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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

That might be a good idea @Mazarita im not sure ill be sleeping though. Resting maybe.

Goodnight Mazy 💖 hoping you can manage some sleep

In response to: Re: A long rave

Re: A long rave

Same to you, @outlander, sleep well if you can.

In response to: A long rave

Re: A long rave

Hi @CheerBear, got your 'like' not long ago. Are you up already? I haven't settled yet.

In response to: A long rave

Re: A long rave

I am up already @Mazarita. Tossy turny sleep for the last half of it. I was enjoying reading over the conversation between you and outlander ☺

In response to: Re: A long rave

Re: A long rave

@CheerBear, hugs, just cos that's what comes to mind with your sleep and general feelings from earlier postings.

What's happening later today for you?

In response to: A long rave

Re: A long rave

Thanks @Mazarita ❤ Hugs are great.

My MH worker is coming over to triple check my NDIS application before we push send together (emailing it). Aside from that, I think I might have a proper pj day today. I don't have anything that needs to be done while the kids are at school. It's cold and rainy and my blanket sounds good I think.

I didn't read very far back. Are you OK tonight/this morning?

In response to: Re: A long rave

Re: A long rave

@CheerBear, that will be a milestone, submitting the application. PJ day sounds like good therapy.

I'm okay, just sleeping strangely, which in turn keeps me inside more. And not in the headspace to do activity lists, which can make me much more productive in real life ways, when I can do them. But the strange sleep cycles are knocking me around a bit too so PJ day sounds good just about every day at the moment. But I'm going to art group on Wednesday, and have stuff to do away from home Thursday and/or Friday too. That will be good therapy then.

In response to: A long rave

Re: A long rave

I think it will help to push send @Mazarita. I will imagine, like the DSP, it being sent to a box where I know I can't do anymore for now and can put it aside.

Hearing you with those feelings. I am struggling to leave the house and do much of anything, and sleep is a big part of that for me too. Heaps of respect for the way you take on the challenges that come with meds and med changes. Would be really tough to go through these times so you can get to the better times.

Art group sounds so good. We have a yarn bombing group somewhere close by (I can tell by seeing it) and looking into it is on my to-do when things feel a bit better.

In response to: Re: A long rave

Re: A long rave

Fantastic with the yarn bombing group, @CheerBear. Had to look up what it was, but now that I've seen it I know I have seen it before. Not in real life but images of it.

Thanks for your support with the meds changes, CB. It's not that tough. I still feel myself except that I don't quite know when I'll be awake or asleep, and I have little motivation for ordinary daytime activities. The social withdrawal has been with me since childhood. Amazingly, I have still met a lot of people and made friends.

On an up note, my gut issues have been better of late. I've been able to stop taking a medication I've been taking for crohns since 1985. Just don't seem to need it for now. I realised tonight that I am actually in crohn's remission. First time in a very long time, decades, since I've felt that.

In response to: A long rave

Re: A long rave

Yarn bombing is pretry awesome @Mazarita ☺

That's so fantastic about the crohns remission! What an exciting realisation to have had. What changed that for you to get to there do you think? I had a friend a long time ago who suffered wirh chrons and it was horrible for her. So great to hear where you're at there. 30 years is a long time - wow!

I find it so cool to hear of you enjoying social activities given your social anxiety. It's a lovely reminder of how special friendship is when we have it with great friends ❤
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