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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

Good Morning @eth, Mazy @Mazarita, Claire @outlander, @Faith-and-Hope , @Shaz51 , @CheerBear , @Teej , @Former-Member and Everyone

Mazy that jumper is soooo professional!! Super-fantastic job! My Grandmother used to knit a lot, she was very good 🙂 But often the wool was very itchy & I didn't like it much, it looked great but was uncomfortable - the wool/bamboo should fix that & 'C' will love wearing it

Love to anyone who wants or needs it

Niqua

In response to: A long rave

Re: A long rave

Good morning, @eth. Just got up from another morning sleep and found your message from very recently. Thanks for checking out the jumper. Bit of a long project over more than a year, hehe. So happy it's completed now.

I have no plans for today either really. Maybe a walk on the beach, though my legs and feet are a bit worse than usual at the moment. Might help them though (or else make them worse, eek).

How great that you have gentle rain. I hope it's accompanied by some nice cool air too. It's getting hotter here again, though the heatwave has been forecast to start properly tomorrow now.

Good morning, @Former-Member, @Former-Member, @Shaz51, @Teej, @Faith-and-Hope, @outlander and anyone else passing through today.

In response to: Re: A long rave

Re: A long rave

Good morning @Former-Member sorry I missed you on my last post. Sounds like yesterday afternoon may turn into a somewhat healing experience between you and family. I keep meaning to say I'm very sorry to hear about your missing son. If you ever want to talk about him I'm here. Hope you don't overdo it today - perhaps hubby can do the lifting for you. Take care.

Hi and s back to you @Former-Member.

Hey @Mazarita it must feel really good to have that project finished. A few months ago I went to 2 sessions of Sheilas in the Shed. Started a crochet purple scarf at one and started a dream catcher at the other. They're both still sitting unfinished in my craft bag! Shows how long my lack of motivation has been happening. Maybe I'll finish the scarf before winter. I stopped going as there's no room in my cabin for all the knick knacks they make there, although the social side of it was good. It's also a long way from home and the usual transport hassle for me. When I went bro took me both times and sat in the car for over 2 hours working from his laptop. Just not something he could keep doing for me..

I hope you get out for a gentle stroll or even just to sit on the beach if your feet and legs aren't up to it. I really need to exercise more, I've been steadily gaining weight recently, not good for the self esteem. I know I have less severe depression and sleep better when I do get some exercise. Hoping to go to the pool with the support worker this week.

In response to: Re: A long rave

Re: A long rave

@Former-Member, @Former-Member, @eth, we are very in sync today. We posted at almost the same time. Missed your messages mohill and Niqua, while writing mine.

mohill, does husband use the office on a Sunday more than you? Why would he be glaring, I wonder. I too wonder if he can help with lifting. Doesn't sound like such a good thing for you to be doing at the moment, though the idea of decluttering sounds good. Maybe, if he can't help with that, you might just do the easier tasks for today. Just a thought. Agree with eth that the get together with husband's son and wife sounds like healing relief for all. Thanks for the suggestion of sitting with the craft lady when sewing up next job. Sounds like a great idea and it would be lovely to sit with her too, as I liked her immediately on meeting.

Niqua, thanks to you too for checking out the jumper, and for your encouraging words. Will be going over to check out your latest 'Niquas Notes' before long and will reply to you more there.

In response to: Re: A long rave

Re: A long rave

@eth, swimming will be good when you get to it this week. That just gave me the idea too of having a dip in the ocean today. Haven't quite got into the habit of doing that yet, but would like to. I too have been steadily gaining weight, for al the years since I started my mood stabiliser. I'm a bit scared about it really. Not only do I not like being the weight I am now, but if I continue gaining at the rate I am (about 7kg a year), I'll be very big in not too many years from now. I am going to have to talk to my psychiatrist about this, as I am already doing all I can to reduce, which only seems to slightly slow the process of weight gain. But I am also considering the gym again, but only when I get back from my Melbourne trip.

In response to: Re: A long rave

Re: A long rave

@Mazarita a dip in the ocean, or even just paddling and walking in water up to the thighs always refreshes me. Hope you get to do that today and manage not to get sunburnt again. The gym sounds ambitious - go for it. I totally resemble what you said about weight gain. But I have a habit of snacking when awake through the night which could not be helping. Discipline needed I know but have snacked more as a smoking substitute recently. So I can't verify that it's caused by the meds in my case. But anti-p's are well known to cause weight gain so it probably is worth talking to your pdoc about it.

In response to: Re: A long rave

Re: A long rave

The thing that is really tipping it for me with the mood stabilisers, @eth, is that I have had test results come back with enlarged fatty liver at different times over the past years since I've been on it. Sometimes a bit better, sometimes worse, but it seems to be on a similar degrading pathway. Also, the higher dose of anti-depressants seems to be stimulating my appetite too. So I think our next session is going to be a big talk about the future of meds for me.

My dips in the ocean are usually only me going in about up to my thighs and then kneeling down in the water and splashing in the waves from there.

In response to: Re: A long rave

Re: A long rave

That does sound like a concern that needs to be dealt with @Mazarita. I was on one med that meant regular LFTs but I was taken off that mid last year and have only been tested once since then. I might mention it to my dr too. The good thing about getting off that med is that my hand tremors almost completely stopped. They were really debilitating when they were happening. It's a shame so many of the bipolar meds have significant side effects. It's like we have to choose our mental health as a priority over our physical health.

I'm the same with the beach dips so far. Bro and sil always tease me at the beach about not handling cold water. But I think I've been in a few times this summer - progress compared to last year.

In response to: Re: A long rave

Re: A long rave

It is indeed like we have to choose mental health over physical health, @eth, especially in the long term. The long term is now catching up with me. So good that your hand tremors stopped when you stopped that medication. Sometimes the meds can even create irreversible conditions with that kind of thing. You are one up on me so far with the dips this summer. Hope I do make it three today (about an hour to gear myself up for low tide).

In response to: Re: A long rave

Re: A long rave

Hi @Mazarita and @eth

It's always a balancing act when dealing with meds in regards to mental health and physical health. Studies are starting to show that taking care of your physical health as best you can does impact your mental health and assists meds tp work better.

SP

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