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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

Sorry @outlander I just came on and saw you had replied to me. Still don't have any notification that you did. Hope you enjoy your art project and that life picks up for you soon. I've just had a do nothing day today but will be cooking for family tonight. Probably mexican beans, tacos and all the trimmings. Very easy to do and everyone likes it.

Hi to you too @Appleblossom just saw your 'support'. Sorry I forgot to tag you earlier. How are things going for you this week?

In response to: Re: A long rave

Re: A long rave

Thanks, No worries @eth

Its a Very Gently Bently week at our house, for both son and i. That mode may last til end of the month.

Thanks for tag @outlander Glad you have a new idea for art.

@Faith-and-Hope @CheerBear @Shaz51 @PeppiPatty @Bunniekins

@Mazarita Really pleased that you have a good pdoc and cardiologist.

In response to: A long rave

Re: A long rave

@CheerBear, @Mazarita, I missed you this morning , went back to bed at 1-40am this morning

Hello @outlander, @eth, @Appleblossom

In response to: Re: A long rave

Re: A long rave

Hi everyone, big day here, and thought I'd have a bit of a rave about it. This one is especially for @Exoplanet, who has said she likes my raves about my everyday adventures, as I like hers. I've been missing you from the forum lately, Exoplanet. Love to you.

Fasted last night for a blood test this morning. Was out the door early to bus it down to the local shopping village, where the pathology place is. The person who took my blood was a young man, which is quite a rare thing, I've found. While preparing for the test, we chatted about his American Indian ancestry, and I told him about the fraction of Maori in mine. I also told him about the mess a nurse at the hospital made of my arm trying to get an IV line in when I was in Emergency. It took three goes for them to get a line in, finally doing it in my hand. They said in hospital that my veins were difficult but the guy today said my veins were fine and nailed it, far less painfully, first go. I've been putting Fisiocrem on the worst of the bruising from hospital, it really was a terrible mess. That miracle ointment has taken down a lot of the bruising. Another yay for Fisiocrem, @Faith-and-Hope, another thanks for the recommendation.

After that, went around to a cafe that has a $10 toasted sandwich and coffee special, as I wanted something to eat pronto, and was in great need of coffee! I've been to this cafe quite a few times and took my mum in there last time she was here. As is often the case with my very friendly mum, she got to chatting with the owner of the cafe, who sat with us for quite a while on that occasion. She and I have always been friendly since then every time I've been in. Though I haven't been in for months now, she remembered me again today and we had a little chat. She also remembered mum and I told her she was coming up here next year and that I'd have to bring her in again. Smiles all round.

Then I checked out the place next door that does clothing alterations. I have a summer dress I bought on ebay that doesn't fit properly. I love the fabric and it fits on the top, but is way too voluminous on the bottom, and too long. So I'll be taking that in tomorrow to see if they can do anything with it. After that, I checked out a couple of op shops and bought a really nice cotton shirt for C for $3, along with a nice necklace for me for another $3.

Then went around to the chemist, sorted a prescription and bought some other health care items. Also took my own blood pressure while I was there and recorded it on the card they've given me for that, which can then be shown to my doctor. The friendly woman behind the counter talked me into signing up for a card that gives 10% discount on non-med items. I usually don't sign up for those things because they take all your personal details and I often don't trust companies not to sell that information to third parties for advertising. We already have enough trouble with endless marketing and scam phone calls on the landline! But she convinced me it was worth it, so there is one more card in my purse now, to add to the very small number I have. I'm proud of the simplicity of my finances.

After that I bussed it home and took some time out before heading off again about half an hour later to my GP, involving another bus ride to the shopping village in the next suburb in the opposite direction.

The headache I had for six days coinciding with the heart scare, went away for a day and then came back again yesterday. It was still with me today, and wasn't helped by walking around in the heat. I have to walk up a bit of a hill to get to my GPs and by the time I got there, my head was really throbbing. I closed my eyes in the waiting room, trying to relax my muscles and do some deep breathing. I was eyes closed like that when the GP called my name.

I told her about the continuing headache and about the strange, deep, strong pain I've been getting in my thigh, unlike anything I've had before. It doesn't feel muscular and it doesn't feel like it's related to the bone. Because it has coincided with the recent chest pain and elevated blood pressure, I wanted to rule out the possibility of thrombosis. I was also thinking of the three months of sleeping 18 hours a day that I had earlier in the year and that I am not getting much exercise because the physios have told me rest my legs from doing my 2km walks. That kind of thing is the kind of lifestyle that might give rise to thrombosis.

My GP examined my leg and saw no overt signs of that, but told me to come back if the pain continued or got worse. I also told her about the white noise I've had in my head 24/7, for a long time, which pulses and sounds like my blood pumping. She took my blood pressure and heart rate again and they were again higher. She told me I may need to start taking medication for hypertension. We are going to wait for the result of the cardio stress test in two weeks time before deciding on that.

