Ms. Field may be able to help me (at the time) as she was an apparent expert in the field of workplace bullying. Her help to me was to ask me to partake in a questionnaire (research for the above mentioned book), furnish me with a copy of the book to read and then write a short blurb about. After that, she didn't want to know me (and I had even asked to pay her for her professional help... not asking for a handout).

I indeed find myself humbled by all you lovely souls which is why I feel that I do not belong here.

I will leave you with a photo of my beautiful dog, Amber, who is also a bit of a carer for me, too. She is the only person (yes, I said person, and I meant it) who can make me get out of bed and move about a bit, at least once a day, when I'm in a wretched, blue funk. Like the song says, "Dogs make the best people!" ❤️

In response to: Re: A question for carers.

Re: A question for carers.

I can see and feel how hurt and broken you have become from your past, your family and the struggles you have with your mental and physical illness. But I can also see how determined and courageous you are too. To keep fighting for what you believe is right and the respect from others that you deserve. This is why I said that it is your time now. Forget others and do what makes you happy, indulge in pampering yourself, have a massage and enjoy walking your beautiful dog as much as you can do.

There is now only a tomorrow a new chapter in your life. ❤️🌻

In response to: Re: A question for carers.

Re: A question for carers.

Sweet @Former-Member ,

I have a belief that I'm getting what I deserve... but it's not respect 😢

I'd do what makes me happy but anhedonia has robbed me of any sense of joy; the best I've been able to achieve since I snapped 16 years ago is a sense of something akin to contentment, and that's only been in the last few months. I am indeed grateful for that, which makes this latest fall from grace even more earth-shattering ❤️

11 - 20 of 24