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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

@Mazarita No air conditioning :o!!!!! facing west :o!!!!!! but we like the unit nontheless :). Will have lots of cat naps and will check on emails and postings thoughout the day but yes wont be up to much that is for sure.

In response to: A long rave

Re: A long rave

@Mazarita @Bunniekins Typical timing - we're all here in real time and pages are taking forever to load. So frustrating. Not sure if the problem is at this end or with the forums.

In response to: Re: A long rave

Re: A long rave

Yikes, @Bunniekins. I remember days like that (and worse) when I was living in the big city up here. Neither of the places we lived there had airconditioning, or even ceiling fans. I remember taking eight cold showers one day to keep cool! Makes very good sense to take it easy in that heat. Hope you get a nice change in the evening.

How have you been lately? What's been happening? Feels like I haven't caught up with your news for a little while.

In response to: Re: A long rave

Re: A long rave

@eth, that pages were loading very slowly for me just a few minutes ago, but seem to have picked up again now. Hope the same is happening on your end.

How have your outings with support workders been lately? Hope you enjoyed cooking dinner last night and were satisfied with the meal. Nice thinking of you sharing good food with loved ones.

In response to: Re: A long rave

Re: A long rave

@Mazarita Since I came back from Canberra my outings with sw's have been going well. Getting essentials done with a little spare time for pleasant moments like taking home made lunch to a lovely park between appointments. And time to get my hair cut on Wednesday this week as well as see the psychologist before and do my grocery shopping after. Water tai chi on Tuesday, and the Disability Expo last Saturday. I have a bag full of brochures from that which I haven't read through yet.

Dinner was ok last night but sil only reminded me at 5.20 that it needed to happen at 6 coz she goes to a ceramics class, so the pressure was on a bit. Bro helped me and we got it done and everyone seemed to enjoy it.

Where are you off to today?

In response to: Re: A long rave

Re: A long rave

The support workers seem to be working well for you, @eth, even if you like some more than others. Lunch in the park between appointments sounds great.

When I had my Phams support worker for a couple of years, it came to be like having a new friend. I miss her a bit, though I'm kind of glad I don't have her pushing me as much as she did at times. I feel like I'm able at this time in my life to move at my own pace, and keep growing my capacities.

Yesterday, with all the friendly exchanges with various people in the local area, I really felt how far I've come compared to the past, when I barely left the flat. Feeling at home in my community is a relatively new thing too, very welcome. You might remember that when I first came to the forum, I couldn't even get myself out of the flat to go to the doctors for needed prescriptions for psych meds. I still have times, like the three months of deep sleeping depression earlier in the year, where I withdraw again and don't leave the flat. But it seems easier to recover these days, and to get back into a rhythm with it.

Today I am going to the local shopping village to a shop that does clothing alterations, will see if they can do something with a dress I bought on ebay that doesn't fit me properly. Another errand after that, and then I will be home again.

In response to: Re: A long rave

Re: A long rave

@Mazarita Well I mentioned to my pdoc about easying off a bit on my meds and she said that if I did she would no longer be able to look after me!!!!:o. It is all due to my past which she knows about from the files of the gorgeous pdoc who left. I was in shock I said 'NO!' 'I want to keep you as my pdoc'. Then we started talking about my weight and stuff but the most important things that came out of it was my trauma ... even mentioning the word 'trauma' is as she put it 'a visible stab in the heart'. She said she can see it when she mentions varous triggers.She said she is willing to do the hard yards it could take 6 months it could take a year but I wont get better until I address these feeling of guilt that I have from when I was sick.

In response to: Re: A long rave

Re: A long rave

Good on you for telling your psychiatrist about wanting to reduce meds, @Bunniekins. Sorry her response was like that, would be disappointing, I know. How do you feel about it now? Will you keep doing it on your own without telling her? Or do you think she has your best interests at heart and that you might follow her treatment plan? So sorry you feel so guilty about stuff from the past. I'd suggest to keep doing the forgiveness exercise whenever those feelings arise. It's not a miracle cure, but I think it helps. I'm guessing though that your psychiatrist will be the most helpful part of overcoming that. Hope you find relief from it sooner rather than later.

I was doing the forgiveness exercise several times yesterday, when I thought about how selfish I am. I was also telling myself I don't need to be perfect. Perfectionism has been a bit of a deadly trait in me, quite crippling at times, and bad for relationships and my own self esteem. I've managed to back off from it to some degree, but it's still pretty strong in some aspects of my life.

In response to: Re: A long rave

Re: A long rave

Yes @Mazarita I feel like there could be a friendship develop with the one I have Tues and Wed. She fits the criteria I was looking for, and seems to 'get' me better than the others do. She also has education in disability support as well as professional and lived experience. So I'm more confident with her by my side than the others from a different organisation. I like them and they're all interesting in their own ways, with bits of common ground in each case, but they are 'peer' workers, with just the lived experience, not the education. I know the lived experience is valuable but I feel the education is important too, especially with things like knowing when to have boundaries on how much of their own stuff they share with me. I am meant to feel supported and it's harder when I feel called to empathise and support them too.

If that makes sense.

I'm glad to hear you are really feeling part of your community. It's a long time since I felt that and I do hope for it to develop here. You have come a long way and I see that you are increasing in resilience and the time to 'bounce back' is less than it used to be.

Hope the alterations place can fix you dress for you.

@Bunniekins sounds like your pdoc is being a bit tough on you. But it sounds like you really want to keep seeing her. I hope you can work out a strategy for weight loss with her. She obviously wants you to keep stable on the meds. It's a hard one isn't it? Having to put mental health above physical. There's at least a few of us on the forums that feel that way.

In response to: Re: A long rave

Re: A long rave

Yes @Mazarita I feel like there could be a friendship develop with the one I have Tues and Wed. She fits the criteria I was looking for, and seems to 'get' me better than the others do. She also has education in disability support as well as professional and lived experience. So I'm more confident with her by my side than the others from a different organisation. I like them and they're all interesting in their own ways, with bits of common ground in each case, but they are 'peer' workers, with just the lived experience, not the education. I know the lived experience is valuable but I feel the education is important too, especially with things like knowing when to have boundaries on how much of their own stuff they share with me. I am meant to feel supported and it's harder when I feel called to empathise and support them too.

If that makes sense.

I'm glad to hear you are really feeling part of your community. It's a long time since I felt that and I do hope for it to develop here. You have come a long way and I see that you are increasing in resilience and the time to 'bounce back' is less than it used to be.

Hope the alterations place can fix you dress for you.

@Bunniekins sounds like your pdoc is being a bit tough on you. But it sounds like you really want to keep seeing her. I hope you can work out a strategy for weight loss with her. She obviously wants you to keep stable on the meds. It's a hard one isn't it? Having to put mental health above physical. There's at least a few of us on the forums that feel that way.

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