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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

Hi Girls,

@eth I always say: When your feeling depressed; go and buy yourself some new knickers and a bra.....

So, yes. yes.....good for you and Im going to imagine getting myself a new bra. Knickers are brilliant..I need to buy about 4 inext week.....

I've been checking 'to do lists.......I can get very addicted just reading about how to do 'to do' lists....but I;ve downloaded a simple one ....Im just going to get it printed out 10 times and do a to do list daily for a while.

@Mazarita

Yes, you have helped me full on in the past few years.....The briliant thing about my hair is that I can't afford to get the funky hair cut but Mum pays for it when it gets a little shaggy.....at least every 6 months..Im so lucky.

@Former-Member @Faith-and-Hope lets go and have a cuppa tea. I'm going to have to work this morning and it's only one and half hours.........then can we?

In response to: A long rave

Re: A long rave

Just got back from a beach walk. Thank you @Appleblossom for saying that about my beach walks helping your mind in some way. It was the catalyst that got me out the door and there today. It was wonderful being out there, as usual. At the start, I was wandering away in my brain like I do at home, worrying about my long term housing future, as I am wont to do (yes I can still do that even after just getting a new lease, doh). Then suddenly I looked up and there was the wide ocean and surfers catching a wave. For a moment I got a glimpse of what it would be like on that wave, no intrusive thoughts, just trying to stay balanced, in synch with your body, riding a momentary movement of water in time. A bird was diving perpendicular into the waves for fish. The blue of the sky was dazzling. The aquatic blue greens were delicious. My feet and legs held out okay for most of it but I cut it a bit short on the way back, got off the beach halfway home to catch a bus the final stretch of the way.

Hi @eth, really glad to hear you are trying again with dancing in the dark. Looking forward to hearing your account! How do people not bump into each other? The group with the healthy focus sounds good too.

In response to: Re: A long rave

Re: A long rave

Hehe, @PeppiPatty, we keep posting at the same time and I miss your post before I post mine.

Hugs to you. I too recently bought bras and undies. I try to keep them in reasonable shape these days. I used to wear some pretty dodgy ones due to the cost. Undies are too expensive I reckon!

Your post makes me think I'll get up my activity plan and see if I can get further motivated to do some stuff on it today. The walk has kick started some energy I think.

In response to: Re: A long rave

Re: A long rave

Good question about the dancing @Mazarita - I guess I'll find out.

I love your description about your moment on your beach walk. Happy for you that you made it happen.

Working with list sounds positive @PeppiPatty I do it too and am happy if I just tick off 1 or 2 things in a day.

I'm waiting for a call back from an OT organisation about the cost of travel training. It's frustrating when I actually get the impetus to make a call about something like this and then just get an answering machine. My life would be so different if I could do independent travel. I also rang silver service cabs and was told you can't request a female driver, so that's out. Disappointing. The PHaMs worker seems to have cut me back to 2hrs a week - not enough to do more than essential appointments. I'm feeling house-bound again. Getting caught in the habit of not being motivated. Being reminded more often that I need to change things by bro and sil, but not feeling the steps to a way forward atm.

In response to: Re: A long rave

Re: A long rave

@eth, sounds like you are already taking steps to move forward with independent travel, such a valuable thing if possible. I hope the OT organisation rings back promptly or, if they don't, you follow them up. Pity about the taxis. Seems like there should be more flexibility in that regard really.

In response to: Re: A long rave

Re: A long rave

@Mazarita I hope I can afford to pay for the travel training. I wouldn't have to if bl**dy NDIS had approved me.

I'm dodging a task I really should get onto soon - learning how to use open office word processing program well enough to make an electronic copy of my WRAP plan. That might help me feel more motivated but I'm resisting/avoiding it today.

Whinge, moan, blah!

In response to: Re: A long rave

Re: A long rave

@eth, I too use Open Office. It's very similar to MS Word, just some things are in slightly different places. I advise taking your time with it and calling on patience. Maybe think of it as a mindfulness exercise?

Agreed that it seems all the community organisations that were offering free support to people with mental health issues, now have to be more capitalistic in their relation to clients. It's a terrible shame. From the moment the NDIS was announced, I suspected it would reduce benefits to people like us, not enhance them. Sorry to be so negative but it makes me angry. If I need Phams in the future, I will just not have that facility available to me. How is that better for people with a disability?

Rant over.

In response to: Re: A long rave

Re: A long rave

I totally agree with all you say @Mazarita. Even the services that are providers for NDIS clients are charging their NDIS plans much more than they cost before NDIS. Outrageous. PHaMs here is winding up soon too. But I have issues even with them. Last week my support worker said she thinks they're not supposed to be doing the support hours, just helping with the NDIS process (which they haven't done yet and I've been with them since May). This is totally not what I was approved for. When it started they clearly stated I would get 4hrs support a week. Rant could go on but probably shouldn't!

In response to: Re: A long rave

Re: A long rave

It really confirms my cynicism about the government's intentions towards people with mental illness, @eth. That is, drop us off even further. I never really believe governments give a damn, often suspect they have frankly negative and oppressive attitudes to us really.

But enough, I said my rant was over, and we shouldn't encourage each other's anger, I guess. It doesn't seem to help me to feel angry, just brings me down. Though it's not ideal, I prefer to do this about politics when possible...

Sorry, had to post it huge or the gif motion would be lost. Hoping to give us a laugh.

In response to: Re: A long rave

Re: A long rave

Hear hear @Mazarita! The gif is great. I'm at a point where I'd like to do that too, but am caught up in one last push to get it via AAT appeal which involves a disability advocate, legal aid and the administrative appeals tribunal. Anyway at least since this anger came up I've more energy - will go now and have a go at the word processing. Thanks for listening once again. I appreciate your friendship.

Hoping you're feeling better about the IRL situation with your friend who's getting ready to move.

Enjoy the rest of your day.

You too @PeppiPatty.

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