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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

Thanks for another morning chat, @CheerBear. Hope this day treats you way better than the last. Time for more zzzzs for me.

In response to: A long rave

Re: A long rave

Hi @Appleblossom I've only had to go on the myGov website once, to activate my plan. NDIS sends you an access code when you get your plan. My Plan Manager helped me and since then she takes care of all invoices, getting the funds from NDIS and paying them. If you ask to be plan managed and it is approved it will be funded in your plan. It gives you the most freedom about what supports you use (compared to Agency managed where NDIS does it all and you have to use NDIS registered providers), while at the same time removing the daunting and stressful tasks of self-managing. There is information about these 3 choices re managing your plan on their website.

I very much hope your appointment went well yesterday.

Good morning to anyone else around this morning @Mazarita @CheerBear @Zoe7 @outlander @Bunniekins and all. Haven't caught up on posts since yesterday morning yet. Heading out in 1/2 hour for psychologist and psychiatrist appointments. And a picnic lunch at the lake south of here. Then maybe the library if there's time to find out about book groups. Then home to cook for the clan again. Last night's chicken pot pie was a hit. Will do a vegie and tofu stirfry with hokkien noodles and an asian sauce tonight.

Hope today goes according to plan for all here.

In response to: Re: A long rave

Re: A long rave

@eth Good morning eth your day sounds great! is there room at the table for a little hungry pea tonight? 😄 xxxx

In response to: Re: A long rave

Re: A long rave

Hoping your day runs smoothly and you get everything done you want to do @eth.

Hi everyone else here on this thread @Mazarita @Bunniekins @CheerBear @outlander

In response to: Re: A long rave

Re: A long rave

Yes I have heard it is wise to get plan managed. @eth My head cant do NDIS at the moment. Too many pressing issues in current time. I have flagged it to my current team and to the Local Area Co-ordinator and they have given me time up to early next year.

Eg Yesterday I went to see Redress counsellor, but on the same floor I walked past some legal service for people with disabilities. She seemed to get our situation quickly. I have to follow that up, before Redress, and before NDIS.

Very Looooong Siggghhhh!

Hey @Former-Member Glad to see on the fringes but still around. Thinking of you. YOU taught me to write out Sigh!

Going Singing Tonight.

Have a good evening ALL

@Mazarita @Bunniekins @CheerBear @Exoplanet @Sophia1

In response to: Re: A long rave

Re: A long rave

A very early good morning, @CheerBear. Still the middle of the night for me really (no daylight savings). Felt you under the 'support' button a little while ago. If you feel like a chat, I am here. Otherwise, hope your day unfolds well.

In response to: Re: A long rave

Re: A long rave

Morning @Mazarita 🙂 Nice to see you again in the (very early) morning.

How are you going tonight/this morning? How was your yesterday?

In response to: Re: A long rave

Re: A long rave

@CheerBear, only a couple of hours sleep so far tonight. As usual of late, will be going back for more before too long. I'm feeling okay at the moment.

Yesterday I didn't do any of the things I planned and it was another day without leaving the flat. But I did make the bed (twice, as I napped during the day as well), unpacked and restacked the dishwasher, checked the mail (don't always do that!) and organised some things. A very slow day. Seemed like I needed more recovery time from the tough events of the weekend. I was tired and listless. Played spider solitaire on my mobile for possibly hours! Mood picked up when Star Trek came on TV at 4pm, and then again when C arrived home from work later. Evening was better than the day.

How was your yesterday? I saw on another thread that you had some flower appreciation going on.

In response to: Re: A long rave

Re: A long rave

Hi @outlander, just felt you under the 'support' button too. How are you going?

In response to: Re: A long rave

Re: A long rave

Feeling with you again with the flow on effect of the weekend @Mazarita. Good to hear there were a couple of things you did though. Bug hugs. I hope things feel a little less tiring and flat feeling for you soon. Wondering whether you have a psych appointment soon-ish and whether you might speak with her about this tough experience?

Yesterday was definitely a better day for me than the previous one thanks. I visited unwell person who is finally off to rehab today, and I spent heaps of time with flowers which made my soul feel good. I meant to post some roses somewhere that I saw - just so beautiful! Last year I came across this little rose garden which had more of a variety of roses than I'd seen before. I've been meaning to go for the last weeks but hadn't until yesterday. Really glad I did because they've almost finished flowering now. My highlight of the day for sure!

Hows today looking for you?

And a hi to @outlander whi I see is up also 🧡
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