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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

Good morning @Mazarita @CheerBear @Appleblossom @Faith-and-Hope and anyone else around today.

Maz I really hope the change of dose brings positive developments for you. Nice to hear you sounding a bit more up-beat early this morning.

Apple I really hope today's NDIS experience goes well for you. Looking forward to hearing more about it afterwards.

In response to: Re: A long rave

Re: A long rave

Hi @eth. Seems like we might meet in real time for the first time in a while. How are you going? I've been wondering. ox

In response to: Re: A long rave

Re: A long rave

Fighting a cold that's got a hold of me @Mazarita. Feels like I've had a busy week but I can't list what's happened off the top of my head. 2 hours with coordinator of supports on Tuesday, psychologist with shebah transport on Wednesday, dentist Thursday, in between messages to and fro and trying to book necessary dates with support workers from Hireup - am not getting all the dates covered but have booked a few of them. Another meeting with CoS and another support worker at 12 today. and rest periods in between all that.

In response to: Re: A long rave

Re: A long rave

Sounds like you are doing a lot still, despite the cold, @eth. Hope the meeting today is fruitful and that you are feeling physically much better quickly. How are the psychologist sessions going?

In response to: Re: A long rave

Re: A long rave

I really like my psychologist @Mazarita. Still working on a map of my life - spent a while talking about the chaos dreams and nightmares and possible meanings and talked about things that brought up - relationship patterns and such. Psychiatrist put me on a new med the week before (on top of all the others) that's meant to help reduce nightmares and panic-waking by blocking adrenalin receptors. Can't tell if it's working really as I'm still waking a fair bit during the night. Gradually increasing the dose. Not sure if it's that or the cold I have or both but I'm pretty foggy in the mornings.

In response to: Re: A long rave

Re: A long rave

Good luck on the new med helping with the nightmares and panic waking, @eth. And hoping the morning fogginess clears with the cold and/or your body becoming accustomed to the new med. Even when I've been sleeping 18 hours a day, I've still mostly been waking up every few hours for a short time. Hope that improves for you too.

In response to: Re: A long rave

Re: A long rave

@eth, I'm getting too weary sitting at this desk. Need to go offline again. Nice to have a short chat in real time, hopefully longer ones to come as improvements happen.

In response to: Re: A long rave

Re: A long rave

Take care @Mazarita. Here's to improvements for us both xx

In response to: Re: A long rave

Re: A long rave

I'll drink to that! @eth

Cin cin ... to imporvement all round. @Mazarita

My phone call with NDIS went well. I am on the list and my current worker thinks it might be next year before I hear from them again and start work on a plan.

In response to: Re: A long rave

Re: A long rave

Kids have a book week thing on this afternoon,how did they go @CheerBear

thanks for the tag @CheerBear, @Mazarita

Hello @Faith-and-Hope, @Appleblossom, @eth

I am on more meds for my diabetes which the kidney can cope with -- there are sooo many meds i cant take

seeing the doctor next week for a fortnightly checkup and as my right leg sometimes goes numb for some reason

last night i was aching sooo much , my joints and left arm

just got home from cleaning 2 houses

Mr shaz is looking up you tube for videos about photography

how is everyone today

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