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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

Hi @Sophia1 sorry to hear of your serious-sounding symptom. Hope it's resolved quickly. And hope you don't go down with the flu on top of all that you deal with already. Best wishes for healing x

Anyone around at the moment?

In response to: Re: A long rave

Re: A long rave

@Mazarita Hope your rest helps.

We are back to putting sleep issues on priority in this house. I am not too bad. I sleep more than I want but try and get a little activity each day, but my son manages his in a way that is painful to see, and must be painful for him.

@CheerBear@Sophia1@eth Hi

I am alright about the ndis wait. I feel happy with the level of support in my current situation, but have no idea what my future plan will entail.

My cmh workers have been priming me well for each step. Managing of expectations is so important. Maybe it is because I was a public servant, (but that was 30 years ago) or maybe I had so much change as a child that I take it for granted. I just found it nice that a lady who is part of my service volunteered to do my phone call with me while my regular worker was on holiday. I am so used to doing everything on my own, it was good to have company. I am mostly concerned for how ndis will pan out for my son.

Oh @Shaz51 those photos are beautiful. Lifting the spirit.

Thanks all ... for being around ...

In response to: Re: A long rave

Re: A long rave

I'm glad to hear you've got some support with it all @Appleblossom. It makes a huge difference. btw you can request a face to face meeting with NDIS - it seems to go better for people to get what they need than doing it over the phone.

In response to: Re: A long rave

Re: A long rave

Thanks @eth

Thats exactly what the worker said yesterday ... for the next stage ... tho apparently people were falling through the cracks if they were not supported and tried to do it all by themselves. I took note of your thread and have taken each step as it came ... it was refreshing for me that I had people irl to walk with me ... and they promised to stay involved until transition ... and ... had a few workbooks which I will eventually work through ...

I will also looks at some webinars through Carers ... re my son ... who often makes things harder and thus gets more of a run around ... still have to deal with some legal and centrelink stuff for him ... plus depression and his sleeping a lot atm. Tomorrow his gf comes over ... but I am trying to get him stable on his own ground and not become co-dependent ... she has her own problems.

If I had not seen what was available on here I would not have managed to get my health care team.

Hugz to all who contribute to this thread.

In response to: A long rave

Re: A long rave

Noticed your like before @Mazarita thought id pop in here and say hello

In response to: Re: A long rave

Re: A long rave

Hi @outlander. Saw your crochet project, looks great! You have made very fast progress with it. How are you going aside from that?

In response to: Re: A long rave

Re: A long rave

Thanks @Mazarita its taken me a few days to get it like that.
I think ive caught a stomach bug or have food poisioning. Not feeling well since about midday today.

How are you going?

In response to: Re: A long rave

Re: A long rave

Sorry you are not feeling well, @outlander. I've still been sleeping massive amounts but am more cheerful and alert when awake than I have been. Trying to keep myself from going to bed too early tonight as I only got up at 6.30pm after sleeping most of the day, as well as last night.

In response to: Re: A long rave

Re: A long rave

Sleeps still a trouble huh @Mazarita
I slept 12 hrs last night too. Didn't make much difference to me.
Its good to hear your more cheerful though than thr past few days.

Ill be around for abit to keep u company if you like

In response to: Re: A long rave

Re: A long rave

Thanks, @outlander. Hope your unwell feelings ease with a night's sleep. I might get off the computer again now, but if I'm awake later I'll check in and see if you are around.

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