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Re: I've been labelled as treatment resistant schizophrenic

Re: I've been labelled as treatment resistant schizophrenic

@Zoe7 I guess what I'm trying to say is I have done my rounds to make sure what I have heard in person just is backed up by others during phone calls to to certain organisations across Australia. I also have phone recordings of what happened in the mental health centre where I was treated. I also spoke to medical doctors in person that came full forth with their experiences of the system they working every day. So this isn't just a few people this is now many. I was shocked and couldn't believe what I was hearing and if I heard this from someone else for the first time I probably wouldn't believe it either. My frustration for the broken system we have today can sometimes be hard eating for people and I don't like to put people down, no one is perfect. I just have a hard time believing in two week short term study or a two month so called term study to say they are just better than placebo when ppl take them longer than that. And also placebo can be great the studies have also shown this. But then the medication starts to flatten out and you have to take more. Dr's mainly look at the 2 month study because they have been designed by drug companies that make money to publish them. Unfortunately they don't publish the ones that didn't work out because it looks better on paper. The proper long term studies get hidden in PubMed and out side of the journals and they are not good. That's where the disease kicks in. Many Dr's don't look at all the data because they don't have the time, it's the sad truth.

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In response to: Re: I've been labelled as treatment resistant schizophrenic

Re: I've been labelled as treatment resistant schizophrenic

This is a repost from earlier corrected

Unfortunately this discussion between you and I is still stuck on 'the introduce yourself here' thread. Out of respect for others in this thread I have withdrawn from my responses to your posts because they aren't on the other thread. And the context and flow has been lost.

None of my research is from drugs companies. It is from peer reviewed articles of the medical field. Not sponsored by pharma either as much as I can tell.

And I am finding it increasingly difficult to share my opinions with you because you almost slandering my character without knowing me, and I'm not asking you to agree with what I'm saying. Just be respectful in your arguments and discussions.

I sincerely hope this doesn’t discourage you from continuing to contribute to the forums.

In response to: Re: I've been labelled as treatment resistant schizophrenic

Re: I've been labelled as treatment resistant schizophrenic

@AdgeI feel shocked to hear what has happened to the people around you. People put their trust into the medical health professionals and it does more harm than good. I've also sent complaints into mental health centre with help from a disability support Advocate that understands. My breakthrough so-called psychosis gave me a form of disability not just mentally but physically. I couldn't actually walk properly a tonne of nerve pain and cramping stomach problems, insane insomnia. I had experienced 20 different side effects coming off that drug. I now use to term so called psychosis since it hasn't been understood. The voices were from the people next door and was all due to the fact they have no idea about my label and could not figure out why I don't work. I'm now figuring out because I thought major tranquilizers do to the brain and after some time, things slow down.

I do my best to move on and try and cook for myself, share my opinion I'll sort of groups unfortunately people don't quite understand in this one apart from a few like yourself. So thank you and I wish the best for people around you that have been affected and the permanent damage is real. I will hopefully become better and better with neuro plasticity but no one knows by how much I'll have to wait and see. I couldn't even use to computer properly last year and now I am starting to so that's a good sign.

Take care.

In response to: Re: I've been labelled as treatment resistant schizophrenic

Re: I've been labelled as treatment resistant schizophrenic

@Sans911

The problem is it doesn't have to be sponsored by big Pharma it could be information from big Pharma because almost all of it is.

I looked all over the internet and landed on we're all paths meet. Website called mad in America you can't get much more updated in that and I'll leave it as that.

In response to: Re: I've been labelled as treatment resistant schizophrenic

Re: I've been labelled as treatment resistant schizophrenic

Do you have anything Australian based at all? It seems to be that your research or information is mostly American based. You have mentioned Australia a couple of times. I am sorry that you have been treated so badly by medications and professionals. And I'm pleased you have found support and friendship with Adge. I'm not against what you are saying at all. It just seemed mostly one sided. All the best in your recovery.

In response to: Re: I've been labelled as treatment resistant schizophrenic

Re: I've been labelled as treatment resistant schizophrenic

@Sans911 Yeah, there has been a paper released by a Pharmaceutical Company based in New South Wales that shows drug consistency and how they metabolise differently due two liver mutations.

Well worth watching

https://youtu.be/QeT_9F2oilk

Here's the link to the article https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3513220/

Kelly Brogan an honest doctor that cares mentions this study in this video. She's American but this study was done here in Australia.

Some mental health clinicians in Australia

https://youtu.be/Wiu7RIQTdOE

About halfway through the video Matt talks about the false accusations against him.

https://youtu.be/6KsGyA9rShQ

There's quite a lot of information out there just hard to come by.

Sorry if I came across as argumentative and jumping the gun I don't mean to do it it's something I have to work on. I am honest enough to admit that.

I care a lot about people's mental health and I wish drugs fixed everything and was told they would by the people I thought cared. I wish the best for everyone with any disorder, life isn't easy as we all know.

I wish the best in your life, what you can get out of it, the connections you make and the impact that it makes on others.

Oh and I also got the Australian Bureau of Statistics from Glenn Floyd

https://youtu.be/aHfdkcZ4yXQ

https://www.google.com/url?sa=t&source=web&rct=j&url=http://www.glennfloyd.org/ABSKILL.pdf&ved=2ahUKEwjDk8bHi_foAhVXX30KHcKWDioQFjAAegQIBRAC&usg=AOvVaw06SKz5Ycjx7cZmcNicjJTu

I've had a brief chat to him as well online.

In response to: Re: I've been labelled as treatment resistant schizophrenic

Re: I've been labelled as treatment resistant schizophrenic

@Sans911 I've plenty of links and resources but the problem is I sent a few a while ago and sane Australia being quite strict on how they like to play won't allow me to share the links

So it sounds like I can't have a voice that all. Pretty disappointing from "Sane Australia" how else can I send them to you outside of this forum?

I'm sorry about my frustration and jumping in too deep before, I guess my point should have been slid in a way that was less impacting but at the same time Sane Australia don't seem to like certain links and I can guess why.

In response to: Re: I've been labelled as treatment resistant schizophrenic

Re: I've been labelled as treatment resistant schizophrenic

Sorry all please ignore this.

In response to: Re: I've been labelled as treatment resistant schizophrenic

Re: I've been labelled as treatment resistant schizophrenic

hello @krs @Sans911 @Zoe7 @Eden1919 and anyone else in this thread.

I've just taken some time to get up to speed and I am going to take some time now to try and move all the relevant posts from the intro thread into this thread. It's going to take me about an hour and some will need to be moved one-by-one, but I think for the benefit of the intro thread staying on track it's worth it. Please give me some time and if you start seeing some posts come in here and not others, I may not be finished so bear with me for the next hour or so.

I also wanted to reiterate what Nashy said about this discussion and ask you all to keep the guidelines in mind... we acknowledge it's obviously brought up a lot for many of us on all sides of the debate about the medical model and I want to reiterate that we try to support all opinions about this that are based on peoples own experiemces. Please approach the disucssion with empathy and we ask that you try not to judge anothers opinion to harshy and allow for the full spectrum or experiences of mental health issues.

I hope this discussion runs its course soon.

In response to: Re: I've been labelled as treatment resistant schizophrenic

Re: I've been labelled as treatment resistant schizophrenic

@s-jay thanks S-jay I appreciate that.

In response to: Re: I've been labelled as treatment resistant schizophrenic

Re: I've been labelled as treatment resistant schizophrenic

OK I have finished. Let me know if I missed something
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