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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

Good morning, @eth. Wanted especially to send a message to you this morning. It has been a while in forum time since we've chatted. Really good to read about your weekend away, especially that the social aspect wasn't too stressful and went well. Sounds like there was a fair bit of physical work involved, which might be good in some ways, I imagine, though I'd find it very tough to get through that part of it. But it seems like that aspect of things at the farm might generate good feelings of connectedness and community purpose.

It's a huge week for me here. Travelled to a country town about an hour's drive from here on Sunday for a friend's book launch, and filmed the event while I was there. Since then I've been spending a huge amount of time editing it and have almost completed three separate videos for each of the performers, while also getting out to appointments this week, talking to mum on the phone and trying to organise some social support for her through her local council, and other stuff.

Today I have physio appointment, more phone calls for mum, more video, and various other bits and pieces that need sorting, also keeping up some domestic tasks. Tomorrow I need to spend the day watching videos for the competition I'm judging. Then on Friday I will be heading back to the country town to show my friend the videos, this time on my own on the bus, a much bigger trip for me on my own than usual! Looking forward to it with excitement but also trying to pace myself as best I can to keep a semblance of balance. So for me the forum is almost completely just the very early morning chats on another thread for now. Really happy to be reading your posts and news while I'm mostly away from this thread.

Good morning to everyone else who has been here lately too. I'm not tagging anyone else this morning as I can't get my head around replying properly. But I am reading with care and interest what's happening for everyone, and just supporting posts to let you know I am still here and hearing you.

Hope today is kind to all.

In response to: Re: A long rave

Re: A long rave

Morning @Mazarita @CheerBear @eth @Exoplanet and everyone

Hope physio goes ok and you can gwt your other things done Mazy

In response to: Re: A long rave

Re: A long rave

Thinking of you lots lovely @CheerBear and all the things happening for you. Lots and lots of these 🤗🤗🤗🤗🤗🤗❤❤❤❤❤❤❤❤

In response to: Re: A long rave

Re: A long rave

Thanks lovely ❤ Thinking of you also @outlander and everything you have going on.

Quick wave to all here 👋 I'm not visiting quite as often as usual at the moment, but keeping up with interest where I can.

@eth great to continue to hear about all the exciting things you have on and do. I thought of you yesterday as my NDIS plan came through. Just as I remember you mentioning you felt, I had a sense of relief then some overwhelm thinking of the changes and how to make sense of and manage it all. It's a whole new world. Will get there eventually though, I'm sure.

Hope the day is one with plenty of good feeling moments in it for all 💗

In response to: Re: A long rave

Re: A long rave

Thanks @CheerBear

Its abit of an anxious day here, we are on high alert for flooding so kids are with me today. Lots of movies any homework and staying inside!

In response to: Re: A long rave

Re: A long rave

Hi all Hope today has started nice and peacefully for you all. Haven't caught up on posts yet just wanted to quickly say Hi first.

Congratulations @CheerBear great to hear your plan came through quickly. Hoping it's enough to bring real change into your life. Which management option did you go for?

In response to: A long rave

Re: A long rave

Good morning @Mazarita @Zoe7 @Appleblossom @outlander @PeppiPatty and thanks for the greetings over the last couple of days. Missing connecting with more people here, but it's probably mostly due to me having been away a few days too.

In response to: Re: A long rave

Re: A long rave

I've been weather watching @outlander and it looks a bit bananas in some places. Hope you are able to find calm today and the weather ends up being a bit kinder than predicted.

Thanks @eth. It is definitely enough and far more than I expected or even imagined (high 60 and a good combo of flexible funding). I went self-managed but have funding for support so I can do that. I will be taking on board all you've shared again for this next stage. Hope your morning has started well eth 🙂

In response to: Re: A long rave

Re: A long rave

Hi @outlander really hoping you don't have flooding where you are.

@Mazarita hoping things go according to plan for you on these couple of super busy days.

@CheerBear Brave you going self-managed. I really hope that goes smoothly for you. I have a plan manager and a coordinator of supports, but still find I have to alert them when things aren't going right with invoices. And they're proving slow to sort out the glitches. My plan manager really should have realised what the problem was, but even now that she knows, the organisation making the errors is still getting it wrong.

In response to: Re: A long rave

Re: A long rave

I think self-managed was the only way I could go @eth, as I have a bit (a lot) of a control problem and the idea of anyone managing anything to do with me/my life is very difficult (more difficult than trying to figure it all out and do it myself, which says a lot haha).

Sorry to hear you are still having issues. It isn't right that you need to chase things up and that errors keep happening even though they're aware of them. Must be frustrating!
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