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BPD diagnosis being used by hospital to deny treatment.

BPD diagnosis being used by hospital to deny treatment.

Our 21 year old daughter is under normal circumstances a beautiful, kindly, intelligent and popular girl with no obvious problems. However since the age of 17 she has been subject to shortish psychotic episodes of the most extreme kind, the kind which in less enlightened days might have been called "demonic possession". In the USA several hospitals have diagnosed her as bipolar with episodic psychosis, taken into hospital, treated for about a month and put back into the community where she has functioned normally for nine months or so.

However after coming to Australia over two months ago she almost immediately fell ill, and was diagnosed with BPD. Her care plan, for which we were not consulted or given a copy, says she is "not to be admitted to hospital in emergency situations". So she has systematically been denied treatment and grudgingly admitted only after extended forceful arguments by us, the police and the community sector. They usually take her into Emergency and throw her back on the streets in an hour, completely out of her mind. Frequently they call the police to remove her. Typical statements "hospital is for mentally ill people and she has BPD", "if she was going to k*ll or seriously injure herself she would have done it by now, she knows exactly what she is doing" "laymen might well think she is insane but we are doctors and we know".

This is to a girl who cannot recognise her own mother except sporadically, is completely dissociated and mostly unable to respond to commands, is having auditory and visual hallucinations, throws off her clothes and walks down the middle of the busy road. The police have picked her up about ten times now, and she has had five ambulance trips to hospital; where of course they just release her. We have been evicted because she broke five windows trying to escape, and attacked me biting and spitting. We have been threatened with much worse by the landlord if the police should be called here yet again.

Under the Australian system she is not allowed to go to any hospital except this one, her regional centre.

Has anyone else had a situation where hospitals have systematically denied treatment because of a BPD diagnosis and deliberately allowed psychotic patients to wander the streets in grave danger, despite the vociferous opposition of parents, the police and public?

79 replies

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In response to: BPD diagnosis being used by hospital to deny treatment.

Re: BPD diagnosis being used by hospital to deny treatment.

@joeflood...so sorry your daughter had to experience that kind of restraint. Just horrible. Seems ridiculous that the hospital was not able to keep her, compared to a holding cell.
Fingers crossed that your new approach continues to work...
Hoping your move brings you to an area that has peer support groups available for consumers and carers...
Community mental health and youth mental health can provide great services, depending on her age..
Take care..

In response to: BPD diagnosis being used by hospital to deny treatment.

Re: BPD diagnosis being used by hospital to deny treatment.

Dear Joeflood,

Started reading your story .......I just want to add that your story reminds me of what happened to my beautiful husband.
So jusT to let you know that your being thought of. don't know where your moving to but I suggest you to get a copy of the Mental Health State laws of your state. In relation to yourself and wife as the /carers loved ones.

In response to: Re: BPD diagnosis being used by hospital to deny treatment.

Re: BPD diagnosis being used by hospital to deny treatment.

Good news at last! We were about to move her to another hospital and start taking her around private specialists, when she was finally allocated a senior doctor and we are now hearing a voice of rationality.

The doc today actually read her US reports, took them on board, and asked to see more (the other psychs have not shown the slightest interest in her four years of treatment at three hospitals there). Given the complete failure of the talk therapy here, he is revisiting medication again during crisis (to be tapered off as in the US once the crisis passes), which the others have refused point blank.

He points out that her case is very peculiar, given she clearly has combined aspects of psychosis, mood alteration and personality disorder, yet she doesnt fit the profile for any of them. It will be a case of feeling our way through it. After striking five duds, we were begining to think every psychiatrist in Australia was a dogmatic idiot, but at last we are hearing a voice of reason..


It has been a pretty rough five days; her mother decided to try to take her all the way through this crisis on her own at home. This has involved 24/7 monitoring while talking her out of her panics leading to full dissociation, maybe 20 times, Her behaviour has been atrocious during all this, at first she could do little but scream and make noises and now as she improves she chatters complete nonsense aggressively, but she seems to be coming out of it. She still needs to wear earplugs, has no motor skills and bad reaction times, and I have to leave the room when she is in it otherwise she freaks out. At one point she actually snapped out of it for about ten minutes, spoke to me and gave me a tearful hug.Good to see our girl back, if only for a few minutes.

In response to: Re: BPD diagnosis being used by hospital to deny treatment.

Re: BPD diagnosis being used by hospital to deny treatment.

@joeflood thats wonderful news and I'm very happy for you and your wife. There's nothing like hope to keep you going.
Happy New Year 🙂

In response to: Re: BPD diagnosis being used by hospital to deny treatment.

Re: BPD diagnosis being used by hospital to deny treatment.

Ah Joeflood,

if I have this right, 'her mother,' is your wife....... right?
your lovely wife will need to remember to 'take care of herself.'
I, and many other on this site are representatives of people who are burnt out tired, loving, caring, intelligent and unable to leave the couch for extended periods of time without yawning from going through this.

Just to let you know Joeflood, I am very mindful that you are pouring out your story with such love and 100% no judgement on your family. It's been inspiring for myself to read this story.

It was a complete accident that I came across this forum and has helped me in so many ways,

In response to: Re: BPD diagnosis being used by hospital to deny treatment.

Re: BPD diagnosis being used by hospital to deny treatment.

We only got married about 18 months ago so we're still getting used to this "your wife" thing.

Yes she's an ex-nurse and very used to dealing with recalcitrant patirnts, tough as boots. I thought I was pretty good, but I'm a complete wuss by comparison, the docs keep telling me I'm in shock but mum does not budge. In the middel of this she got up in court and gave a brilliant calm defence of her daughter, even though English is her third language, the magistrate personally commended her.

The new doc is so impressed, very few people can walk an acute patient through a full psychotic episode without cracking, that he rang up yesterday and told her he wants to work with her. They've gone off to see him today.

And I gave her some roses yesterday, telling her there never will be an award for being a mother beyond the call of duty, but if there was, she's entitled.

In response to: Re: BPD diagnosis being used by hospital to deny treatment.

Re: BPD diagnosis being used by hospital to deny treatment.

Some Mum's are extraordinary....your wife is! your Daughter will look back at these times and know that she is very loved.
Being in shock is okay.

In response to: Re: BPD diagnosis being used by hospital to deny treatment.

Re: BPD diagnosis being used by hospital to deny treatment.

Hi @joeflood,

I am so glad that you've been able to get the support of a new hospital and a new senior doctor. I wish you all the best in finding the support and treatment your daughter needs. What you've all been through over Christmas is so terrible. I hope you and your wife have been able to get some rest time.

blithe

In response to: BPD diagnosis being used by hospital to deny treatment.

Re: BPD diagnosis being used by hospital to deny treatment.

Hi All who are contributing to the forum. I have seen that many orgs. have self help groups for BPD,which makes me wonder if the condition is curable,or as the subject heading states.in part,denying treatment.

How is BPD diagnosed,& what is the clinical treatment,if any. Thanks to anyone who may be able to throw some light on BPD.

In response to: Re: BPD diagnosis being used by hospital to deny treatment.

Re: BPD diagnosis being used by hospital to deny treatment.

Hi @Meredith ,

It's Hobbit here. Thanks for your post. You are right, there are many self help groups for people with BPD.

While I can't really make comment on whether BPD is curable or diagnosed, I thought you might want to look at the BDP Foundation who could give you some helpful ideas. Their website is here.

Hope this helps,

Hobbit.

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