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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

@eth, it is funny that there were five of us in total who needed a shower yesterday. I think your shower makes three who got clean at the least yesterday. Not sure about @utopia, but I'm still sitting here in a feral state. That will change shortly though.

Do you mean that your support worker has forgotten that today is a day for you to meet? That would be pretty slack. Even I here on the forum know you see her on Wednesdays. Hope it all works out well today with that.

In response to: Re: A long rave

Re: A long rave

@Mazarita No , she thought I had an appointment and she'd meet me after it (so I'd have to get myself there). I don't have an appointment so I can flex with when she finishes with the one before me, but still I'd like to know at least an approximation of time so I can be ready.

In response to: Re: A long rave

Re: A long rave

@eth, doesn't she remember that you need her to get to appointments? Sheesh. Just as well you are flexible today. I wish you had a better support worker though.

In response to: A long rave

Re: A long rave

Have a quick look at youtube @Mazarita its really cool. Couldnt sleep ( nothing new) so was watching clips on the different techniques until 2am. Abit excited to so them today.

Small gains definitely count Mazy. Baby steps ❤


Morning @eth i hope your day goes well too ❤

In response to: Re: A long rave

Re: A long rave

@outlander, just had a look on youtube. It looks amazing!! I love abstract art. Can't wait to see what you come up with. Please tag me if you remember.

In response to: Re: A long rave

Re: A long rave

You too @outlander

@Mazarita sil talked with one of her bosses about making the change to pick me up after (and me use Shebah to get there) so that she's not just sitting waiting for me for an hour of my allocated time. But there is no appointment today. She just texted that she'll come at 2-2.30 - not sure how she thinks we'll get 3 1/2 hours if she knocks off at 5 and has to be back in her office before that.

In response to: Re: A long rave

Re: A long rave

@eth, sounds a bit like there might have been crossed wires in the communications then. Today it seems more like you might get two hours. Maybe ask if you can make up the time another day this week? Hope there's other better things over the course of the day for you. Seems like it hasn't been a great start to it so far.

In response to: A long rave

Re: A long rave

Of course @Mazarita 🙂

In response to: Re: A long rave

Re: A long rave

I'll get over it @Mazarita just find it frustrating to have to go over my diary with her repeatedly and then have short notice changes.

So my next goal is to get up the impetus to book flights today. All the details about support to and from airports and during transit times between flights has fallen into place yesterday. I wrote a list of people I needed to ask and possible dates and every single one was ok with my proposed plans. I couldn't believe how easily things worked out. So I'm going to my sister for a week, one friend up north for a few days and then another friend to the gathering down the track and probably a night at hot springs a little further south, then back home on day 13. It will be respite for bro and sil which they need after such a long slug preparing for the AAT/NDIS hearing. I leave the week after it.

In response to: Re: A long rave

Re: A long rave

@eth, so awesome with the trip plans!!!

All sounds like it's going to work out splendidly. Will be so good for you to see friends, your old home town, and the indigenous festival. Really glad it is moving forward for you.

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