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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

I too have it rather mildly @Mazarita although things were bad when first diagnosed. Rheumatologist gave me an antidepressant to take at the time cause apparently that's how they treat it but couldn't take it as I was still nursing my daughter. I just learnt to manage it the best I could as I felt nursing my daughter was more a priority. I have found diet and exercise to help me and taking turmeric. Some days are worse than others, the fibro fog and headaches I struggle with a fair bit.... but in saying that both those can be related to other things! I am now on an antidepressant cause I am actually really depressed.
hope things are mostly manageable for you @Mazarita

In response to: Re: A long rave

Re: A long rave

@Bow

Like you, did not want to take antidep whilst breast feeding, but after a while, lol, they grew up.

Sounds like you have been thru the wringer with pain. I have started with daily turmeric too.

watching https://www.thebowencenter.org/professional-lectures

Hey @Mazarita @Emelia8 @eth @Shaz51 from one extreme to another,

i guess thats me. Heidi to family therapy!

In response to: Re: A long rave

Re: A long rave

You got fibro too @Appleblossom ?

turmeric is good for so many things. My Mum takes it for a variety of reasons and use to give it to the dog too.

In response to: Re: A long rave

Re: A long rave

@Bow Probably. It has not been officially diagnosed. About 10 yrs ago a Gp who was a memeber of a choir I was in, suggested I had it and gave me a handout. I have struggled to get help for the more pressing issue of my neck, and been grateful to get physio throughout 2020. However I am coming back to the idea that fibromyalgia is also an issue. Maybe eventually this Gp I am seeing in role of gp will help me work that out. I have constant pain, however it ranges in severity and location. I was grateful my OT recognised my cervical disc bulge issues, and was not going to dismiss me as just MI and not worth bothering about. A long work in progress getting my health sorted, and then I go and get old ...lol

How old is/are your child/ren? You may have posted elsewhere ...

In response to: Re: A long rave

Re: A long rave

@Bow good to hear it is milder now than when diagnosed, sorry you are depressed and hope the antidepressant is helping. For me they are at the least effective in reducing the acute emotional pain I have experienced at other times.

I have had very bad headaches happening a lot over the past few months, nausea and vomiting at its worst, terrible pain. These have subsided for about past 10 days though yesterday I felt ominous rumblings and took an anti-migraine med when it felt like it might be ramping up before going to bed last night. Taking that medication early helps me a lot at least sometimes, and can stop a headache in its tracks.

Even though these headaches are not typical migraines of the one-sided kind I've had sporadically over my life, the migraine med seems to be the best thing for the whole-head episodes recently. The heavier pain killers sometimes just don't work at all if these headaches are bad enough. It's not clear what is causing the headaches and my GP and I both wonder if it is coming from seriously degenerated discs in my neck, which also causes a lot of pain and fairly frequently.

I would like to do more exercise. I go for walks in a nature place about once a week, less or more. I am not out of the home much at this time in my life, except to be driven to a close friend's place two or three times a week for coffee visits, a fantastic thing in my too-much-inside life. When elevated with the bipolar I can do things that are amazing even to me, but the depression is the major illness I have experienced since childhood. Sometimes I go to medical and related appointments solo on public transport. I almost always enjoy this and the walking when I can get myself to do it. It's getting past the front door that is the obstacle too often.

Nonetheless I have a wonderful companion and try to find smiles and laughs when I can, which is usually every day.

Hi @Appleblossom @Emelia8 @eth @Adge @outlander and all.

In response to: Re: A long rave

Re: A long rave

@Appleblossom I think we may have been drafting or posting at the same time. I believe fibromyalgia makes my neck problems worse. When I get the bad headaches the pain refers all over the upper back, especially painful behind shoulder blades almost as bad as the head, shoulders, upper arms, all across chest. If I get NDIS I am hoping for more and ongoing physio.

Laugh to the old bit. That is certainly a part of all this too. I manage some degree of acceptance of that aspect of the degenerated health issues, but not always. Sometimes I find illness and aging are best approached spiritually. I think you know that is a personal thing for me, not affiliated with any group or religion. The symbiosis of spirit and body has been on my mind lately.

In response to: Re: A long rave

Re: A long rave

@Appleblossom Sounds like you have a lot of health issues going on for you also.

I too also have a disc bulge in my back, was horrible when pregnant and often flares up when I over do it or when away from my own bed, but for the most part it is manageable. My morning walk is vital for me in getting rid of the stiffness I always wake up with. I also get a lot of hip pain.

bodies and aging eh! And people keep reminding me that I am in fact not that old!

my daughter is 5 yrs old.

In response to: Re: A long rave

Re: A long rave

@Mazarita headaches cripple me at times. for a long time they were the worst part of fibro for me. chronic daily ones that were enought to affect how i lived and then sometimes ones that would have me in bed. doctor was never able to give me anything for it, i think perhaps sometimes they were stress related too and hormonal. i did eventually see a neurologist and had an mri, which was reassuring to know that everything was ok up there 🙂 they have settled down alot now which is good.

i hope you can get some answers for yours very soon @Mazarita and i am sorry that your depression and bipolar are so difficult for you. glad you have a good companion and can find good things in your days 🙂 that is wonderful.

In response to: Re: A long rave

Re: A long rave

@Mazarita You inspired me with your stories of walks along the beach! Volunteering at the zoo was a great distraction for a few years, but its time for a change. Well covid forced it on us. I am finally getting a short walk most days, and a longer one occasionally. I do physio exercises daily. It is the integrated and personalised approach that is important. She does not just push me, she slows me down too, or notices some thing relevant that I had not thought of. I hope you get NDIS and phsyio.

@Bow 5 is a beautiful age, but all stages have their challenges.

My first born is a daughter and she is 35.

Keeping active is partly about physical but also a pain management thing. I also do music as pain management. I have had bad headaches for 30 years, which have barely been discussed with gp, as there usually are bigger things. I guess I have just been extended past my maximimum for a long time. Feels like my brain is swollen and too big for my skull, not typical migraine. I dont like to think about it too much, tend to escape into intellectual things. Yes its all connected that spine, neck and head .... sigh. Developing the smaller core muscles has shifted and loosened up things for me in a good way. That spot between shoulder blades and in front radiating down from the collar bone.

In response to: Re: A long rave

Re: A long rave

@Bow yeah the headaches are awful. I hope I now get a long period without them but not yet counting chickens. At least I am recognising now that if I get them early with migraine med that I can sometimes stop them before they really get going. I have had MRIs of spine and brain and all okay there, except that's when they saw the bad degeneration in my neck. I have been seeking help for that since the 1990s, over the years trying Feldenkreis, physio, relaxation techniques, acupuncture and more. I intend to make an appointment soon to try the acupuncture again. My GP and psychologist both think it may help me. Thanks for your kind words.

@Appleblossom at times I'm relatively good with things like walking, though it has never been every day, probably ever. The massive mood crash and familiar long-sleeping sickness that descended on me at the end of December 2019, after overseas travels, set me back a long way and I've only really been very slowly inching out of that in the last half of last year.

During that time we moved 5km inland from the beach. There's a wetland area very close but I'm not confident walking alone. C is not working and would probably go with me every day. There are occasional walks on the beach if C will drive or if I'm out near the coast for appointments, but very occasionally at the moment.

I wondered about your Zoo work, great that you are doing daily walks. I read about your garden in another thread and thought you might be doing that instead of the Zoo, which you hadn't mentioned since I recently started posting again. Your physio sounds good. Seeing the GP next week for a new referral on that 5-sessions Medicare-subsidised scheme.

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