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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

@Former-Member

I'm thinking about you. My husband had some bad reactions to his present dillema and the Psych medication thathe is on.....We are both 50 years old.

You are a caring person....how you write about your Mum is insightful and so empathetic....Your message is very clever and insightful about you. I so go on tangents.......

In response to: A long rave

Re: A long rave

Hi @Mazarita,

What did @Appleblossom write ?

Can I answer your clever message on medication tomorrow ?

Is'nt Chrons disease a very bad condition ?

I must see Reign. I've written 8000 words on my novel. The people who havee read it think it's good. I now have a historian helping me.........

In response to: Re: A long rave

Re: A long rave

Great news with your novel, @PeppiPatty. Awesome that the historian is helping you! What period is the setting? Yes, the long rave idea for me is that I get to release some things off my mind. If there's a reply, that's great. If not, that's fine too. Otherwise there's chat. Crohns is a bad condition. The severity is on a spectrum and I consider myself relatively lucky so far, even with two surgeries. In most if not all cases, there is strong, sometimes excrutiating, pain involved, and yucky medical procedures that are embarrassing, make me sick or are painful in themselves. People go through worse things, but I wouldn't wish Crohns on anyone.

Edit: p.s. the comment that @Appleblossom and I were referring to was a gastroenterologist who once told me I 'wouldn't have time to be depressed if I had a baby'.

In response to: Re: A long rave

Re: A long rave

Good night Mazy @Mazarita, Claire @outlander, @Faith-and-Hope, @Shaz51, Sis @Former-Member, @Owlunar, @PeppiPatty{Thank you for thinking of me}, @CheerBear, @Appleblossom, @eth

In response to: Re: A long rave

Re: A long rave

Is "A long Rave," ......"Night Shift" another brain child beginning from you ?

The Doctor who talked to you :

That is a terrible thing to say. I'm so sorry.

Being an ex 60 hour a week support worker in the community, I have many interesting tales of the depressed/suicidal Mother after giving birth. Not.

Yes. My novel is very exciting for myself. It is set 607 AD in England. I'm trying to keep it as factual asI can. There is little written on these times......

I need to sleepy bye but @Mazarita its wonderful re connecting

In response to: Re: A long rave

Re: A long rave

Hope to write to you and back @Former-Member

Nighty night

In response to: Re: A long rave

Re: A long rave

Hi @PeppiPatty long time no see !

Hi too to @Former-Member @Appleblossom

Hey @Mazarita

I'm around now if anyone feels like a chat.

In response to: A long rave

Re: A long rave

Good morning @Mazarita. I'm sorry I didn't respond to your post sharing about the Crohn's yesterday. I was having a pity party.

It must be really draining to have to go through the diagnostics and treatment over and over. I feel for you.

The comment that gastro dr made is just so far out of line. And such statements can echo on us for years.

When I was 27 and had a 2 year old child who'd been 3 months premmie due to a Dr's accident, was (and still is) legally blind, and had delays in gross and fine motor development, I had major post-natal depression (worse for me than any depression I'd had in earlier years). A 'good friend' who was a nurse said to me "Aren't you over that yet?" This comment still echos on me even tho' my kid is nearly 29, fighting fit and fiercely independent. This is all a round about way of saying I understand. What she (your gastro dr) said was outrageous and unprofessional. And bullshit, quite frankly.

I truly hope you are not facing more surgery, with the risks around it that you mention.

Hopefully your MH therapy team can work out a med regime that prevents the bipolar being triggered, and any other side-effects are properly managed for you quickly.

I share your difficulty in being more assertive with doctors. They have some sort of power to influence the course of our lives. I think that's what it boils down to. And some of them really know it and hold it over us. It's no wonder we develop that response to them. I hear you on that.

Sending you all my best wishes and hugs. Remember to do little things to treat yourself while going through this. If meditating, visualizations might be helpful e.g. place a colour wheel over the trouble area. See it starting to rotate and gradually spinning faster and faster until all the colours merge and it becomes a spinning wheel of bright white light. Or imagine you are encapsulated by a bubble. Picture it going through all the colours of the rainbow one by one. When in each colour also focus on your breathing, deep and slow and count it if you need to. In to 4 or 6, out for 4 or 6. Stay in each colour for a few of these breath. Take care my friend

In response to: Re: A long rave

Re: A long rave

Hi @eth, hugs and thank you for such a kind post about my crohns anxieties. I am jumping the gun on them really, haven't even had the next test yet (not that I want to). Brain galloping away with bad memories and future projections. But I'm feeling better this morning. Had a solid night's sleep from about 1am with only one awakening, for a short time. Still going to take it easy today, nothing planned. I am pretty speechless about the latest news for you from the NDIS. It seems to augur badly for many if they don't consider bipolar 1 a permanent disability, when scientifically it is know to be just that, and 80% genetic at that (Black Dog Institute). I am angry on your behalf. How are you travelling with the news at this point? Who is able to comfort and support you about this in real life? I'm guessing your SIL and brother would be disappointed on your behalf too.

Hi @PeppiPatty, interesting and mysterious time of history to write about. I wish you so well with this big project. Yes, it's always great when you are around, PP. I totally understand the need for breaks from the forum too. What you have been going through in real life is intense and it's no wonder you wanted to give your energy there.

Hi @Former-Member, missed your goodnight last night, as I sometimes do. I think by now you might already be off to the centre of your universe. Thinking of you and sending strength and love for this visit.

Hi @Appleblossom, and everyone passing through. Good vibes for today to you.

In response to: Re: A long rave

Re: A long rave

Hi @Mazarita I'm glad you're feeling better this morning and thanks for your response about NDIS news. At this stage I'm just keeping my mind focussed on other things. Also had a night out last night with bro and sil and a group of people including musicians we then went on to see perform. I actually handled being in a pub environment for the first time in years. Moments of anxiety but also moments of realizing I could go outside for a smoke with other members of the group who I'd only just met, and even had a short dance. It was like I was observing myself and recognizing I've progressed re cPTSD responses in a crowd. However it meant I didn't take my meds until 3 hours later than usual, so my head's been a bit foggy this morning.

Not sure yet what response to the NDIS matter will develop. Mostly I'm feeling like walking away from the whole business. But I will give it a little time before making a decision about this. SIL and bro are very supportive on the issue and how it affects me. SIL has done so much work on this for me so she too is angry.

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