FORUMS

Connect with people who understand what you are going through, seek advice and surround yourself with support. We're free, anonymous, and professionally moderated 24/7.

  • 47,612Members
  • 1,358,869Posts
  • 1,400,000Visitors
Our stories

A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

581 - 590 of 27,230

In response to: A long rave

Re: A long rave

Oh dear @Mazarita That must be hard for you. FYI if you can get into oats (i.e. porridge or even in bread and bikkies) they are the specific herb for the colon. Sorry to hear that, sounds irreversible. Have the docs ever suggested surgery?

LOL just typed dics instead of docs!!! Well some of them are

In response to: Re: A long rave

Re: A long rave

Hahaha to the dics, @eth. Makes me remember one in particular. Ended up storming out of his office mid-consult and never going back.

I have had two major surgeries for Crohns. There has been a total of about 70 cms of small intestine removed. Fortunately last surgery was 1993. Big improvements in my wellbeing from the surgery, thankfully.

Thanks for the tip about oats. I have never been into porridge but we made it at the basic cooking group I went to last year and actually really liked it.

Are you able to sit down at present? I think if it was me having the symptoms you've had, I'd be flat out on the bed.

In response to: Re: A long rave

Re: A long rave

I''m sitting on a pillow and leaning forward with my weight in my thighs. Even getting onto and into bed is really difficult. But it's all been quite a bit better since getting some relief late this afternoon. Sitting because I just had to give my legs a rest.

@Mazarita these days you can get Uncle Toby's oats in individual sachets, just add water or milk, instructions for microwave or stovetop in the box. Works for me. I make it with water and add honey, yogurt, fruit , brown sugar, cream - at different times just depends on what I want on the day. So it can be quite a lot yummier than when plain.

In response to: Re: A long rave

Re: A long rave

@eth, unfortunate that the meds give you constipation. It would be straining that would contribute to this, I imagine. I've just had a bit of a read about it. Sorry you are going through this. The combination of mental and physical health problems is hard. Hope it rights itself quickly even before you get to the docs. I did read that these things can sometimes right themselves, but it sounds like some action needs to be taken on the constipation problem.

In response to: Re: A long rave

Re: A long rave

@Mazarita I am very careful not to bear down (strain) as I remember well my boss (known as the Rear Admiral!) telling EVERY patient this. He said most things, like haemorroids, fistulas etc are caused by bearing down. But it means I'm in the loo for hours atm. It constantly feels like I need to, but nothing happens - 3-4 days of that and I'm technically impacted. As I said, seeing the Dr as soon as I can get in. I'd rather ride it out and see my own Dr thatn a stranger. But of course if things change at all for the worse I'll go to A&E quickly. Also have a.h. home Dr's fridge magnet on fridge!

In response to: Re: A long rave

Re: A long rave

@Mazarita are we both multi-tasking atm?

In response to: Re: A long rave

Re: A long rave

Great that you are ready to go to Emergency if needed, @eth. I read when it resolves on its own it can take up to 96 hours to do that. The worry is that you have had the same problem twice within a few days. I know what you are talking about with being on the toilet for hours at a time. It's called tenesmus, I think. I remember times when my legs have gone numb from sitting there, lol. I like to laugh when possible at my physical ailments, but it's not funny when you are going through it. Really hoping you get some quick relief from this horrible condition.

In response to: Re: A long rave

Re: A long rave

No but there seems to some delay or something on the site I think? @eth

In response to: Re: A long rave

Re: A long rave

Thanks a lot for that work tenesmus @Mazarita That's specifically part of what's happening. I'm just going for a quick 1/2 ciggie. BRB

In response to: Re: A long rave

Re: A long rave

I'll do the same, @eth...

581 - 590 of 27,230