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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

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In response to: A long rave

Re: A long rave

Hi @eth @Appleblossom @Bunniekins and anyone else interested in NDIS matters.

I got my plan today. It seems a crazily generous amount to have as a budget. I can't imagine how it can all be spent but my advocate has said once I start building up the supports it will be spent. Wow, can't believe I'm going to be getting this much support. Meeting my (independent) support co-ordinator tomorrow. Can't wait to start activities with my old support worker.

Thanks so much to the three of you tagged and anyone I may have forgotten for your support and info during this process.

In response to: Re: A long rave

Re: A long rave

@Mazarita doors will open for you now Mazzy. I am so happy that you have been well funded you deserve it :)xx

In response to: Re: A long rave

Re: A long rave

Fantastic news. @Mazarita

Hearing You all talk about it, helps me be more positive and maybe get proactive about my own plan.

In response to: Re: A long rave

Re: A long rave

Thanks @Bunniekins and @Appleblossom, yes, I want to make the most of it.

In response to: Re: A long rave

Re: A long rave

Hi @eth just noticed you liked a post from me at the Topic Tuesday. Can't believe I missed it but it's been a big day. Waiting for my friend to ring so we can go over for a visit tonight. That should happen very soon. But just saying hi while you are around.

In response to: Re: A long rave

Re: A long rave

Still here @Mazarita if you are. So happy for you with your NDIS result!

Hi also @Zoe7 @Bunniekins @Appleblossom @Eve7 and anyone else who has passed thru' here lately or is reading this post.

In response to: Re: A long rave

Re: A long rave

great news @Mazarita

In response to: Re: A long rave

Re: A long rave

Hi @Mazarita @Shaz51 @Appleblossom @Bunniekins @Zoe7 well I just bit the bullet and lodged a formal complaint about one of the 5 people I've interviewed in the last 2 days. To cut a long story short, at one point she threw her hands in the air, laughing, and said "Bipolar ... you can keep that" ..... so inappropriate and hurtful. She had said she'd read my bio and my job ad and that meant she already knew that I have bipolar 1 and complex PTSD before she applied and came for the interview. I'm so hurt by it, feeling really strong feels about stigma and how it gets perpetuated, angry and violated from having her in my home. Thank goodness I had my long-term support worker here to support me through the interviews.

On a happier note I've found 2 women I quite like who fit all my criteria. Did a buddy shift with one of them yesterday (with me and my long-term person) and will do one with the other tomorrow. So I can split the shifts I need between them and that means having a team of 3 it's less likely I'll be left high and dry when someone can't do their shift (which has happened often through this last year of covid reality).

I am pleased with myself that I've been able to get this far with the process since only being told another long-term support had to resign due to illhealth. The last time I tried to do this process it took me a few weeks, this time only one. Also pleased that my coordinator of supports and remaining support worker were so supportive while I did the 5 interviews and buddy shift between Mon and Tues. It was very hectic and hard to stay focussed at times but they were able to pick up the conversation and ask questions on my behalf while I re-gathered myself.

That's enough of a rave from me for now. Have another online writing group in an hour but might be around a bit tomorrow morning if anyone wants to catch up.

@Mazarita I still love seeing you posting again after your break. Communicating this way is working for me atm too. 'See' you soon.

s to all reading this post.

In response to: Re: A long rave

Re: A long rave

@eth what a stupid woman and yes make a formal complaintl You are so strong eth with your ability to interview these job applicants .... I wouldnt be able to do it and get my support workers basically chosen for me through an agency. You are achieving so much. You must be feeling good in yourself which is wonderful. Love to you eth. peaxxx

In response to: Re: A long rave

Re: A long rave

@Mazarita @eth Sorry I've been silent. I haven't been bad or good

i told you guys I'm a hermit! I think sometimes my PTSD makes me withdraw..I'm a lonely girl over here 😞 don't even want a partner. Has anyone else feel lonely, yet takes no steps

to "cure" the lonliness? Or takes steps that mean nothing...I don't know. I just know I want a partner but I want her to understand me and my past. 😞 (lesbian)

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