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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

Hi and good morning @Mazarita @Shaz51 @CheerBear @Zoe7 and anyone else who drops by here today.

In response to: A long rave

Re: A long rave

Yes work this afternoon @CheerBear I have sent off my planning so the principal should be happy with that at least No doubt she will pick it apart but that is something I can't control. I definitely over planned for today but knowing the kids a bit better now they should be able to cope with it.

The PD after the kids has left will be harder for me - going into it not knowing what they have alredy covered will be difficult but again - I have to find a way to deal with it. Looking forward to it being over and coming home to my babies to be honest.

In response to: Re: A long rave

Re: A long rave

Good morning @eth How are those shiny new teeth feeling today? Are you getting more used to them?

In response to: Re: A long rave

Re: A long rave

You're doing really well to keep on keeping on with it @Zoe7. Hope things work out OK today and the principal goes a little less hard on you 🤞

Hiya @eth. Hope your day is a good one 🙂

In response to: Re: A long rave

Re: A long rave

@Mazarita hope your aches and pains have gone away when you wake up today. I love your early morning raves. Yesterday sounds like it was very peaceful and productive - the best kind of day I reckon.

@CheerBear If there's any way I can help you prepare for tomorrow do let me know. The 2 main aspects of my planning meeting were 1. functional problems due to primary disability (on my worst days) and 2. goals. It's been sounding like you are well prepared all ready - you've got this!!

I've no solid plans for today - maybe a bit of dusting and sweeping, wash a few dishes, and if I get really carried away I could change my bed linen! But so far I'm just dagging in my pjs, wondering if anyone feels like a chat here.

In response to: Re: A long rave

Re: A long rave

We can only hope @CheerBear At least everything is ready to go and I can relax this morning. Hope everything goes oksy for you and middle today as well CB

In response to: Re: A long rave

Re: A long rave

Hey @Zoe7 the teeth are a bit better this morning - much better than they were by tea time last night. I struggled to eat a deconstructed taco! Thanks for asking.

You might have left for work already - hope your day goes well and according to plan.

@CheerBear I hope today's appointment goes really well for you and middle fish.

In response to: Re: A long rave

Re: A long rave

Forgot to say that the Queen movie - Bohemian Rhapsody - was absolutely brilliant. I highly recommend it to anyone whose life was touched by them.

In response to: Re: A long rave

Re: A long rave

Thanks heaps @eth. I dont know what else I could do now, aside from revise what I have. I have my original access stuff including quite a lot of detail and evidence from a few people on those functional impairments. I have also written up three goals and broken them into smaller steps so I have covered both broad and specific things. I kept the price guide in mind when I made them, trying to think where support may be able to be provided. I've gone through heaps of documents and examples of plans and goals, and completed the NDIS book (the planning one) and most of the Reimagine My Life one. I also went through some of the things you've shared in the NDIS thread. I think now it will be a matter of trying to keep my feelings in check today and tomorrow maybe, and going over it all (for the millionth time) to make sure I have it all in my head.

Gotta get through middles appointment first. They went off to school fairly well this morning and seem OK so far. I'll pick them up soonish and see how we go after. Thanks for the thoughts (and yours @Zoe7) ❤

Glad your teeth are better today. Hope you enjoy your quieter than usual sounding day.

In response to: Re: A long rave

Re: A long rave

I have heard wonderful things about the Queen movie @eth so great that you loved it. It is definitely one that I would like to see but not so keen on seeing it in a large theatre.

I only work half a day @eth in the afternoon for now - don't start until 12.30 so have plenty of time before I have to leave.

My thoughts are always with you @CheerBear - even when I am not around I am still walking with you CB

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