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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

Good Morning @Shaz51

I've just noticed this post, I believe I've missed another notice glitch. Fancy having too much iron yet still being anemic!!! That seems terribly unfair! You may not be able to give blood, but if you recieved blood with good iron levels - I wonder if that would help? Though I'm sure if it was that easy they would have done it already. I guess I'm just thinking in type 🙂

Lots of love to you Shaz

Niqua

In response to: Re: A long rave

Re: A long rave

@eth

It sounds as if your therapist is thorough and doing a good job. Feeling flat after sessions might be worth it if there is resolution and you are no longer plagued by symptoms.

Go gently with it.

@Former-Member @CheerBear @PeppiPatty @Mazarita

In response to: Re: A long rave

Re: A long rave

Hi @CheerBear, @Appleblossom, @eth, @Former-Member, @PeppiPatty and everyone,

Thanks for the kind words about our rental unit and about my health.

@eth, I think I mentioned to you once before that I refused EMDR therapy when it was offered to me, as I felt it would re-traumatise me. That was also partly because I didn't trust my psychologist of the time. Take it very gently. I know you have a great connection with your therapist and I'm sure you will both be very aware of the delicacy of the process. Sending very best wishes that you are both able to reach a place of relief from symptoms of cPTSD.

Niqua, big pats on the back for the start to the mowing and the momentum you seem to have for getting in to some of the other chores very soon. Great idea with the half-way camping idea. Once a month camping sounds like it will be great for you. Those cheeky canines. Wouldn't it be good if their enthusiasm for jumping up at clock alarms could be bottled and sold to humans!

I've just started to come to life a little - three hours after waking. Sooooo tired for the hours to now. Tried to do some computing (usually the easiest thing for me to do), and ended up with my head on the desk. This is a pretty common experience for me, waking with so little energy. At the moment, I'm still in my nightie, but at least I have enough mental concentration to post here. After this, I will try to actually do some things, like get dressed, make the bed. At which point I will be tired again and need a break. Then I'll try again on something else. So, status report is: cough and general sickness a lot better; chronic fatigue left behind to continue to bug me daily. If only I ever felt well. C'est la vie.

Hmmm, perhaps I should try to find something upbeat to mediate that last blurb. How's this: I am actually starting to wake up, even if there were three hours of exhaustion on first waking before it. This is now, that was then. Let's see what I can make of this day from here on then.

Hoping it's a good one for everyone here.

In response to: Re: A long rave

Re: A long rave

Thanks @Mazarita. I know I can tell her if it proves too difficult for me. I felt the EMDR would be gentler than the Prolonged Exposure Therapy which the psychiatrist also recommended. And you're right, I do really trust my psychologist. I think she's a better match for me than any I've had previously.

Sorry to hear that chronic fatigue is plaguing you. Maybe a bit of a chat on here will get you going.

In response to: Re: A long rave

Re: A long rave

Hi @eth, glad to meet you in real time today. How's this day going for you?

In response to: Re: A long rave

Re: A long rave

Quiet afternoon here, watching TV @Mazarita and dozing on and off. Another low energy day for me too. I'm here alone now as bro and sil have gone to the wedding up at the farm.

Had a nice time for a while this morning as bro's son and his band were hear overnight and played for a while and filmed a clip in our vegie garden. I wish I could tell you their name but I might get moderated if I did. They are playing in Sydney tonight and back for a gig in Newie tomorrow night, staying here again.

So tonight I'll be alone without the dog for the first time. Hoping anxiety doesn't peak and keep me awake.

Nice to catch you and glad to hear your cough is improving. I still have a touch of mine, and strained chest muscles are slow recovering. Hoping you're not getting that sort of pain on top of everything else.

In response to: Re: A long rave

Re: A long rave

Hi and thanks to you too @Appleblossom. How are you going these days? It's ages since we chatted.

In response to: Re: A long rave

Re: A long rave

@eth, maybe you are in recovery mode for now from the recent trips. Hope today pans out kindly for you, whether energy stays low or improves over the day. The music happenings around your place sound great. Yes, I've had painful chest and diaghragm muscles from all the coughing but not bothering me too much at present, thank goodness. I don't actually have a 'chronic fatigue' diagnosis, but it's what I commonly experience. I think it's from the decades with Crohns and its daily fallout. Also, I'm due for my three-monthly B12 shot at the moment, so will be on the low end of the spectrum with that in my system. Having that on Monday. Looking forward to it as it does sometimes give me a noticable lift.

In response to: Re: A long rave

Re: A long rave

I think you're right about recovering from travel @Mazarita. It was huge for me to make those trips. On the trip to Canberra the plane was really small, only seated 19 people, and the pilots looked like teenagers! I spent the whole flight each way with my eyes shut doing relaxation breathing. The engines were loud as so close and every change of sound had me worrying. I won't do it again in a hurry, but it was good to be there for my kidult's birthday (to use @Faith-and-Hope's term). We had a conflict-free time (I spent quite a few periods biting my tongue!) and some nice outings - tumble class for my 3 year old grandaughter (lots of tantrums unfortunately), a BBQ at a large lake near their home, and the highlight was indoor heated swimming where I watched my grandaughter get the hang of floating, front and back. It was a delight to watch her realize she could do it.

I hope your shot on Monday does pick you up like you hope. It's no wonder you get low energy - the Crohns must mess with your nutrient absorption I imagine.

In response to: A long rave

Re: A long rave

thank you @Mazarita I was wondering why no one was writting back to me , I thought no one wants to talk to me

Hello @eth, @Appleblossom, @Former-Member, @CheerBear xx

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