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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

Morning everyone

Wondering how your day was yesterday @Mazarita. 💗 for you

Great to hear your NDIS call went well @Appleblossom. I was told that the wait for my planning meeting may be around nine months (which was pretty crushing). It's a long process but hopefully it will be really worth it once we're through.

The bookweek thing was lovely thanks @Shaz51. The big kids did some reading to us and then we sat with the little ones while the teachers read a story to them. Hugs for you with everything you manage with your family and your health.

Hi to all. Hoping the day starts off and goes well for everyone.

In response to: Re: A long rave

Re: A long rave

Good morning, @CheerBear. Sorry to hear that you and @Appleblossom have such long waits for further processing of ndis matters. I hope it is worth it when it comes through for you both. Glad the bookweek event went well for family.

I had another collapsed day yesterday, didn't manage a beach walk or the washing. But despite the continuing sleep and lack of motivation, I did feel a bit more cheerful, and was less bothered by the streams of unwanted random memories that have been troubling me of late. So, a better day, even if not productive.

@eth, hope the cold is subsiding and that you enjoy your Saturday. Wondering how your meeting went yesterday.

@Shaz51, hope your health treats you well today, and that Mr Shaz's renewed interest in photography continues.

@Exoplanet, thinking of you and wondering how you are going and what you have planned this weekend.

Back to bed for me now but sending good wishes to everyone for this day.

In response to: Re: A long rave

Re: A long rave

Good morning @Mazarita @CheerBear @Shaz51 @Appleblossom and anyone else around today.

@Mazarita hope today is better for you than yesterday. Glad to hear you're feeling a bit better when awake. My appointment went well, I like the support worker. But she can only do alternate sunday afternoons starting 9 September. She said she can help with community engagement, travel training and technology up-skilling so that's good.

@Appleblossom and @CheerBear I think it's outrageous that NDIS is stating such long waiting times. Hopefully you will retain your current supports in the meanwhile. I lost mine as soon as I was accepted and am still trying to put new ones in place.

@Shaz51 Hope you get some relief with the new med.

In response to: Re: A long rave

Re: A long rave

Sorry to hear yesterday didn't work out as you'd hoped @Mazarita. Hope the more cheerful and less bothered feelings stick around.

Hey @eth. Good to hear you're finally seeing some support through the NDIS even if it isn't perfect. A type of my exisiting support (the one that "reduces the need for invasive intervention" - pretty important I think 😏) is decreasing with the rollout and I'll be lucky to see a planning meeting before it completely ends. I internally cracked at hearing the wait and it was what kicked off my very less than awesome week that just was. I mentioned how nine months with wonky support may as well be an eternity in my situation. I'll find a way to put other supports in place, but yep it is outrageous. Holding on to hope that it will be worth it and trying to find things that feel good in the meantime will be my goal. Vegetable garden at the moment.

In response to: Re: A long rave

Re: A long rave

Hello Everyone 🙂

I've finished clipping up the second roll of wire & have connected the 2nd hand stuff to it - boy was that a task, lots of scratches & things on my hands now + a couple of holes to repair in that 2nd had stuff; but I finished clearing the bottom wire of the existing fence & now have the netting completely rolled out & covering the whole house yard 🙂 . . . still have to clip the 2nd hand stuff on, which is going to be easier said than done, but I think I have effectively stopped the little fella getting out 😄 😄 😄

I can't remember if I've said about the local fence contractor is definitely going to do the boundary fence, but it won't be until October - that's Ok, it'll give me time to get the last of the plain wire together {still have to get 3000 mts}.

Blowing you kisses to help inflate you heart & soul Mazy @Mazarita

Sending you tiny little knitted hearts Cheerbear ❤️

I found this gify & immediately thought of you Cheerbear 🙂 @CheerBear

Love to all

@eth @Shaz51 @Appleblossom @outlander @Sophia1 @Bunniekins @Teej @Faith-and-Hope

In response to: Re: A long rave

Re: A long rave

morning @CheerBear, @Mazarita, @eth

Sorry to hear yesterday didn't work out as you'd hoped @Mazarita.

this morning we went for a drive at 5 am to take photos of the sunrise at the beach an hour away

Hello @Faith-and-Hope, @Appleblossom

In response to: Re: A long rave

Re: A long rave

good morning @Exoplanet

In response to: Re: A long rave

Re: A long rave

Oh @Exoplanet - I love that gif! It gave me a huge smile thanks 😊 What a huge job with the fencing! Go you

Beautiful photos @Shaz51 💗

In response to: Re: A long rave

Re: A long rave

Hi @CheerBear @Shaz51 @Exoplanet

Great pictures Shaz and nice gif Exoplanet

CheerBear sounds like you are staying as positively focussed as you can. I commend you!

In response to: Re: A long rave

Re: A long rave

hello @eth @CheerBear@Shaz51 @Exoplanet@Mazarita@Appleblossom

Lovely images @Exoplanet...

for those of you feeling unwell in mind ..body..or both...I wish for you some relief and improvement soon...

great that Mr Shaz is enthused about the photography again @Shaz51...that is a lovely interest to share....also for memories to look back on..

@Exoplanet .you truly are a ray of sunshine... you have achieved so much...a classic example of persistence and determination....knowing that your dog cannot get out now would be a huge weight off of your mind....

@CheerBear the antics of your young ones bring back memories of my two...especially my older son...it was though he had no fear....led him to have a few injuries over the years...

@eth

Pleased to hear that the wheel has begun turning for you no matter how slow....or even bogged for a while....You have done this....remind yourself how far you have come...all of the cartwheels you have performed..

@Mazarita I am not sure if your lengthy period of sleeping are still as a result of change in medication types...dosages...they can play such havoc with the body....I know that you will get through this period and you have hope for an improved life with the new medications kicking in...

@Appleblossom So sorry can read back far enough to know what is happening for you...I do hope that your life is moving in the direction you want it to..

I have a couple of new issues as a result of seeing specialist 16/1...another referral to an associate specialist for this coming monday...in the meantime...blood in urine but not thought to be infection...on antibiotics in case as do have random pain..doctor believes possibly from internal examination by last specialist...

I was managing that stuff...then sore throat this morning...stayed in bed...have no energy...motivation...with a swollen sore throat thrown in now and the usual viral body aches...I eventually arose just after 11am...feel like crap....

am going to force myself outside for a walk around the garden at least...

take care alll

the odd thing about all of this or not really odd in our case...twin rang to discuss she had infection last week...that same evening my complication started...she is also recovering from a lung infection that started with a cough

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