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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

@Appleblossom

In response to: Re: A long rave

Re: A long rave

Hi @Appleblossom I saw another article in the smh the morning after that announcement and it said labour won't support the funds being taken from NDIS so the Bill won't get passed. Here's hoping it was accurate.

In response to: Re: A long rave

Re: A long rave

@eth I hope so. That article was discussed on my facebook feed too.

We also had a great humble and influential muso die last night. His educational and social ideas were ahead of his time and much needed in a mad mad world.

Vale Richard Gill.

In response to: Re: A long rave

Re: A long rave

Sorry to hear that @Appleblossom. RIP

In response to: Re: A long rave

Re: A long rave

He only conducted for me twice, but he was obviously well loved. The last time was a few years ago and he was already unwell then but it was in his untiring work to bring music to people that he was very special. Classical elitism does not tend to bother real people.

A band went to his house and played his favourite piece outside in the street. The neighbours did not complain about the music.

For me, in my personal development or life journey, it meant that when his name was mentioned I could be in agreement with the speaker. Also that my ability to read body language was not that bad, nor my ability to read the social situation.

His existence gives me hope.

In response to: A long rave

Re: A long rave

Thanks @Mazarita I've been doing that hand on heart & saying "I forgive you".

Like you said you do.

My psych has never mentioned helpful things like that.

I have many regrets over things that I had no control over - someone else did them.

Adge

In response to: Re: A long rave

Re: A long rave

Good morning, @Bunniekins. Just found a notification that you were under the 'support' button about ten minutes ago. Wonder if you are still around and might like to chat.

Good morning, @CheerBear, love your way this morning.

Good morning, @eth, I know that you are sometimes around at this time too.

Good morning, anyone else who might be around too. Here for a bit of chat if you feel like it.

Otherwise, sending kind morning wishes to all.

In response to: Re: A long rave

Re: A long rave

Hi everyone, have taken some time this morning to respond to yesterday's posts. Thank you all for the words you post here. Reading and replying to the posts here makes me feel very connected. I am honoured that you have chosen to be part of this thread over time, at whatever level is comfortable and helpful.

@Bunniekins, @Adge, it warms my heart that you are both finding the forgiveness exercise helpful. I know that @eth has sometimes tried this technique too. I am imagining us all doing it together, strengthening the spirit of forgiveness.

@eth, wise that you and your support worker took a break at the expo after the initial half hour, and focussed your priorities on just ten places of interest. Another yuk to the guy from 'clickability'. I've had some weird experiences with people invading my personal space over time too, not at all pleasant. Pity about the expense of travel support. I have fairly negative views about the NDIS, as you know, and its effect on the whole mental health sector, including the increased scrambling for money by service providers. It's almost like mental health care organisations have been privatised as profit making entities now, where before they seemed much more like compassionate community organisations. In reality, I'm guessing that it's because their funding has become much less reliable and consistent. They seem to be having to fight for it more now. Anyway, I will step away from my soap box now and ask instead how yesterday was for you?

I had a good weekend overall. We visited our close friend on Saturday night, good to see her and her brother. I'm only seeing her about once a week lately, which may be more balanced than before. We used to joke about how we were 'co-dependent' on each other. I'm not a fan of the 'co-dependency' concept, hence making jokes about it. But seeing each other every two days, as we did for about a year, might have been a bit over the top. Since we've been stretching out the visits, we have both been getting a bit more done in our own lives. Plus we have more to talk about after a longer time between visits! Both of us seem to be content enough with this natural evolution in our long friendship.

Yesterday, I had a long, enjoyable session of video editing. I was pleased that I did most of it during the daytime hours, instead of in the middle of the night, as has almost always been the case over the past four years. I had wondered if I would be even able to do it during the day, which is far less peaceful and clear for the headspace than the late night. Yesterday seemed to indicate that I might be able to continue to do it now during the day and early evening, preferably no later than 8pm in the evening, thereby encouraging better sleep rhythms. Having said that, and despite not doing the all-nighters for many months now, my sleep patterns are still quite disordered, in a different way. I am guessing this will be a focus of some discussion with my psychiatrist yet again, when I see him in the near future.

@Sophia1, feeling for your withdrawal from sleep medication. As you might know, I've been through a rollercoaster this year, most of it related to various changes in my medications. From what I understand, the class of medication you might have been taking can be addictive. So I'd be guessing the intensified anxiety might be strongly related to this. If it was me, I'd proably take the prn to ease the process. But, depending on what class of medication that is, I'd be watching out for getting addicted to that instead! Very glad to hear you are seeing your therapist today to discuss matters, as it's always better to do these things with advice and collaboration from our psych support people. In any case, I support you in however you do things, and send you hugs for what you are going through. Hope the music helped calm your spirit when you were struggling with it all yesterday. How lovely that you record videos of animals on your phone. I can imagine yesterday's parrot. Would be great to see your videos, but I'm not sure videos can be uploaded here on the forum. Can they? I know we can't link to our own videos on other sites anymore, even when we have an anonymous account there too. It's good to hear you are caring for yourself in general. How do you feel in your ongoing recovery from surgery?

@outlander, not up to speed at all with where you are at with things at the moment. Mainly just writing here in the mornings at the moment, and spending the rest of the day doing things in my real life. Hugs to you anyway, for whatever might be troubling you at present.

@Appleblossom, awesome to hear you had such a wonderful time with the singing and socialising over the days you were away from here. It always feel special to be invited to gatherings around tables after being involved in projects together. That warm hearted feeling of being included. Great too that you were kindly driven to the train. Those people seem to care for and respect you. Thanks for your lovely words about my posts. In regards what you said about the big difference between your music and mental health worlds, I relate. There still seems to be a big divide in my case, but I'm slowly working on bridging the gap by being more open about my mental health issues with artistic friends and collaborators. It's a scary process for me to do this quite often, but so far it seems to be working out okay. I feel more integrated when I can do this.

@Exoplanet, sending loads of love your way, my friend. Look forward to your next instalment in your daily life adventures.

Best to all.

In response to: Re: A long rave

Re: A long rave

@Mazarita Hi Mazzy I was under the support button 🙂 then went back for a cat nap and then got son out the door for day program and then got some stuff done and daughter up so am back now 😄 xx

In response to: Re: A long rave

Re: A long rave

Snap, @Bunniekins, we posted at almost the same time. Great minds post alike.

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