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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

Hi @eth Good to see you about.

I received a phone message yesterday (on Mobile) from NDIS.This message said (was) that there is an Outcome/ Result for my NDIS Application – My Application to Access NDIS has been Assessed, with a Outcome (Yes/ No)I was not told this Outcome/ the Result of my NDIS Application.

I phoned the NDIS back.I was told that there is a Result for my NDIS Application – Yet they did not know what that Outcome/ Result was.

My phone call was not returned.

Then I went through it all again today (Thursday), 2nd day in a row - Still no return phone call, & have not yet been informed of the NDIS Outcome.

Adge

In response to: A long rave

Re: A long rave

Always good to see you @eth and thanks for the mention.

Emelia 💓

In response to: Re: A long rave

Re: A long rave

Yes @Adge hearing you. NDIS can be VERY frustrating to deal with. Hopefully you'll get something in writing from them, either email or snail mail. Hang in there mate. Also hope the outcome is in your favour.

In response to: A long rave

Re: A long rave

Hi @eth .... 👋💕

In response to: Re: A long rave

Re: A long rave

Thanks @eth Much appreciated.

An outcome in my favour would be wonderful - A Huge Surprise, having rarely happened.

In response to: Re: A long rave

Re: A long rave

Hi @Adge there was a bit of oddness in communications around the time I found about the ndis decision on me. I am so hoping it is in your favour.

In response to: A long rave

Re: A long rave

Hi @eth it seems you and I share that obsessive tendency, both of us works in progress in growing the balance in different areas of our lives, as we have already done in many ways along the way. I believe we have both been successful in gaining greater balance already when looking back over our wilder times.

Seems to me a good choice with rolling over the plan, a more relaxed option. Perhaps my main inspiration in recovery at this time in life is greater ease of mind, heart and spirit. More enjoyment and a fuller realisation that I am a good person and enough.

Related to this I am understanding mindfulness in a new way, something I've previously been hazier about. This, despite being first introduced to mindfulness over thirty years ago by my first psychiatrist and having engaged with it in different ways and at different times of my life. I have always found it hard to get a real grip on what it means.

But this first month or so of ndis support has been very body-focused, with therapists trained and experienced in physical healing and in mindfulness. Without really having to strain or push myself much at all, I find myself connecting more in this healing way to the body and senses. The benefits to health and enjoyment of myself and the world are already noticable.

Being released from some of the physical pain in itself is understandably helping as well. I continue now to feel blessed by this ndis journey, after the earlier hurdles of bureaucracy and strong resistance in myself to that, and the politics of the whole scheme. Now I am grateful.

In response to: Re: A long rave

Re: A long rave

Do you have Mygov @Adge ? maybe its on there

In response to: Re: A long rave

Re: A long rave

Thanks for Support & encouragement @eth @Mazarita @TAB @Emelia8 @Faith-and-Hope

I finally got a return call from NDIS - After 3 days of repeated attempts, leaving several requests for the Outcome of my Application.

My Application was Rejected - I am "Too high functioning, to meet their criteria" (according to NDIS).

Adge

In response to: Re: A long rave

Re: A long rave

❤️ @Adge

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