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NellsSenior Contributor
@BPDSurvivor , Hello! Just checking in.. miss BPD has been doing ok.. few wobbles but I'm on edge waiting for the fall.She has been getting herself through the wobbles but it feels like a fall is on its way.. Waiting to catch her is hard but harder still to try and stop her falling all the way.. hope you have been well
In response to: BPD wobbles
NellsSenior Contributor
In response to: Re: BPD wobbles
BPDSurvivorSenior Contributor
Hi @Nells ,
It is known that hospitalisation is not ideal for pwBPD. I remember whenever I was admitted, it was just like what you said - the longer the stay, the worse the behaviour. Hospitals would be for immediate crises, perhaps in ED. But longer stays may not be wise - if anything, perhaps detrimental. The rigidity will cause her to kick the other way. Once again, it is because hospitals take all control. PwBPD already feel out of control so to have control taken away will be worse.
I'm not sure where you are located, but prevention and recovery centres PARCs are what made the most difference for me. They are voluntary residential facilities to support recovery and clients can stay for a maximum of 4 weeks. It is completely recovery-focused. And they don't take 'crap'. The moment you muck up, you get discharged. This meant I was in control. They hold mental health education support groups, meetings, outings etc. and help people with transiting back to the community whether to other support groups, work or education.
I've had numerous admissions into PARCs and that's because I ask for it so as to prevent a hospita admission.
As for doing anything about changing someone's mindset during crisis.... forget it. You may as wel talk to a wall. BPD support is about striking when the iron's cold, not hot.
Please let us know how you go.
BPDSurvivor
In response to: Re: BPD wobbles
BPDSurvivorSenior Contributor
Hi @Nells !
I haven't heard from you in a while. How are you travelling? I'm just checking in to see how you are.
BPDSurvivor
In response to: Re: BPD wobbles
NellsSenior Contributor
Hello @BPDSurvivor, thank you for thinking of me.. Things are up and down with an ED admission tonight.. Mental Health team called to say Miss BPD isn't 'sick' enough to need a case manager. So tired of them pushing BPD as not being sick enough.....
I seem to recall you saying there was a community place you go for group and individual support and activities.. what was it called? I'm desperate to find the equivalent in QLD but there appears to be nothing...
How have you been? Did you get through lockdown ok?
Nells xx
In response to: Re: BPD wobbles
BPDSurvivorSenior Contributor
Hi @Nells ,
Its heart breaking to hear that your daughter isn't 'sick enough' to get help...
From what I know, public clinics usually serve those who need long term treatment because they are a danger to society; or otherwise, case management is only for a maximum of 6 weeks as part of episodic care. I've also clearly been told that they don't often take on people diagnosed with BPD. How I see it is that it is probably a bang for buck thing. Given a 6-wk time frame, they can probably see a lot more change in people without BPD, hence, they take that option because they can help more people that way. It's all about resourcing. BPD is such a slow moving illness that therapists and doctors don't want to take them on. For example, at Spectrum (personality disorder specialist clinic), it takes 18 months for ONE person to complete a program. When I was there, this meant every 18 months, a maximum of 8 people successfully completed the program. That's why it is so popular, but hardly anyone gets in.
As for PARCs (prevention and recovery centres), it was an absolutely amazing experience. So that's 4 weeks of 24 hour access to support while in a residential facility. Each person is assigned a key clinician to work towards clearly set out goals. These centres are publically funded. They did a world of good for me. I got so much out of them. I think I've had 4 to 5 admissions in total. I don't see I need to go back anymore, because I'm well on the way through recovery. I don't know much about QLD, but I suggest you ask around to see if there are any such like facilities. Hospitals were a big NO NO for me - I ended up much worse in hospitals.
Hugs, and all the best,
BPDSurvivor
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Help us push aside the stigma and discrimination surrounding complex mental health and change the way people talk about, and care for, mental illness.
SANE acknowledges the Traditional Owners of Country throughout Australia and recognises the continuing connection to lands, waters and communities. We pay our respect to Aboriginal and Torres Strait Islander cultures; and to Elders past and present.
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