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BPD diagnosis being used by hospital to deny treatment.

BPD diagnosis being used by hospital to deny treatment.

Our 21 year old daughter is under normal circumstances a beautiful, kindly, intelligent and popular girl with no obvious problems. However since the age of 17 she has been subject to shortish psychotic episodes of the most extreme kind, the kind which in less enlightened days might have been called "demonic possession". In the USA several hospitals have diagnosed her as bipolar with episodic psychosis, taken into hospital, treated for about a month and put back into the community where she has functioned normally for nine months or so.

However after coming to Australia over two months ago she almost immediately fell ill, and was diagnosed with BPD. Her care plan, for which we were not consulted or given a copy, says she is "not to be admitted to hospital in emergency situations". So she has systematically been denied treatment and grudgingly admitted only after extended forceful arguments by us, the police and the community sector. They usually take her into Emergency and throw her back on the streets in an hour, completely out of her mind. Frequently they call the police to remove her. Typical statements "hospital is for mentally ill people and she has BPD", "if she was going to k*ll or seriously injure herself she would have done it by now, she knows exactly what she is doing" "laymen might well think she is insane but we are doctors and we know".

This is to a girl who cannot recognise her own mother except sporadically, is completely dissociated and mostly unable to respond to commands, is having auditory and visual hallucinations, throws off her clothes and walks down the middle of the busy road. The police have picked her up about ten times now, and she has had five ambulance trips to hospital; where of course they just release her. We have been evicted because she broke five windows trying to escape, and attacked me biting and spitting. We have been threatened with much worse by the landlord if the police should be called here yet again.

Under the Australian system she is not allowed to go to any hospital except this one, her regional centre.

Has anyone else had a situation where hospitals have systematically denied treatment because of a BPD diagnosis and deliberately allowed psychotic patients to wander the streets in grave danger, despite the vociferous opposition of parents, the police and public?

79 replies

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In response to: BPD diagnosis being used by hospital to deny treatment.

Re: BPD diagnosis being used by hospital to deny treatment.

hello @BenHarper and thank you for sharing your story , sending you hugs my friend

Hello @joeflood, @ivana, @morningstar

In response to: Re: BPD diagnosis being used by hospital to deny treatment.

Re: BPD diagnosis being used by hospital to deny treatment.

Thank you. All hugs gratefully received 🙂

In response to: BPD diagnosis being used by hospital to deny treatment.

Re: BPD diagnosis being used by hospital to deny treatment.

@BenHarper....

thankyou for your long but detailed message.

I am dumbstruckly ......sitting down......I am so sorry that you have shown this huge amount of compassion love and care to.....not get it back from the community around you.

I don't know if I've met you, my name is @PeppiPatty......am 49 yrs old, married to someone suffering chronic paranoid shizophrenia.........he's having very difficult days lately.......

I keep on meaning to swap to the carers site but Im just getting through

In response to: Re: BPD diagnosis being used by hospital to deny treatment.

Re: BPD diagnosis being used by hospital to deny treatment.

Hello Patty & thank you for you reply. Difficult days are the norm are they not 😉 In defence of the community I had only recently moved to this area but nevertheless over the years I feel money, success & career seem to have ridden rough shod over empathy & compassion in the general community. For me peoples welfare, freedom & happiness come so far before considerations of money and status that I have little awareness of them. All I ever wanted in life was to be loved and to be able to give love in return. I have experienced that as a child and for two delirious years 15 yrs ago. I feel fortunate to have had that gift but have all but given up hope of experiencing it again. While my relationship with the woman I care for is technically professional and strictly platonic for the past 6yrs she still imagines us as a couple.I would be hurt if she had a relationship with another and I know she would be devastated too. After all the sexual abuse from someone who had professed to love her I guess that side of things is just too close to the source. Beyond this I have read and experienced twice now that when there is intense tragedy/difficulties most relationships struggle to maintain their loving bond due to the stress etc. But what to do. I cannot abandon someone so fragile and in need although every single male and some females have suggested I do just that. 😞

In response to: BPD diagnosis being used by hospital to deny treatment.

Re: BPD diagnosis being used by hospital to deny treatment.

If you live in Sydney and have Private health insurance, St Vincents Private hospital have a youth inpatient service , Headspace. My daughter (also BPD) was admitted thress times and some of the other patients have more admissions but in our case we finally broke the barrier for her and she is stable and slowly moving forward. I am so sorry to hear of your experience and wish you all the best finding the service and support you need.

In response to: BPD diagnosis being used by hospital to deny treatment.

Re: BPD diagnosis being used by hospital to deny treatment.

Ah!, the old attention seekers, manipulating the system and their loved ones just for the fun of it! No risk here, all talk, no plan, basically having us all on... makes me sick to the stomach... sadly, for every brilliant mental health worker there is seems like 10 that are not, they don't even seem to have their heart in the right place... dismissive and arrogant, having no idea how devastating it is to have a gravely ill loved one and noone will listen... keep on keeping on though, eventually you will get the good one 🙂

In response to: BPD diagnosis being used by hospital to deny treatment.

Re: BPD diagnosis being used by hospital to deny treatment.

@BenHarper there is Carer support available, the BPD foundation website lists these which include telephone counseling options from Carers Australia if you are not able to make it into their offices.

http://bpdfoundation.org.au/carers.php

In response to: Re: BPD diagnosis being used by hospital to deny treatment.

Re: BPD diagnosis being used by hospital to deny treatment.

Thank you for your time. I am aware of this service and yes in my case due to location would no doubt be telephone counselling. When I get to point of despair I may call but for now I need tangible solutions to affordable housing as we are under a retaliatory 90 day no fault eviction notice because I tried to get they landlord to repair our leaking roof and cease punishing us with unfair rent rises. My problem at present is that I had a verbal agreement and on a periodic agreement for past 7 years. Landlord broke every promise he made and it has been a living hell ever since we moved in. Unfortunately after thorough searching for suitable properties it became apparent that real estate agents especially in rural areas just don't care for people without a job and those on disability. If you add the housing crisis in Australia you have the perfect recipe for homelessness. My whole world is contained in this home and if I am forced out with nowhere to go I lose it all. I am in contact with local advocacy group who can't do much due to lack of written evidence even though I have a thorough and cogent story of all events that have occurred during my tenancy. I have always paid my bills on time even if that meant eating sardines on toast for a month. I am further restricted of course because of my 24/7 care and protection of my ward. Trying to remain positive. I have a very resourceful character and it isn't over till it's over 🙂 Wish me luck. Ben

In response to: Re: BPD diagnosis being used by hospital to deny treatment.

Re: BPD diagnosis being used by hospital to deny treatment.

Sorry that should read USpace not headspace at St Vincents Private Hospital.

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