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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

@eth Hey eth thank you for the kind words and good morning :). You will be able to do these awful forms you have to think positively. The thing I found so daunting was there were so many of them :o!I couldn't through them all .... I needed to be spoon fed them lol ..... xx

In response to: Re: A long rave

Re: A long rave

Thanks for the suggestions @Faith-and-Hope and for your and @Bunniekins 's encouragement. I can't get to a library today, no support worker, but will keep it in mind as an option. I've asked my plan manager to come and see me instead. So she can get her forms and also go on the NDIS portal with me to see my completed plan. So far I just have a preview version that was emailed to me on Friday.

Knowing it will unfold in time is not helping with my impatience to sort it out. Last plan it took nearly 2 months for it all to be in place. It better not be like that this time.

In response to: A long rave

Re: A long rave

Heya @Bunniekins, it's a good convesation to have thank you for being really open and congruent. I am sorry to hear this interaction or lack of between yourself and another member has affected you in this way. Remember if you need any support at all with experiences within the community you can always e-mail us on team@saneforums.org I will be sending you an e-mail in a moment to check in too.

In response to: Re: A long rave

Re: A long rave

@eth mine took about 2 months too ... just think though this is for 2 years That is such a blessing I am so happy for you eth. That is huge!

In response to: Re: A long rave

Re: A long rave

@Former-Member Thanks nashy 🙂

In response to: A long rave

Re: A long rave

I thank you will all my heart for your super kind words @Bunniekins Unfortunately some of your views are not held by others and no matter how much I have given here it means little. It has been extremely hard for me to be here as a result because I honestly do not feel like I have a place here anymore. I did hope with time that that would change but every day feels just that little bit harder. It is people like you who are holding me here but in all honesty I feel very let down over the last couple of months. ...and a lot of that I cannot talk about here which makes it even harder. Some things in our lives are too hard to come back from no matter how much we want to. That is how I feel presently and that is hard to live with. So whilst I really appreciate your wonderfully supportive and kind words I also know that I am just one person and in the wider scheme of things I do not matter.

In response to: Re: A long rave

Re: A long rave

You matter to me @Zoe7 , heaps

In response to: Re: A long rave

Re: A long rave

You matter to me @Zoe7 💜🦋

In response to: Re: A long rave

Re: A long rave

@Zoe7 Don't say that Zoe7 makes pea tearful and worried and to be honest with you I wish you could tell the pea as I wish I could tell you things which I cannot.... just don't go anywhere is all I am asking. You do matter so much much more than you realise I can assure you of that. I wish I could hold your hands and look at you straight in the eyes and tell you this so that you believe me.

In response to: Re: A long rave

Re: A long rave

Sometimes I'm really desperate and I check the forums constantly for connection with somebody and you have been the @Zoe7 to pep me up and you probably didn't even realise it.

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