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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

Good morning to you too @Bunniekins . Wondering if you're around now or still out walking? Not sure when your NDIS meeting is but thinking of you with that.

Hi to anyone else around at the moment. @Zoe7 @BryanaCamp @Adge @CheerBear @Appleblossom @Exoplanet @outlander @Shaz51

Have been thinking of you with love too @Mazarita just in case you see this. Every time I see that Star Trek is on I imagine you watching it. Hope your project is going really well.

In response to: Re: A long rave

Re: A long rave

@eth Good morning eth 🙂 am back from my walk with my neighbour. Am feeling pretty nervous about the whole ndis thing .... still not sure whether I will go or not. Am so over everything about it.

How are you going anyway? Did you sleep better last night? How is boofhead?

In response to: Re: A long rave

Re: A long rave

Hi @Bunniekins I did sleep better at first last night - had a 4 hour block which is rare for me, then a few 1 hr naps. Boofhead is leaving me alone, which is all I could hope for. Dog is being a total sweety, hanging near me most of the time.

If you want to talk about what the meeting is about you know you can do so with me. I know well the feelings you are having about it, but also now know how much it can change a life if you can persevere through their processes until you get what you deserve. Is anyone supporting you for these meetings?

In response to: Re: A long rave

Re: A long rave

@eth awww it is sweet that dog is following you around :). To be honest I really cannot talk about it. There are so many stressors regarding this whole ndis package that I really don't know if I can cope with it all. An example is my pdoc and mh nurse have organized to have someone come into the house and food prep for us ... I am stressing about that because I feel we are going to have the food tampered with .... it is part of my paranoia.

I just want us to be left alone .... hide under my covers and forget about everything.

In response to: Re: A long rave

Re: A long rave

@Bunniekins I get what you mean about wanting to be left alone. You seem to manage well to me. Why would they think you need food prep? If eating healthier is not one of your NDIS goals, you should be able to have 'choice and control' over what supports you receive - it's the catchphrase they use all the time. Can you tell your pdoc and mh nurse you just don't want it? There are other ways you can be supported I'm sure. Do you have a coordinator of supports? That's who you should be able to tell what you do and don't want. Essentially you are employing them, you are the customer and they need to keep you happy to keep their job.

In response to: Re: A long rave

Re: A long rave

Sorry @Bunniekins I don't mean to be pushy. Maybe you could tell them all that you need to postpone the meeting, give yourself more time. I have one support worker who offers to help with domestic chores and I just can't let her. It feels so invasive, and as if it would show I am really not coping.

One thing I did at one stage was go to the price list on the NDIS website and go through the whole thing to see what services I wanted to ask for and what I didn't want. It's a bit long but left me feeling more empowered to be assertive with them.

In response to: Re: A long rave

Re: A long rave

@eth You are not being pushy you are beinga friend :). I just feel my life is being invaded and I want to pull back on everything. I might just have a sickie tomorrow and let the powers that be talk and then they can get back to me later.

I will be seeing my psychiatrist today and I am going to broach with her my concerns about having these strangers in my house preparing my food, cleaning my house (she knows all about my delusions) etc. The closer it gets the more stressed out I become.

Anway enough about me. What are your plans today :)?

In response to: Re: A long rave

Re: A long rave

Have a bit of a busy day today @Bunniekins . SW comes at 10.30 and we bus it to and from my psychology appointment, back around 12.30. Then some grocery shopping for my sister's visit and the next 2 weeks ( so need to get onto my list before 10.30 rolls around). Have to get printer ink ($$) too. I'm sure there was something else I needed out in the world but can't remember just now. Then when we get back I want to make a leek tart (easy and yummy) to share with sis when she gets here later this evening. And at some stage really should shower and wash my hair (it's too long since I did either).

My coordinator of supports said she'd give me a list of numbers I might need for while the others are away and then cancelled her visit last Thurs and said she'd email it to me, and still hasn't done so. Too bad if anything had come up. I've also left a ph msg and had a sw email her about it on Monday but still no response yesterday. One of my sw's has stopped coming to me without any sort of goodbye or handover. CoS had also said she'd introduce me to a new one when we met. I am supposed to have support from the new one on Sat. My msg said my sister would be here Th and Fri so I needed to see them before then ... so now it looks like I'll have no support from this afternoon til after the weekend and that means making sure I have everything I might need today. The only alternative is to go out with someone I've never met on Sat afternoon and I won't do that. Too much anxiety, defeats the purpose of having a sw.

In response to: Re: A long rave

Re: A long rave

@eth I agree I hope it gets sorted for you quickly and that you get everything you need done today. Leek tart sounds yummy then again everything you cook sounds delicious to the pea :). You should start a thread call eth's recipies where you can write up your recipies and others can also add theirs. Good luck with today. I hope everything works well for you. xxxx

In response to: Re: A long rave

Re: A long rave

Thanks @Bunniekins . What do you have planned for today?

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