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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

Thanks @Faith-and-Hope

In response to: Re: A long rave

Re: A long rave

Hi @Adge I am disappointed about ndis and sorry for the feelings you may have about that. Wonder what the application process involved for you but also know it may be better to just let it slide rather than think more about it. I wish you had more support in your life. Seems to me you deserve it.

In response to: Re: A long rave

Re: A long rave

@Mazarita @eth

In response to: Re: A long rave

Re: A long rave

Hi @Mazarita I'll be around for an hour or so if you do check in. Longer post to come.

Dear @Adge I'm sorry to hear your NDIS outcome and know how shit it can feel to be rejected by them only too well. But please know you can do a "RORD" (they call it a review of a reviewable decision in NDIS-speak) which is an internal review and you can submit as much extra evidence as you can gather. An occupational therapist assessment and psychology report are both good ones to have if possible. But I also totally get that you might not want to push on with trying to be accepted. It took me 18mths all up to beat them and get accepted, a lot of which is journalled on the Re: Anyone started with the NDIS thread. If you do decide to persevere I'm happy to support you, but I support you totally in whatever decision you choose.

Sending warm wishes your way.

In response to: Re: A long rave

Re: A long rave

Good morning to all reading here today. I'm just going to post a big thankyou here to all the folk who've tagged me in the last week. I had a holiday interstate with my kid and their family and didn't take my laptop, but could see all the tags on my phone inbox, tho' I don't do the forums on my phone. I had my birthday while I was down there and it was a lovely day spent with the family at the national arboretum in the forest. A very special way to spend it.

So .... A HUGE THANKYOU TO EVERYONE!!!

Sending warm wishes to @Mazarita @outlander @Adge @Faith-and-Hope @TAB @Shaz51 @Bunniekins @Daisydreamer @Exoplanet @frog @Schitzo @Anastasia @MDT @Former-Member @BlueBay @Jacques @Emelia8 @utopia @oceangirl @Zoe7 @rivergal and gratitude to you all for keeping me in the loop when I'm away from the forums so much. I will go now and read all your individual posts and look forward to hearing from anyone who chooses to reply. Take care all, Eth

In response to: Re: A long rave

Re: A long rave

@eth

In response to: Re: A long rave

Re: A long rave

Happy belated birthday dear @eth

Your celebration sounds perfect!

You are my inspiration in so many ways. It is due to you that I hold hope for my boy in dark days. Keep kicking goals and living life dear Eth, hugs always xox

In response to: Re: A long rave

Re: A long rave

Hi @eth,

I'm glad you had a lovely birthday with your loved ones 🌼

In response to: Re: A long rave

Re: A long rave

Hi @eth

Happy belayed birthday

In response to: Re: A long rave

Re: A long rave

Thanks all @TAB @Anastasia @oceangirl @Schitzo

@Anastasia thankyou so much for that acknowledgment. It means the world to me. If I can touch just one person's life in a personal and positive way then I feel a sense of worth that all I've been through and learned is worthwhile, no matter how hard it's been at times. Still learning and reaching for goals, which I forgot how to have for a long time.

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