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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

Yes, it makes sense, @eth. Choosing our reactions is something desirable under many circumstances really. I guess I basically accept that, with bipolar, I need to minimise stress as much as possible, to minimise those triggering times. But anything that can help build resilience seems worthwhile too. As you say, there are stresses beyond our control.

In response to: A long rave

Re: A long rave

@Mazarita above post edited.

In response to: Re: A long rave

Re: A long rave

Yes, noticed you had edited after I'd posted, @eth. Damn autocorrect! Hyphens help with that sometimes.

In response to: Re: A long rave

Re: A long rave

@eth I'm heading back to bed now. Catch you later today, hopefully. ox

In response to: Re: A long rave

Re: A long rave

I did edit it to add something @Mazarita but a word in what I added was moderated, not auto-corrected. I'm on the laptop and it doesn't autocorrect.

If I want to operate independently in the world again, and I really do, I simply must get over a lot of the things that bring up cPTSD reactions. The psychologist I see can't start the EMDR I was referred to her for until my meds stabilize. So frustrating. I've only one session left on the MHCP and after that will have no medicare rebate again until next year. I've decided to just pay for the sessions and keep going anyway coz even the talks we have so far are really helpful. She has said she'll put her price down, but I don't know how much. She's worth it anyway and I do have a little savings from the last few years in Darwin. Even on a pension, I was doing so little that it was possible to save.

She is trying to get registered as a therapist with Victims of Crime so she can continue to work with me for free. She also registered as a provider with NDIS.

NDIS developments lately sent me downwards Friday and I haven't spoken about it. There is still a slim hope I'll get through and the rest is another story

In response to: Re: A long rave

Re: A long rave

Oh @eth, I'll post again before sleeping... so sorry to hear you have had discouraging news with the NDIS. I'm keeping fingers crossed the slim hope is what comes to fruition. Will be able to listen and response to you more about this when we next chat, I hope. Hugs.

In response to: Re: A long rave

Re: A long rave

Nite nite @Mazarita

In response to: Re: A long rave

Re: A long rave

Good Morning my magical friend Mazy I hope you have fun and excitement today @Mazarita

In response to: Re: A long rave

Re: A long rave

Lovely to see you this morning, Niqua. Bit of a challenging day here with two medical appointments (dental in morn, surgeon in arvo). Nasty examination as part of surgeon visit. Not looking forward to it but glad I'm up and around today and not (yet!) contemplating cancelling out of fear. Hope there are some bright rays of inner sunshine hitting your inner ground today. Streaming love to you.

@Former-Member

In response to: Re: A long rave

Re: A long rave

Streaming the love and courage back to you Mazy

@Mazarita

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