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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

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In response to: A long rave

Re: A long rave

Thanks, @eth, I very much appreciate your friendship too.

Great with the word processing. Good luck! I'm sure you will do it well.

Yes, I am feeling better about friend. Just a glitch I think and the break is good, even though it's likely that she'll ring soon for us anyway (she did last night but C wasn't up for driving so we didn't take up her offer of dinner). All is well. I am really hyper sensitive at times too, it makes friendship difficult sometimes. Things easily get to me, out of proportion to what has actually happened. But I've been aware of that for a long time now and try not to kneejerk act on it, which usually helps.

Ciao for now, mate!

In response to: Re: A long rave

Re: A long rave

ohhhh @Mazarita, how did you appt go , sorry , been a bit crazy here -- no , I should of written earier my scottish sister

I go tomorrow for my appt

In response to: Re: A long rave

Re: A long rave

Hi @Shaz51

I haven't had the test yet - they couldn't do it when I was due because they wouldn't put me under anaesthetic while I had such a bad chest. So it's been rescheduled for next Tuesday. What is your appointment tomorrow? Hope there's some good news.

In response to: Re: A long rave

Re: A long rave

will be thinking of you @Mazarita

since my last kidney checkup in June i feel things have got worse and my next kidney checkup is in december

I have rang the kidney specialist and nurse but they are going to wait until december but I want to see if I am getting something else as CKD stage 4 affects your kidney, heart, diabetes, your bones and nerves and muscles , arthritis

and my iron level has been very high for a long time

In response to: Re: A long rave

Re: A long rave

Thanks, scottish sister. I remember us talking before about your iron levels, @Shaz51. Hope too that there are some effective treatments for your health issues. Good luck with tomorrow.

In response to: Re: A long rave

Re: A long rave

thanks sister @Mazarita , how are you today xx

In response to: Re: A long rave

Re: A long rave

@Shaz51, day started off pretty wobbly but then I got out on the beach for a walk and later did most of my washing. So, for me, not a bad day on the home front. How's you today?

In response to: Re: A long rave

Re: A long rave

2.30am as I'm starting this post. I've had about three hours sleep so far. That was from about 9.30-12.30pm. Awake doing video and related tasks on the computer since then.

Happy that yesterday turned out more productive and satisfying than I anticipated at the start of it. It's amazing how much better I feel for having had a bit of a wash, dressed myself, achieved a walk and done some washing. How badly I often start the days. But then any day can, and often does, improve as the hours go by. It's not usually an enormous improvement by most people's standards, but still worth holding out for better hours. My brain doesn't always remember what I'd like it to, but I'd really like to remember this and not be so ready to give up on the day too soon when I'm feeling dreadful at the start.

Interesting to know that @eth, @PeppiPatty and I are all using activity lists now. I wonder who else might be using them. I know I have found my daily list helpful on many occasions. Not always. Sometimes I just look at it and freeze, unable to achieve a single goal. If I go too many days like this, then I lose heart and can't bear to look at a list for a while. Also, I can't always bear to be told what to do, even by my self (!). But when I find myself able to do at least some of the things on there, and am not too blocked by crazy inner rebellion, then lists seem very helpful. I have a 'master list' that I revise over time. Backed up by a dates diary where I record all appointments. I tick them off in my diary as I go, which gives me an indication of what I'm getting to and what I'm cancelling out of (an ongoing issue for me).

@Shaz51, thinking of you today with your doctor appointment.

@eth, I respect that you are taking the NDIS journey all the way to the end, whichever way it goes. It takes people willing to do that to challenge the sorry state of affairs with it. You really are pioneering this. I so hope the outcome is positive. I imagine it may be a rather different forum at the Administrative Appeals Tribunal, a body outside of the scheme, and this could be to your benefit. I wonder how many other people have already gone all the way through to this point, especially with mental health. The failures of the system clearly need addressing. I hope the OT organisation called back and your session with Open Office went well.

Good morning, @Former-Member, @Appleblossom, @Faith-and-Hope, @CheerBear and everyone, hope the new day brings fresh feelings.

In response to: A long rave

Re: A long rave

Good morning @Mazarita ☺ Really nice to see your message come through this morning. It's great tk hear yesterday was a better day for you than you thought it may have been.

I'm about to head to the kettle as I am just feeling frustrated lying in bed awake.

Any plans for today? Hope it's a good one for you 💗

In response to: Re: A long rave

Re: A long rave

Hi @CheerBear, well, I wandered off thinking that no-one would be online, look over and here you are!

I'll be wandering over to the nest to read anything you might have to say about your day yesterday after I post this. I'm about to grab another coffee too.

I have art group today.

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