BPD diagnosis being used by hospital to deny treatment.

Hi @Meredith

You might like to search the lived experience forum for more info on BPD, as there are quite a lot of posts about it. It would appear that being denied treatment is (sadly) not umcommon.

Kind regards,

Kristin

Yes sadly BPD is mostly ignored by medical hospitals, We been turned away and my daughter treated very badly by staff at a few hospitals,,In crisis i now take her 75 kms from home and dont say BPD i say she has pstd and is struggling a bit and her brain is a bit sore.. the BPD scares them as there is no consistancy with the symptoms,,she is also treated very differently when she presents for help on her ownor taken in by amb,,she is treated so differently if she has an advocate.PBD covers so many differing traits its dificult to knowwhich trait in dealing with at any particular time, it is so difficult to understand but i just love her for who she is a beautiful intellegent young woman who sometimes manages well and other times struggles, and push the fear as far back as i can..buy its the system that is testing my sanity

Hi @Meredith

I'm not sure if you've stumbled across my post in 'What's new: services, research & technologies' about ABC Radio National's wonderful podcast about BPD. It's a story that shows the perspective of a professional, someone who cares for someone with BPD and from someone diagnosed with BPD.

There is a lot of hopeful information in there.

My overall observation from the story is there seems to be a strong stigma attached to BPD, which it's percieved as non treatable. However, the people in the story have different experiences and share their stories of effective BPD treatment.

You can find the link to the podcast here

Would love to hear your thoughts afterwards.

I had better tell the end of this story - which sums up the terrible attitde of hospitals to BPD and just how far wrong they can go.

Things were desperate. After six months there had been no improvement in our daughter D's case at all, it was clear the "Talk Cure" was all nonsense, We had finally found a decent intelligent psychiatrist finally read the American case history, and admtted she didn't have BPD, she had something else not in the classifications, with aspects of all three categories - psychosis, mood and disorder, and yet which came and went very quickly..

At this point D was thrown out of her crisis acomodation as she had a another episode. It was now six months since she had come to Australia, and because of the stuipidity and intransigence of the hospital, she had never been stabilised. The police picked her up for maybe the twentieth time and they decided to charge her for puboic disturbance. We found her down at the remand centre, she would, have been sent to the women's prison if we hadn';t turned up According to the lawyer, who was allowed to see her, she was completely disassociated, naked, urinating and spitting and runing full pelt into the door again and again.

So her mother got up in court and was very good, said she would take her home and look after her despite the landlord threats. And that is what she did. For ten days she never left D's side or did anythig else, talked her daughter through all the panic attacks which would have sent her runnig out into the street, maybe twenty or thirty of them. After that time the real D put in an appearance for about half an hour and then disappeared again into madness. And two days later she came back to us for good. With no memory of the previous few weeks and very little of the previous six months.

What D needed was not 'tough love' you see, it was real love, the love only a mother gives, Her mother cured her daughter, when all a hospital full of doctors could do was put her homeless on the street, completely out of her mind in deadly danger,

So you see the hospital was utterly utterly wrong, and what they did was at best neglect and maltreatment, and at worst criminal. There is no doubt they voided their Hippocratic Oath, putting a desperately sick girl out on the street at 2am on Christmas day for the police and the night people of St Kilda .

In the meantime they have taken my son (diagnosed schizophrenic) into hospital when he said something they didnt like. He looks perfectly OK to me and says he doesnt know why he's there.

And that is a sorry reflection on the state of the psychiatry profession. It's not based on need or observed behaviour or trying to find a cure, it's about putting people in little boxes and the ones in this box will get help when they dont want it and are fine and the ones in that box will get nothing at all, no matter how ill they are. It's all about smug ignorant doctors showing how important they are and pretending how much they know - when they know nothing and can't even provide simple care. And the staff just want doped up zombies who blindly do every little thing they are told. The 'raving lunatics' of Bedlam live somewhere in the past - until one comes to visit.

And when D went nervously to court, not remembering a thing, the police had to drop their case because they trumped it up and had no evidence. I don't blame them, they were pushed into it.

She's been fine for about a month now, though tired after a six month ordeal. Says she feels like shes been washed up by a huge wave and dropped somewhere far away.

Hi @jiggles

It's a really tough journey to find the right professional. I'm really glad that you're taking the time to find one that's best suited.

Unfortunately, within these Forums, members are not able to share recommendations for health care professionals. As we are unable to regulate each persons' recommendation, there is a level of risk there which we are unable to take.

I just wanted to give you the heads up so you don't feel discouraged that no one is reponding to you 🙂

Nik

I'm not sure where you live, but there are many treatment facilities available (in Sydney at least) . Her GP or psychiatrist can refer you, If you have private health insurance, the two that ome to mid are St Vincens private Hospital, Darlinghurst (U Space) and The Hills Centre (Kellyville). BPD is real, it is a mengtal illness and your daughter (and yourselves) need as much support as you can get. You could also insist she is 'sectioned' through the public system and from there find a suitable service, I know my local hospital , Sutherland Hospital, has been quite heloful, although we have been sent home form there without resolution as well, just keep asserting your needs and someone will answer them. The issues I have with my daughter are a littl different and a long way from being resolved, but I have found that one way for me to stay sane is to demand that health care providers listen and take action to help us.

Sorry,I didn't realise this was an old thread.

Joeflood-if the issue is still happening,consider taking your daughter to see a Neuropsychiatrist. You mentioned you are from Victoria so it can be found by googling neuropsychiatrist melbourne (sane forum doesnt allow me to state the name).
Mention to him also that there is a family history of Schizophrenia.

Prior to then,if you continue to have negative dealing with staff at public hospitals I would suggest you take in a hidden camera (with sound) and film your daughters mistreatment and give it to the media because only by exposing this to media/public attention will anything change regarding the culture amongst medical staff,because as you know,hospital staff all "close ranks" and won't speak out or speak negatively against each other and places like Mental Health Commission only offer you sympathy and not action... nobody wants to take on "Goliath"( the medical profession).