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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

@cutiepiekitty

Yeah well your arent being abandoned here thats for sure.

I hope they can honesty tell you why this has happened. You certainly deserve to know the truth. They also need to know how much its upset. Very important

In response to: Re: A long rave

Re: A long rave

Ahhh dear Long Ravers

First meet and greet with NDIS peer support ... was a no show and a no cancellation ... no info til I made the call to provider ... told she was going to call me to let me know it has been rescheduled... I asked "if this was normal" ... first time for me to ask such a q ... hmmmm.

We will see how it is tomorrow ...

NOt a good start

In response to: A long rave

Re: A long rave

@cutiepiekitty

They r just thoughts that have formed by others hurting you.

Theyre not you tho ok

You are worthy just as I am.

When my head is quiet i feel worthy when im triggered i dont feel worthy cause someone is hurting me again.

Its the situation thats bring up all these thoughts.

Just get thru today best you can.

Maybe if u cant get into a bath going to visit a pool another day might work.a lot of people use pools for all types of rehab. Mental & physical+ theyre pretty cheap!!! Thats a huge bonus

I used to just walk in one alone for quite a while

In response to: Re: A long rave

Re: A long rave

@Appleblossom

Well that down right slack

Great support there

Im not sure how the ndis works however only accept support that feels right for you & i guess that could change as you change too

Must be a general bad day full of setbacks as im hearing a lot today

Im sure with persistence ul get the right person.

Just might b a bumpy road to get there so hang on

In response to: Re: A long rave

Re: A long rave

@Former-Member would love to be able to disappear into a pool. But that is not possible when the local one is not built yet and there is no other around. I seem to lose every way. So I suppose I will just stay in bed.

In response to: Re: A long rave

Re: A long rave

@Former-Member

Thanks for reading thread properly and responding to my situation ... without a tag.

APPRECIATED.

In response to: Re: A long rave

Re: A long rave

@cutiepiekitty

Thats a total bummer!

In response to: Re: A long rave

Re: A long rave

@Appleblossom sounds like we are all having problems with so-called "professionals" at the moment. They all should be made to listen to what their cancellations, no shows and miscommunications etc are like living where we are. Hope you hear soon

In response to: Re: A long rave

Re: A long rave

Quickly catching up here @cutiepiekitty and really feeling for you. It is no way for a professional service to run. Is there a practice manager that you could request to speak to? I don't know your specific circumstances on who referred you to this person - are you on a MHCP? If so could you talk to your GP and ask them to contact her to find out what is happening and also request a sooner appointment because of your specificc circumstances. Sometimes coming from your GP holds more weight (it shouldn't but it often does).

In response to: Re: A long rave

Re: A long rave

@Appleblossom That is not acceptable Hon. No call or contact and simply not turning up is indeed not a good way to start. This is where the system has so many flaws - you should have been informed tht she was not going to be able to make it and is disrespectful that you weren't. It is hard enough meeting new people and accepting that support without being let down. There may be very good reasons why she could not make it but you are kept guessing with no contact at all. I find that disgraceful - especially when we are dealing with so much already and there seems to a clear lack of knowledge of how these things affect us ....I can certainly see how this would have you on the backfoot again and questioning the whole process.

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