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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

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In response to: A long rave

Re: A long rave

Water tai chi starts again today and I'm going with a support worker. -- how was your afternoon @eth

Hello @Mazarita, @Zoe7, @CheerBear, @Adge

In response to: Re: A long rave

Re: A long rave

Good morning, @CheerBear, @eth, @Bunniekins and anyone else around this early morning. Just leaving this message to see if anyone is here for chat. Otherwise sending love and good wishes to all for the new day.

In response to: Re: A long rave

Re: A long rave

@Mazarita so good to see you 💗 How are you/how have you been the last couple of days?

In response to: Re: A long rave

Re: A long rave

@CheerBear, good to see you too.

I've been missing our early morning chats as well. But, even though I've been awake some mornings (or middle-of-the-nights), just couldn't get myself in here. Either too obsessed with what else I was doing on the computer to stop, or too tired to sit and look at a screen again after doing a big load of that.

I've also been having huge problems with dry eyes, which is limiting what I can do on the computer. This has been going on for some months now, but is getting worse. It's really quite bad. I cried over something the other day and there were no tears with it, though they should have been there.

I think at this point I'm getting a bit better than I was though. I feel myself calming down a bit from the decrease of the anti-depressant. Still doing a lot of video, but doing a lot more sleeping as well, which I so much need after at least a month of getting by on less than 4 hours a night. For 56 year old me, with all my health issues, that little sleep is really just not on. I'm feeling very tired almost all the time now and often struggling to keep my eyes open.

So, long answer to your question of how I am. Not great really, but better, I think.

How are you this morning? How have you been? I am out of the loop with what's been happening for you.

In response to: Re: A long rave

Re: A long rave

So glad to hear that you're maybe feeling a bit better with the med change @Mazarita. I very much understand not being able to/wanting to come on here at times. I say a quiet hi to you with my cuppa most mornings, hoping that you're doing OK.

Though I can see the good side of being energetic and a bit supercharged, it's exhausting and takes a toll if it goes for too long. The dry eyes sound horrible. Is that something that might be a result/made worse by the long stints of videoing?

I've been OK/good thanks. School holidays are here and with that come some challenges but also some great and I've been handling them pretty well. I have a couple of kid free nights as of last night, so my friend is here. It's nice to be able to spend a bit of time with him without kids around. Working through some med change wobbles and some hormones that have gone a bit bananas, but they're both mayyyybe settling now hopefully. I see my GP today so will chat with her about both.

Hows today looking for you?

In response to: Re: A long rave

Re: A long rave

Now that I've made it into the forum this morning, I wanted to reply to your 'rave' post a couple of days ago, @eth.

Hearing you about still being on the heavier med doses from your last hypomania in 2017. Feeling for your loss of creativity with that, especially since I remember well how creative and inspired you were at that time. Understand too that these are not things that can be forced when they are not happening, or are being seriously inhibited by our medical treatments.

I took some hope for you though in what you said too, especially that there is in fact talk now of possibly exploring dropping the doses in May, when loved ones get back from overseas. That might seem too far away with how you are feeling at the moment, but that time will come, it's not really that far away. Also, up until now, there hasn't been talk of reducing doses at all from what I remember. So it seems to me the first step has been taken in that direction now, a hopeful thing.

What you said about feeling like you might 'just need to try harder', I relate. I think we with MI get that judgement from other people a fair bit, even when it's not spoken out loud. Makes it all the more difficult to be less hard on ourselves, which can be a pretty miserable cycle, which is in fact the opposite of what is needed to empower us to be able to 'try harder. Vicious cycles.

That emotional numbness you spoke of is something I experience too, though less now since I came off the anti-psychotic medication. I'm also less stable overall for stopping that med, but it seems worth it to me, and also to my psychiatrist.

Great that you are continuing to do the water tai chi. How was it yesterday?

Hugs to you, and love.

In response to: Re: A long rave

Re: A long rave

@Mazarita@CheerBear@Exoplanet@eth@Zoe7@outlander wishing everyone a beautiful Wednesday. Love greenpea xxxx

In response to: Re: A long rave

Re: A long rave

Morning @Bunniekins 🙂 How are you going this morning?

In response to: Re: A long rave

Re: A long rave

@CheerBear Hi CheerBear I am well I hope you are too :).. I have to agree with @Mazarita from her post to @eth that giving up a antipsychotic can make one a bit unstable but brings on creativity. I am still pushing my pdoc but she wont have a bar of it sadly. Maybe I have to prove myself and down the line she might relent a bit..

In response to: Re: A long rave

Re: A long rave

@CheerBear, you are right about the 'exhausting' and 'taking a toll' when the supercharge goes on for too long. I think I've done the right thing though, before it went on way too long, by reducing the anti-depressant dose when I have. I kind of needed to let it go on for about a month before doing that, to see if it settled on its own and wasn't just a momentary thing. As you know, changing meds brings its own problems during the transitional period, and so shouldn't be done too impulsively, or without consideration of whether it's really needed. Hopefully now things will become increasingly settled and more balanced for a while from here.

The dry eyes, yes, doing a lot of computing can't be good. There are a lot of other contributing factors though.

I take an antihistamine daily to deal with an itch/rash side effect from my mood stabiliser. It's a nightmare if I don't take that. But antihistamines are the worst meds for dry eyes, as well as dry mouth and nose, which I'm also having big problems with too. On top of that, this drying issue is a known side effect of both the mood stabiliser I am taking, as well as the anti-depressant. So triple whammy with the meds, and pretty much dry everything at this time!

Other stuff contributing too, especially smoking makes it worse. But trying to give up smokes seems the hardest challenge of all, and a dried up old body even seems preferable at this time! Aging in itself is also a factor and many people suffer from the dry eyes, nose and mouth as we get older. There's even more that could be contributing, but I'm sure what I've written is enough! As you might have guessed, I've been consulting Dr Google about all this, to arrive at the perspectives here mentioned.

Great to hear you are handling the school holiday challenges well, and are enjoying the good times that go with it. Brilliant that you are getting a couple of kid-free nights too. Would be great if that could be an ongoing thing for you really, but great when it can be had nonetheless. Really nice to hear you've had some time alone with friend. I imagine that might be healing in relation to recent events, as well as just fun and rewarding in other ways too.

Med change and hormone wobbles, damned nuisances. Hope you get some assistance from your GP about those things today.

Today's looking pretty lovely at this moment in time. Woke after a few hours sleep in one chunk, to find gently rising light with soft birdsong in my courtyard, and a sweetly cooling breeze against my hot skin. The rest of the day will be moment by moment. I'm really not capable of more for now.

How is your today looking?

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