After that I walked back down to that village and went to the optometrist. For about the past three or four months they have texted me multiple times, sent a letter, and two days ago rang me, all trying to get me to make a bulk-billed appointment for an annual eye test. I hadn't answered any of these messages because I am satisfied with my glasses and really can't afford to have the lenses replaced, even if a test showed I needed that. I went in to chat about this with them, and possibly put and end to their badgering! But the nice guy behind the counter explained that the main reason they want me to do the test is to monitor my eye health. He also said most people only change their lenses every two years. So I made an appointment for Monday.

Bus home again, came in the door and basically collapsed in the armchair. Fell asleep without meaning too, woke up to the sound of my own snoring, lol. Then rang my mum to give her my latest health update, which she asked me to promise I would do after the GP appointment. Then it was Star Trek time and I was happy and entertained for two hours.

I had so many pleasant exchanges in my travels today, with bus drivers, shop people, nurses at the medical centre and others. These fleeting exchanges might be superficial, but they make me feel like I belong in this local community. I should do really. I've been in this area for over ten years now.

C came home towards the end of Star Trek and I gave him his $3 shirt, which fits him perfectly and he likes. Eggs on toast for dinner, then some pleasant chat for a while between us.

And now I am here, raving on as I often do here. Thanks, as usual, to anyone who made it this far.

But wait, there's more!

@Faith-and-Hope, thanks for posting the lovely image this morning.

@eth, sorry to hear about your disturbing dream. Hope those kind of dreams leave you in peace tonight, and beyond. Great that you were able to get through such a big day yesterday, but I know that feeling of being whacked afterwards. Hope you enjoyed cooking dinner tonight, and that it was appreciated.

@outlander, always good to see your hellos and emojis. Sending hugs for the tough stuff and pats on the back for putting one foot in front of the other. Glad to hear you might be getting in to a new art project.

@Appleblossom, 'gently bentley' has been a familiar saying on the forum for years now, I think. You probably coined it. I am interested in the forum lingo. We do repeat phrases and develop a common language with these things. I find it homey and comforting. Thanks for your nice words about the good medical care I'm getting. Hope you and your son enjoy this quieter, gentler month.

@Shaz51, I saw you were around unusually late last night, when I was on one of my wake breaks. I was too tired to start chatting at that time, and went back to bed not long after. How is your health going lately? I've been thinking of what you go through with it all, while going through my own stuff lately. Hugs, my scotirish sister.

Well, this may be the longest rave I've ever posted!

Will leave it here by wishing @everyone a good night and a better tomorrow.

In response to: Re: A long rave

Re: A long rave

Hi @CheerBear, just found your 'support' in email notifications. Here if you feel like chatting.

In response to: Re: A long rave

Re: A long rave

Morning @Mazarita. I woke at my now usual very silly o'clock and am wandering around here catching up. I loved logging on and seeing your rave 🙂

How has your night been?

In response to: Re: A long rave

Re: A long rave

Silly o'clock is a phrase I love and relate to, @CheerBear. Glad you enjoyed my ravings.

About two hours sleep here so far. I've been wandering social media, reading news and catching up on unread tweets from people I follow. Had a few giggles along the way. Why am not in bed? Seems I'd rather be aimlessly checking out the internet!

In response to: Re: A long rave

Re: A long rave

Haha I can relate to the aimless internet checking out @Mazarita. The forum is the only kind of social media I have but I can still find myself reading about all kinds of things beyond here.

It's really warm here this morning. One of those too hot for much sleep nights last night.

Hows your Friday looking?

In response to: Re: A long rave

Re: A long rave

I remember those 'too hot to sleep nights' from when I was living down south, @CheerBear. Despite cold, grey, depressing winters, there were patches of summer that were like living in a desert. One time I went out driving at about 3am, after lying sleeplessly hot for hours. Half the city seemed to be similarly sleepless and out on the streets. There were people roller blading!

Today I probably won't do much in the morning after the big day yesterday, and small sleep tonight. Sometime during the day I want to go to the local village for some more errands. Then I really need to get on to some cleaning tasks here for the flat inspection on Monday!

In response to: Re: A long rave

Re: A long rave

That sounds very much like the kind of night we had last night @Mazarita. I've spotted more people waking by at this time than usual. We live on a busy road near a bus stop and small shops that are a bit of a hangout spot even when closed. There are so many characters to and fro-ing throughout the day and night, many with such routine that they come past at the same time every day. It's interesting to wonder who they are and what they're doing.

Do you have much in the way of cleaning to do? Our post-house inspection sparkle lasted about 5 minutes (thanks kids) 😉
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